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That's great advice, Ute. That's what I did and now 18 months later, I am in

remission. I encourage everyone who has done this course of treatment

successfully to tell everyone about it as often as they can. Good Luck,

Dolores

Ute <nowyoga@...> wrote: Kamran,

Most doctors in the US, and other places, are not enthusiastic about

antibiotics for rheumatic diseases either. That's why we have to educate

ourselves and take the initiative to obtain the treatment of our choice,

AP. This list and the website www.rheumatic.org are here specifically to

support us in that endeavor. I encourage you not so sit back and let

someone else make the decisions concerning your health.

Take care,

Ute

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I started having flareups in May of 2006. Had to wait until August

to see the Rheumatologist, who prescribed large doses of NSAIDS, and

did all the blood tests. Which confirmed the RA. Three months later,

after I had done a LOT of online research and reading, I met with him

again. I had started working on trying to correct problems with my

colon, as " leaky gut " is pointed out as a strong causative factor in

RA. I had also been compiling a list of foods that seemed to trigger

the flare-ups. And I had been reading all about Minocycline. I asked

him to prescribe the Minocycline. He surprised me by saying he would.

We discussed the way in which that antibiotic works against RA...he

seemed to feel that it simply depressed the inflammation response,

while what I had read indicated that it went after certain types of

bacteria in the inflamed joints. I started taking 100mg twice a day,

and in TEN DAYS the inflammations subsided. Within one month I was

able to eat all the " forbidden foods " without any problems. I stayed

on it for about 10 weeks, then had a sudden problem with spotting and

a bout of the flu. So I stopped. It apparantly had an effect on the

HRT I was taking. But the flareups had not come back when I saw the

Dr. again 10 days later, so we decided to have me wait and see how

long the " cure " lasted. In all, it took six weeks for them to start

up again, (the flareups came back only after I had eaten something

that was apparently riddled with bacteria, and gave me intestinal

distress for three days....) and I went back on the minocycline. I

have now dropped back to taking just one per day, only six days a

week, and am still free of problems, everything normal. I can eat any

food I want. I am still working on that gut thing, which is

definitely the source-causative agent.

I did find that a couple of knuckle joints had started to swell up

after about a month on the two-a-day dose the second time, and going

down to one a day corrected that. I could tell that the issue with

the knuckles swelling was not an RA thing...it was just different,

but very noticeable. and they say that joint swelling can be a side

effect. But no other joints have given me any problems, and the

knuckles all have gone back to normal sizes. It took about a week.

So far, so good, and it has now been a year since this started, and

December since the minocycline...which seems to be working.

Regards

mousey

>

> Kamran,

> Most doctors in the US, and other places, are not enthusiastic

about

> antibiotics for rheumatic diseases either. That's why we have to

educate

> ourselves and take the initiative to obtain the treatment of our

choice,

> AP. This list and the website www.rheumatic.org are here

specifically to

> support us in that endeavor. I encourage you not so sit back and

let

> someone else make the decisions concerning your health.

> Take care,

> Ute

>

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Guest guest

Hi Ute

I am trying to get under the skin of doctors here some how but they have a very

hard shell because of their education's system. But

I am not diagnosed yet and will be back to doctor after 4-5 months. Right now

the only blod value which shows some kind of

problem is my anti CCP which is around 250. They say I have to wait. And it is

for the better cause I don't want to get any grug until

it is absolutely necessary.

Kamran

rheumatic Kamran and AP

Kamran,

Most doctors in the US, and other places, are not enthusiastic about

antibiotics for rheumatic diseases either. That's why we have to educate

ourselves and take the initiative to obtain the treatment of our choice,

AP. This list and the website www.rheumatic.org are here specifically to

support us in that endeavor. I encourage you not so sit back and let

someone else make the decisions concerning your health.

Take care,

Ute

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thanks Mousey for sharing your history. It is very hope giving.

Though I know that there are many places on the net to find writings about

" good " and " bad "

foods I would like to ask you write down a list of those food which trigger you

and vise versa. Could you?

I would appreciate.

Kamran

rheumatic Re: Kamran and AP

I started having flareups in May of 2006. Had to wait until August

to see the Rheumatologist, who prescribed large doses of NSAIDS, and

did all the blood tests. Which confirmed the RA. Three months later,

after I had done a LOT of online research and reading, I met with him

again. I had started working on trying to correct problems with my

colon, as " leaky gut " is pointed out as a strong causative factor in

RA. I had also been compiling a list of foods that seemed to trigger

the flare-ups. And I had been reading all about Minocycline. I asked

him to prescribe the Minocycline. He surprised me by saying he would.

