Yvonne and everybody: contacts

[Guest guest]

Hi all,

Sorry about the sites. I didn't mean to leave you in a lurch. One of

the things I did this afternoon -- on my own dime -- is I called our

Centers for Disease Control in Atlanta. I called my contact there,

the guy who put me in touch with both UT and NJC in the first place.

He's a doll.

I laid out everything to him and this is what he is going to do. He

said first of all, if you live in the US, UT and NJC are your best

bets! You may not want to have to fly there but they are really the

two places who know this! Both, he said, have physician consulting

programs and have your docs call there if you need to! NJC has a

toll free number and it's in Denver. UT is in Tyler.

For those of you who live in England, Oz, Netherlands and Canada, he

is going to try and find all of you either a good organization or a

good contact in your country. I will then post this in a couple of

days, what he finds.

Remember, I can't find an individual doc for all of you. I wish I

could. I have neither the time right now because of the move or the

money. I wish there WAS a foundation that could do this!!!!!!!!!!!!

What I can do is give you some good starting points and then from

there, you have to apply the grease and track it down. I am so sorry

the sites weren't good! Hopefully, though, in a couple of days I'll

have better contacts for those of you who live in these four areas.

Know that I am trying hard! I don't think this guy will let me down.

He never has!!!

Will let you know in a couple of days.

M