Guest guest Posted April 20, 2006 Report Posted April 20, 2006 Hi Diane, I was not happy about getting a port, but I am glad I did. I had adriamycin and it's scary to hear about what it can do to your veins if it leaks. The port makes it less likely to leak. Also, if you're doing a year+ of infusions they really recommend a port. My herceptin is weekly, which would have been hard on my veins. Also, if your veins are hard to find, ports are a good idea. I can't wait till I remove my port, but I know it was the right thing to do for me. Good luck with getting your answers. - Quote
Guest guest Posted April 20, 2006 Report Posted April 20, 2006 Barb - I loved my port and it "protected" the good arm I do have left...piece of cake in the "grand scheme" of everything we have to go through, right? Hope you're feeling good - you sound GOOD! Best, Quote
Guest guest Posted April 20, 2006 Report Posted April 20, 2006 I do feel good. Today has been a 'feel sorry for myself' day. I have those every once in a while and then we are back on track. Just trying to move forward after the mastectomy... I know I have several months of treatment (finally have appt with Onc next Monday) but at some point, I'd like to feel normal again... or is that ever going to happen? Ok, so now I have this port.... what is the first time they use it going to be like? Obviously the tech doing the PET scan said she couldn't 'initiate it' so does that mean the first time is a little tricky? Or it just takes a little longer to get started? Just curious... so much I still don't know and we all know the unknown is always scarier than the known... at least for me. Barb Re: Caren update Barb - I loved my port and it "protected" the good arm I do have left...piece of cake in the "grand scheme" of everything we have to go through, right? Hope you're feeling good - you sound GOOD! Best, Quote
Guest guest Posted May 8, 2006 Report Posted May 8, 2006 Ladies, time for another update. First of all thank you Barb for being so comforting in responding to A/C Treatment questions. Thank you to the ladies that tried helping me out in regards to the Chemo sores, they are better., I tried to congratulate you on your " One week on the job Anniversary " and Trish, I tried to wish you that your counts may go up soon. None of those post made it, no clue why, at one time yahoo said they would go to people who elected to recieve personal mails and the other times it said they were posted and never showed up. - NO CLUE - Had my second Chemo, May 8th, and Barb I know you are three days behind me, so please let me be the first to tell you - knock on wood, I am doing great so far - Pinned my Onc down about the vomitting and prolonged nausea and the fast heartrate and got an EKG on the spot, Ativan (not sure on the spelling) and some extra Kytril to take home - Will see how I make it throught the night and tomorrow. Barb, I wish for you that your second chemo be nothing like the first, may it be better and more pleasant for you. Once I know for sure this post gets through I will write to you Barb, I just wanted to thank you for your kind words and for being the closet person I have to a Chemo Buddy. My whole Famly is in Germany and some of my so called friends here are having a hard time dealing with me, now that I am the offical face of cancer to everyone.... Hugs to all, may your days be worry and pain free. Caren in Kansas Quote
Guest guest Posted May 9, 2006 Report Posted May 9, 2006 Caren, Yahoo was having problems with a virus but it seems to be fixed now. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.comCinDWood Craftshttp://www.cindwoodcrafts.com Caren update Ladies,time for another update. First of all thank you Barb for being so comforting in responding to A/C Treatment questions. Thank you to the ladies that tried helping me out in regards to the Chemo sores, they are better., I tried to congratulate you on your "One week on the job Anniversary" and Trish, I tried to wish you that your counts may go up soon. None of those post made it, no clue why, at one time yahoo said they would go to people who elected to recieve personal mails and the other times it said they were posted and never showed up. - NO CLUE -Had my second Chemo, May 8th, and Barb I know you are three days behind me, so please let me be the first to tell you - knock on wood, I am doing great so far - Pinned my Onc down about the vomitting and prolonged nausea and the fast heartrate and got an EKG on the spot, Ativan (not sure on the spelling) and some extra Kytril to take home - Will see how I make it throught the night and tomorrow. Barb, I wish for you that your second chemo be nothing like the first, may it be better and more pleasant for you.Once I know for sure this post gets through I will write to you Barb, I just wanted to thank you for your kind words and for being the closet person I have to a Chemo Buddy. My whole Famly is in Germany and some of my so called friends here are having a hard time dealing with me, now that I am the offical face of cancer to everyone....Hugs to all, may your days be worry and pain free.Caren in Kansas Quote