We discussed the way in which that antibiotic works against RA...he

seemed to feel that it simply depressed the inflammation response,

while what I had read indicated that it went after certain types of

bacteria in the inflamed joints. I started taking 100mg twice a day,

and in TEN DAYS the inflammations subsided. Within one month I was

able to eat all the " forbidden foods " without any problems. I stayed

on it for about 10 weeks, then had a sudden problem with spotting and

a bout of the flu. So I stopped. It apparantly had an effect on the

HRT I was taking. But the flareups had not come back when I saw the

Dr. again 10 days later, so we decided to have me wait and see how

long the " cure " lasted. In all, it took six weeks for them to start

up again, (the flareups came back only after I had eaten something

that was apparently riddled with bacteria, and gave me intestinal

distress for three days....) and I went back on the minocycline. I

have now dropped back to taking just one per day, only six days a

week, and am still free of problems, everything normal. I can eat any

food I want. I am still working on that gut thing, which is

definitely the source-causative agent.

I did find that a couple of knuckle joints had started to swell up

after about a month on the two-a-day dose the second time, and going

down to one a day corrected that. I could tell that the issue with

the knuckles swelling was not an RA thing...it was just different,

but very noticeable. and they say that joint swelling can be a side

effect. But no other joints have given me any problems, and the

knuckles all have gone back to normal sizes. It took about a week.

So far, so good, and it has now been a year since this started, and

December since the minocycline...which seems to be working.

Regards

mousey

>

> Kamran,

> Most doctors in the US, and other places, are not enthusiastic

about

> antibiotics for rheumatic diseases either. That's why we have to

educate

> ourselves and take the initiative to obtain the treatment of our

choice,

> AP. This list and the website www.rheumatic.org are here

specifically to

> support us in that endeavor. I encourage you not so sit back and

let

> someone else make the decisions concerning your health.

> Take care,

> Ute

>

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Hi Kamran,

As far as I'm concerned 'they dance while Rome burns' . It would be

advantageous to deal with rheumatic diseases as soon as possible. They are

not in a hurry because they don't really have anything to offer that alters

the disease. Plus their medicines are so toxic that they sometimes want to

wait to start them. As far as diagnosis, many rheumatic diseases respond to

Minocin. It takes sometimes years for sero-negative RA to turn positive;

you can't wait. In the US, we are finding that often our family doctors are

easier to convince to let us try AP than rheumatologists. Even naturopaths

have been more helpful.

Perhaps there is someone on this list from Sweden or a nearby country who

has an AP doctor. People travel for holidays, they can for health. If you

can't service within a certain health care system, pay out of pocket. You

can't invest in something more precious than your health.

Take care,

Ute

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As I have said before on this forum, I am most probably moving to OC in LA/US in

very near future. I believe that there are some AP doctors there around LA. Any

one who has an exact address or perhaps their e-mail resp. website there I can

contact directly?

Otherwise I am going to ask my family doctor to look into it. The problem could

be that those doctors who have not had any experience whit using AP can not deal

with the side effects and to have the procedure under control. Ain't it so?

Kamran

Re: rheumatic Kamran and AP

Hi Kamran,

As far as I'm concerned 'they dance while Rome burns' . It would be

advantageous to deal with rheumatic diseases as soon as possible. They are

not in a hurry because they don't really have anything to offer that alters

the disease. Plus their medicines are so toxic that they sometimes want to

wait to start them. As far as diagnosis, many rheumatic diseases respond to

Minocin. It takes sometimes years for sero-negative RA to turn positive;

you can't wait. In the US, we are finding that often our family doctors are

easier to convince to let us try AP than rheumatologists. Even naturopaths

have been more helpful.

Perhaps there is someone on this list from Sweden or a nearby country who

has an AP doctor. People travel for holidays, they can for health. If you

can't service within a certain health care system, pay out of pocket. You

can't invest in something more precious than your health.

Take care,

Ute

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Go to the www.roadback .org foundation, click on Bulletin Board, scroll down,

click on I agree. The bulletin board opens. Read some of the posts. Then go up

to post, put in your name, e-mail address and post your request for an A/P doc

in the area where you plan to live. Ask for Richie. He will answer you

privately as the site does not allow advertising. He has a roster full of A/P

docs all over the country and various parts of the world. That's how I got my

contact. Went on A/P and now 18 months later, I am in remission. Good luck!

Dolores

Kamran Jamshidi <kamran.jamshidi@...> wrote: As I have said

before on this forum, I am most probably moving to OC in LA/US in very near

future. I believe that there are some AP doctors there around LA. Any one who

has an exact address or perhaps their e-mail resp. website there I can contact

directly?

Otherwise I am going to ask my family doctor to look into it. The problem could

be that those doctors who have not had any experience whit using AP can not deal

with the side effects and to have the procedure under control. Ain't it so?

