Re: Vestibulectomy

[Guest guest]

Hi ,

Thank you so much for your reply... I actually did my own Q-tip test

with a mirror this weekend, and I realized the the skin under the

urethra that I thought was where the pain was originating from isn't

what is painful to the touch... it's the skin at the top of

the " horseshoe " of the vestibule.

I have been worried as well that I have essential vulvodynia rather

than vulvar vestibulitis because the pain has been a constant

burning, with or without pressure. I definitely have pain in

response to pressure (with a Q-tip, sex has been out of the

question). Could the constant burning mean I just have a bad case?

It hurts more when walking or driving, and the increased pain to the

touch is limited to the vestibule. It's not sharp pain, just a low-

level nagging burning... just enough that I can't forget it's there.

Is this similar to what you experienced? Did the surgery help?

Regards,

>

> ,

> It depends on what type of vulvar vestibulectomy they will be

doing. Some

> of them go far enough up to the urethra in that horseshoe and some

do not.

> I would ask your surgeon for details. The procedure I had done

was a

> complete vulvar vestibulectomy with perinial graft and vaginal

advancement.

> They also took out my hymen. This included the minor vestibular

glands as

> well as the Barthonalins Glands. If you are having pain near the

urethra,

> you may have more going on then just vulvar vestibulitis. It may

be IC.

> Also, I have been told (from my surgeon as well as from other

sources) that

> surgery has the best outcome when the pain is primarily with

intercourse or

> upon contact. If you are still in pain dispite wardrobe

adjustments (no

> tight clothing) and abstinence then it may not be vulvar

vestibulitis, or it

> may be vulvodynia of mixed nature. There are other types of

vulvodynia,

> Deasthetic Vulvodynia often involves constant pain and does not

have a high

> recovery rate with surgery. I am not telling this to you to

discourage you,

> but it would ease your mind about your decision to research and to

write a

> list of questions for your surgeon.

>

> Bunny

>

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[Guest guest]

Hi ,

Thank you so much for your reply. Hearing that your symptoms were at

times similar to mine, and that this surgery helped for you, has

offered me more comfort & hope than anything my doctor could say!

The pain has always been constant & low-level, even at rest - but

the burning is only in the vestibule and exacerbated dramatically to

the touch. Sex has never been super-comfortable, but nothing like

what primary sufferers describe. This all began with what I suspect

(given recent use of a broad-spectrum antibiotic) was a yeast

infection. After Monistat, the itching went away; the burning never

did.

Thanks again! When dealing with such a daunting and uncommon (or

maybe uncommonly talked about) problem, it's nice to know that I am

not alone and there is relief.

Regards,

>

> ,

>

> Yes, you could definatly have a severe case of it. I know that at

my worst

> times I hurt just wearing jeans, sitting too long, walking or

anything that

> put some friction or pressure on the area. Standing with no

underwear and a

> long skirt would help but there was still a sense of burning

irritation.

> Has it always been constant? Was there times when you had pain

mostly on

> contact or with intercourse? It might help your decision a bit to

be able

> to determine from thinking back on it if you are just flaring more

with it

> now or if it has developed into deasthetic vulvodynia. These are

good

> questions for your doctor too. Research the internet on both vvs

and

> deasthetic vulvodynia too so you can compare with how you feel and

have felt

> in the past. It may help you formulate good questions for your

doctor too.

> I know that Dee has booked marked dozens upon dozens of good

articles and

> could probably send you a few links.

>

> Bunny

>

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[Guest guest]

A suggestion would be to go to the Home page and in there are several good articles that might help you hon to decide just what it is you might have if that's what you're looking for.

(I'm drawing blanks tonight and am brain dead, (I swear) and still have about 200 emails to scan yet, Duh.. but if I can think of something to send on I will *grin*.. (see below)

Dee~

----- Original Message -----

From: Bunny ....>I know that Dee has booked marked dozens upon dozens of good articles and could probably send you a few links. Bunny

[Guest guest]

Hi,

I'm new to this site and my name is . I was just wondering how long you

waited

before you decided to have your surgery. Did they only remove the parts that

were

irritated? Do you have any problems with Vestibulitis now? Any discharge or

wetness? Is

intercourse painful ever or is it pleasant?

I feel so hopeless right now about my vestib. I'm 27 and feel like I'll never

have pleasant

intercourse or a non-irritated, non-itching vagina and vaginal opening.

Any thoughts or words of advice would be greatly appreciated!

Thanks,

>

> Hi there,

> I had a successful vulvar vestibulectomy 6 years ago. Unfortunatly not by

> the doctor you named but by a doctor in Milwaukee WI Dr. on

> (unfortunatly she has retired as of last year). I would be happy to share

> any of my story with you if you want to email me off group. I would also

> love to hear what you think of doctor O'Connel. I am still doing very well

> post surgery, but would like to find someone to replace Dr. on to do

> regular exams on the area and upkeep so to speak. My OBGyn and GP are

> familiar with the procedure but if anything were to go wrong they would be

> up a creek without a paddle;)

>

> Bunny

>

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