Re: HER2 status

[Guest guest]

I had to ask back in December after I saw the Herceptin news on television.

My path report had the information, but I didn't think to ask until this " New "

breakthrough came out in October of 2005.

Don't feel so bad.

Best,

(Her/neu2++)

[Guest guest]

I had to ask back in December after I saw the Herceptin news on television.

My path report had the information, but I didn't think to ask until this " New "

breakthrough came out in October of 2005.

Don't feel so bad.

Best,

(Her/neu2++)

[Guest guest]

I had to ask back in December after I saw the Herceptin news on television.

My path report had the information, but I didn't think to ask until this " New "

breakthrough came out in October of 2005.

Don't feel so bad.

Best,

(Her/neu2++)

[Guest guest]

In a message dated 6/20/2006 4:26:06 P.M. Eastern Standard Time,

ruthiema36@... writes:

In fact it should have

been done on the biopsy last January.

Did you just now get your path report or did they just now write it

Or just not take note of the protein status when they reported back to you?

Does this change the post surgical treatment you are currently getting?

Tell us more about this,

Andree

_www.essentialsoapsinc.com_ (http://www.essentialsoapsinc.com)

[Guest guest]

In a message dated 6/20/2006 7:06:26 P.M. Eastern Standard Time,

ssist@... writes:

Best,

(Her/neu2++)

,

Do you have web sites that will explain to some of the new members what this

diagnosis

means for them?

Thanks,

Andree

(estrogen/progesterone + and Her2 Negative

(and running every day to lose the Arimidex weight, now that it is 100

degrees)

[Guest guest]

Not , But here is some info. I also a member of the HER2/neu message

board.

_HER2 Disease in Breast Cancer_

(http://www.gene.com/gene/products/education/oncology/her2disease.jsp)

In a message dated 6/20/2006 6:22:24 PM Central Daylight Time,

AndreeTerry@... writes:

,

Do you have web sites that will explain to some of the new members what this

diagnosis

means for them?

Vicki K.

Breast Cancer SURVIVOR --Dx'd 4-2005

Biopsy Dx'd 3-23-05 w/ 3 cm tumor Age 48 1/2 (turned 49 July)

MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)

5+/16 nodes

Stage 3

ER/PR-, Her2/neu ++ 3.42 confirmed by FISH

ki67 78%

Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)

28 Rad's ended October 13 2005

Started Herceptin Weekly August 2005 for one year, will be done this August

2006.

Had a Simple mastectomy left side after Mamo showed incresed

micro-calcifications. Jan. 17 2006.

[Guest guest]

Not , But here is some info. I also a member of the HER2/neu message

board.

_HER2 Disease in Breast Cancer_

(http://www.gene.com/gene/products/education/oncology/her2disease.jsp)

In a message dated 6/20/2006 6:22:24 PM Central Daylight Time,

AndreeTerry@... writes:

,

Do you have web sites that will explain to some of the new members what this

diagnosis

means for them?

Vicki K.

Breast Cancer SURVIVOR --Dx'd 4-2005

Biopsy Dx'd 3-23-05 w/ 3 cm tumor Age 48 1/2 (turned 49 July)

MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)

5+/16 nodes

Stage 3

ER/PR-, Her2/neu ++ 3.42 confirmed by FISH

ki67 78%

Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)

28 Rad's ended October 13 2005

Started Herceptin Weekly August 2005 for one year, will be done this August

2006.

Had a Simple mastectomy left side after Mamo showed incresed

micro-calcifications. Jan. 17 2006.

[Guest guest]

In a message dated 6/20/2006 7:44:47 P.M. Eastern Standard Time,

ruthiema36@... writes:

Thanks all for your support.

Ruth

I know you can right the train gone wrong for whatever reason!

And you are so right- we have got to STAY INFORMED and be on top of the facts

for our own treatment!

Andree

_www.essentialsoapsinc.com_ (http://www.essentialsoapsinc.com)

[Guest guest]

Wow-you should be upset!! Does it change the method of treatment for you?

I found out my stats after surgery and had an appt. with the onc. I was in

the dark until the path report came back. The biopsy didn't tell me except I

had bc. The surgeon just said he did two surgeries to make sure the margins

were clean and the onc. gave me all the stats.

Sharon C

ruthiema36 wrote:

Well, I am not a happy camper. After 3 months of bugging the shit oot

of my breast surgeon and the hospital where I had the mastectomy, come

to find out I am HER2neu+2. I am going to be asking some tough

questions of both my surgeon and oncologist. Seems to me this is a

test that should have been automaticly done. In fact it should have

been done on the biopsy last January. Soooooooo, where the hell would

I be if I wasn't looking out for myself? TRUST NO ONE!!!!!!

Ruth

SHARON COLEY

DIRECTOR OF SALES

DOUBLETREE HOTEL

888 MONTEBELLO BLVD.

ROSEMEAD, CA 91770

WWW.DOUBLETREE/ROSEMEAD.COM

---------------------------------

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[Guest guest]

Hi Ruth,

I'm sorry to hear it took you so long to get your diagnosis about your

Her2 status. I know the tests can take a couple of months (they first

test via something which is known to be not as reliable, but is cheaper,

and then test via FSH which is more reliable but takes longer). I think

it took over 2 months for my test to come back, and I got the results

because I kept asking.

