Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 , I'm so sorry that you're having such a hard time. As you know, stress increases pain, which increases the side effects of the sarc, which disrupts your sleep, which increases your pain and the wheel is turning. Does depression make the sarc worse. Yes, and no. I think that when we end up depressed, that we have a tendency to curl up and hold ourselves in a more protected (tighter) way. That increases the pain. We have a tendency to stay home, and sit or lay around the house- and the more we don't move, the more we hurt. For years, I've thought of myself as a turtle, and my back is as hard as the shell on any 200 year old turtle. My muscles decided to live up to my expectations. When I feel threatened, or need to defend myself, I "armour" up. I can also pull my head and limbs in (under the blanket) and hide. This is a wonderful way to avoid dealing with the issues, but is hell on the body. You know how hard it is to deal with your illness, and the loses that come with it. You know that when you're down, you need to really come back to your center and take really good care of you. you know that people around you will be insensitive to your needs, and will say or do something from their place of ignorance- or stupidity. Usualy, this comes from needing to protect themselves or their "territory." Know that whatever was said probably wasn't about you-- but about their fear, or their need to control. Remember always that many people can't (won't) see past our "healthy" looking bodies and see the pain in our eyes, and in our hearts. Know that even with your chronic illness, you are still important, and needed. Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 , I'm sorry you are having such a rough time. If there has been a pattern of the people at the shelter saying hurtful or insensitive things, they don't sound like the kind of people to work with troubled families. If this was a one time event, maybe someone was just having a bad day & you were in the line of fire. Is there someone there you feel comfortable discussing it with? I would hate to see you give up this work, as it so important. Love & support from Indiana, Rose sarc flare Hi all- I too think that I may be having a sarc flare, and it sucks. I am sleeping alot lately. Its an effort to get up and do anything. My joints hurt like hell, especially my left elbow. OMG it hurts. My muscles in my back hurt, feels like they are spasming. I just feel like crap. I go back to the Mayo January 30th to my Rheumatologist. Thank goodness. I hate this.. I also may be dealing with depression. I have not been to the shelter since last Wednesday, when I left crying. Over something that they said. So I just am not up to going back yet. I mean it was my misunderstanding ( I guess ). So the question is, is this a flare or is it depression. Can depression make one hurt so bad??? Hurting in Iowa ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 , I'm sorry you are having such a rough time. If there has been a pattern of the people at the shelter saying hurtful or insensitive things, they don't sound like the kind of people to work with troubled families. If this was a one time event, maybe someone was just having a bad day & you were in the line of fire. Is there someone there you feel comfortable discussing it with? I would hate to see you give up this work, as it so important. Love & support from Indiana, Rose sarc flare Hi all- I too think that I may be having a sarc flare, and it sucks. I am sleeping alot lately. Its an effort to get up and do anything. My joints hurt like hell, especially my left elbow. OMG it hurts. My muscles in my back hurt, feels like they are spasming. I just feel like crap. I go back to the Mayo January 30th to my Rheumatologist. Thank goodness. I hate this.. I also may be dealing with depression. I have not been to the shelter since last Wednesday, when I left crying. Over something that they said. So I just am not up to going back yet. I mean it was my misunderstanding ( I guess ). So the question is, is this a flare or is it depression. Can depression make one hurt so bad??? Hurting in Iowa ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 , Hang in there, I would say flare, yes depression can do those things to your body, but then again why would you be depressed, except you think you would be having a flare?? Take it easy and rest and see how you feel. Marla -----Original Message-----From: S Sent: Monday, January 19, 2004 7:09 PMTo: Neurosarcoidosis Subject: sarc flare Hi all- I too think that I may be having a sarc flare, and it sucks. I am sleeping alot lately. Its an effort to get up and do anything. My joints hurt like hell, especially my left elbow. OMG it hurts. My muscles in my back hurt, feels like they are spasming. I just feel like crap. I go back to the Mayo January 30th to my Rheumatologist. Thank goodness. I hate this.. I also may be dealing with depression. I have not been to the shelter since last Wednesday, when I left crying. Over something that they said. So I just am not up to going back yet. I mean it was my misunderstanding ( I guess ). So the question is, is this a flare or is it depression. Can depression make one hurt so bad??? Hurting in Iowa ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
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