Guest guest Posted May 9, 2006 Report Posted May 9, 2006 Caren, Yahoo was having problems with a virus but it seems to be fixed now. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.comCinDWood Craftshttp://www.cindwoodcrafts.com Caren update Ladies,time for another update. First of all thank you Barb for being so comforting in responding to A/C Treatment questions. Thank you to the ladies that tried helping me out in regards to the Chemo sores, they are better., I tried to congratulate you on your "One week on the job Anniversary" and Trish, I tried to wish you that your counts may go up soon. None of those post made it, no clue why, at one time yahoo said they would go to people who elected to recieve personal mails and the other times it said they were posted and never showed up. - NO CLUE -Had my second Chemo, May 8th, and Barb I know you are three days behind me, so please let me be the first to tell you - knock on wood, I am doing great so far - Pinned my Onc down about the vomitting and prolonged nausea and the fast heartrate and got an EKG on the spot, Ativan (not sure on the spelling) and some extra Kytril to take home - Will see how I make it throught the night and tomorrow. Barb, I wish for you that your second chemo be nothing like the first, may it be better and more pleasant for you.Once I know for sure this post gets through I will write to you Barb, I just wanted to thank you for your kind words and for being the closet person I have to a Chemo Buddy. My whole Famly is in Germany and some of my so called friends here are having a hard time dealing with me, now that I am the offical face of cancer to everyone....Hugs to all, may your days be worry and pain free.Caren in Kansas Quote
Guest guest Posted May 9, 2006 Report Posted May 9, 2006 Thank you for your post, Caren. Where is Manhattan, KS? So glad to hear this treatment has been okay. Never thought I'd be glad to hear someone call me a 'chemo buddy' but it feels good. I'm thinking good thoughts and sending lots of prayers. I'm so sorry to hear your friends are not there to support you. But you have LOTS of friends here, this group is so great and what better, those who know what we are going through. My husband and son are great, even my 6 year old grandson is always asking me how I feel and if he can hug me and what side hurts. We have given him limited information but he knows Grandma is sick.... but, my female friends have a better understanding of what I have lost, even if they have not gone through it (lucky me, I get to be the first & just hope the last)...my daughter is great support as she can 'handle' the boys better if I'm not getting what I need even though she's 12 hours away by car.... but its everyone here that can tell me what I feel is normal, can push me to be strong and give me hope that there is a light at the end of the tunnel. We'll make it, Caren, and we'll be stronger for it. Just remember that. Is there a support group near you where you could make some new friends, friends who will understand? I'm anxious about Thursday. More about the port insertion than anything as that was pretty traumatic for me and shouldn't have been. The actual infusion doesn't bother me, just hoping we can keep the headache at bay. You'd think since I've had headaches most my life I'd be use to them, but this was a winner. May not post for a couple days after Thursday as I know you understand, but everyone here will be in my thoughts and prayers.... I've finding my moments when I can't sleep in the middle of the night to be the best time to pray... its quiet, its dark and it even puts me back to sleep...<s> I, too, have had trouble with the posts. I now just email direct to breastcancer2 and that seems to work the best. Sometimes they are delayed, but it does work. Hope the rest of the week goes as well for you. Barb Caren update Ladies,time for another update. First of all thank you Barb for being so comforting in responding to A/C Treatment questions. Thank you to the ladies that tried helping me out in regards to the Chemo sores, they are better., I tried to congratulate you on your "One week on the job Anniversary" and Trish, I tried to wish you that your counts may go up soon. None of those post made it, no clue why, at one time yahoo said they would go to people who elected to recieve personal mails and the other times it said they were posted and never showed up. - NO CLUE -Had my second Chemo, May 8th, and Barb I know you are three days behind me, so please let me be the first to tell you - knock on wood, I am doing great so far - Pinned my Onc down about the vomitting and prolonged nausea and the fast heartrate and got an EKG on the spot, Ativan (not sure on the spelling) and some extra Kytril to take home - Will see how I make it throught the night and tomorrow. Barb, I wish for you that your second chemo be nothing like the first, may it be better and more pleasant for you.Once I know for sure this post gets through I will write to you Barb, I just wanted to thank you for your kind words and for being the closet person I have to a Chemo Buddy. My whole Famly is in Germany and some of my so called friends here are having a hard time dealing with me, now that I am the offical face of cancer to everyone....Hugs to all, may your days be worry and pain free.Caren in Kansas Quote
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