We do have to be our own best advocates at times.

Ruth, when do you see your oncologist? Will this change your decision

about chemo? Maybe you can just take Herceptin without chemo beforehand.

-

[Guest guest]

Hi Ruth,

I'm sorry to hear it took you so long to get your diagnosis about your

Her2 status. I know the tests can take a couple of months (they first

test via something which is known to be not as reliable, but is cheaper,

and then test via FSH which is more reliable but takes longer). I think

it took over 2 months for my test to come back, and I got the results

because I kept asking.

We do have to be our own best advocates at times.

Ruth, when do you see your oncologist? Will this change your decision

about chemo? Maybe you can just take Herceptin without chemo beforehand.

-

[Guest guest]

Hi Ruth,

I'm sorry to hear it took you so long to get your diagnosis about your

Her2 status. I know the tests can take a couple of months (they first

test via something which is known to be not as reliable, but is cheaper,

and then test via FSH which is more reliable but takes longer). I think

it took over 2 months for my test to come back, and I got the results

because I kept asking.

We do have to be our own best advocates at times.

Ruth, when do you see your oncologist? Will this change your decision

about chemo? Maybe you can just take Herceptin without chemo beforehand.

-

[Guest guest]

I was diagnosed by biopsy in January. Stage 2 estrogen+,

pogesterone-. At that point did not know about HER2. After my

mastectomty, the end of March (node negative) I asked my surgeon about

the HER2 status at my 3 week check up. He was going to look into it.

Asked again at the next checkup a month later. He wrote the order to

have it done. The hospital path dept did the test and claim they sent

the results to the surgeon on May 23rd. When I heard nothing I called

the surgeon's office and nothing had ever been sent. Got in touch

with the hospital and they faxed the info to the surgeon's office.

Called the surgeon's office and got the bad news. Called the

oncologist and had my next appointment moved up to July 6. I believe

being HER2+ will change the treatment plan. From what I have read

hormone therapy is not as affective in HRE2+ cancers. What I am

hoping for is to be put on Herceptin. I still don't think I will go

the chemotherapy route. Have also read that sometimes Texol is given

with Herceptin, so am off to look that up. Thanks all for your support.

Ruth

>

>

> In a message dated 6/20/2006 4:26:06 P.M. Eastern Standard Time,

> ruthiema36@... writes:

>

> In fact it should have

> been done on the biopsy last January.

>

>

>

>

> Did you just now get your path report or did they just now write it

> Or just not take note of the protein status when they reported back

to you?

> Does this change the post surgical treatment you are currently getting?

> Tell us more about this,

> Andree

> _www.essentialsoapsinc.com_ (http://www.essentialsoapsinc.com)

>

>

>

[Guest guest]

I am new here also , this is my first posting. Your story just hit home with

me. I went over a year and a half not knowing that I was HER-2. I questioned

what my oncologist treatment was, so I made an appt. in Boston and find out

right away that

I was HER-2 +l, My doctor had miss read the report and I receiving the wrong

treatment. needless to say I am know longer with him and now have a wonderful

doctor. I'm now on Taxol and herceptin and I feel great. In two months my

count has

gone from 700 dowm to 260. I will never completly trust a doctor again that

they know

what is going on . I have learned the hard way ASK QUESTIONS and if they done

know ASK another doctor. Best of luck to all of us.

I am not a happy camper. After 3 months of bugging the shit oot

of my breast surgeon and the hospital where I had the mastectomy, come

to find out I am HER2neu+2. I am going to be asking some tough

questions of both my surgeon and oncologist. Seems to me this is a

test that should have been automaticly done. In fact it should have

been done on the biopsy last January. Soooooooo, where the hell would

I be if I wasn't looking out for myself? TRUST NO ONE!!!!!!

Ruth

[Guest guest]

Actually being postive for HER2, makes the Cancer more aggressive, nothing

good about it. Granted there is Herceptin, but it doesn't always work.

In a message dated 6/21/2006 4:01:57 PM Central Daylight Time,

denisempinheiro@... writes:

My onc says pos is good because there is more treatment, with Herceptin

Vicki K.

Breast Cancer SURVIVOR --Dx'd 4-2005

Biopsy Dx'd 3-23-05 w/ 3 cm tumor Age 48 1/2 (turned 49 July)

MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)

5+/16 nodes

Stage 3

ER/PR-, Her2/neu ++ 3.42 confirmed by FISH

ki67 78%

Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)

28 Rad's ended October 13 2005

Started Herceptin Weekly August 2005 for one year, will be done this August

2006.

Had a Simple mastectomy left side after Mamo showed incresed

micro-calcifications. Jan. 17 2006.

[Guest guest]

As I understand it, the Herceptin reduced my chances for recurrence to

about the same as someone with a less aggressive cancer, so it evened

things out.

There is also Tykerb now, which can work when Hercepin doesn't. Right

now it's only for metastatic women, but within a year or two maybe it

will be come like Herceptin and be available for all HER2+ women.

-