Kamran

Re: rheumatic Kamran and AP

Hi Kamran,

As far as I'm concerned 'they dance while Rome burns' . It would be

advantageous to deal with rheumatic diseases as soon as possible. They are

not in a hurry because they don't really have anything to offer that alters

the disease. Plus their medicines are so toxic that they sometimes want to

wait to start them. As far as diagnosis, many rheumatic diseases respond to

Minocin. It takes sometimes years for sero-negative RA to turn positive;

you can't wait. In the US, we are finding that often our family doctors are

easier to convince to let us try AP than rheumatologists. Even naturopaths

have been more helpful.

Perhaps there is someone on this list from Sweden or a nearby country who

has an AP doctor. People travel for holidays, they can for health. If you

can't service within a certain health care system, pay out of pocket. You

can't invest in something more precious than your health.

Take care,

Ute

----------------------------------------------------------

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Guest guest

Kamran, You must realize that everyone is different from everyone else and have

extenuating circumstances and other diseases that you do or don't have. So,

there is no standard diet for everyone. It is up to you to start listening to

your own body and weed out the foods that don't agree with you. Get tested for

celiac disease, lactose intolerance, diabetes and a whole host of other diseases

that would have an impact on your body. Also, test your supplements and your

vitamins. Check your meats, white & red, fish etc. Shellfish, eggs. There are

so many foods that if we started a general list it would wipe out every food on

the planet. You have to take matters into your own hands and control your own

disease. Nobody else can do that for you. Buy the books by Henry Scammell & Dr.

Brown and read about the " Infectious Theory " and the Antibiotic Protocol.

Getting better is going to be your only job for the next two years at least.

So, buckle down and start educating

yourself. We will give you the keys, but you must open the doors yourself in

order to understand and be successful. Good Luck! Dolores

Kamran Jamshidi <kamran.jamshidi@...> wrote: thanks Mousey for

sharing your history. It is very hope giving.

Though I know that there are many places on the net to find writings about

" good " and " bad "

foods I would like to ask you write down a list of those food which trigger you

and vise versa. Could you?

I would appreciate.

Kamran

rheumatic Re: Kamran and AP

I started having flareups in May of 2006. Had to wait until August

to see the Rheumatologist, who prescribed large doses of NSAIDS, and

did all the blood tests. Which confirmed the RA. Three months later,

after I had done a LOT of online research and reading, I met with him

again. I had started working on trying to correct problems with my

colon, as " leaky gut " is pointed out as a strong causative factor in

RA. I had also been compiling a list of foods that seemed to trigger

the flare-ups. And I had been reading all about Minocycline. I asked

him to prescribe the Minocycline. He surprised me by saying he would.

We discussed the way in which that antibiotic works against RA...he

seemed to feel that it simply depressed the inflammation response,

while what I had read indicated that it went after certain types of

bacteria in the inflamed joints. I started taking 100mg twice a day,

and in TEN DAYS the inflammations subsided. Within one month I was

able to eat all the " forbidden foods " without any problems. I stayed

on it for about 10 weeks, then had a sudden problem with spotting and

a bout of the flu. So I stopped. It apparantly had an effect on the

HRT I was taking. But the flareups had not come back when I saw the

Dr. again 10 days later, so we decided to have me wait and see how

long the " cure " lasted. In all, it took six weeks for them to start

up again, (the flareups came back only after I had eaten something

that was apparently riddled with bacteria, and gave me intestinal

distress for three days....) and I went back on the minocycline. I

have now dropped back to taking just one per day, only six days a

week, and am still free of problems, everything normal. I can eat any

food I want. I am still working on that gut thing, which is

definitely the source-causative agent.

I did find that a couple of knuckle joints had started to swell up

after about a month on the two-a-day dose the second time, and going

down to one a day corrected that. I could tell that the issue with

the knuckles swelling was not an RA thing...it was just different,

but very noticeable. and they say that joint swelling can be a side

effect. But no other joints have given me any problems, and the

knuckles all have gone back to normal sizes. It took about a week.

So far, so good, and it has now been a year since this started, and

December since the minocycline...which seems to be working.

Regards

mousey

>

> Kamran,

> Most doctors in the US, and other places, are not enthusiastic

about

> antibiotics for rheumatic diseases either. That's why we have to

educate

> ourselves and take the initiative to obtain the treatment of our

choice,

> AP. This list and the website www.rheumatic.org are here

specifically to

> support us in that endeavor. I encourage you not so sit back and

let

> someone else make the decisions concerning your health.

> Take care,

> Ute

>

----------------------------------------------------------

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Hi Kamran, This site is not about slamming docs and their educational system.

It is about you educating yourself about your own disease. Stop whining and get

to work reading. I've given you some good starts, now get to work! Dolores

Kamran Jamshidi <kamran.jamshidi@...> wrote: Hi Ute

I am trying to get under the skin of doctors here some how but they have a very

hard shell because of their education's system. But

I am not diagnosed yet and will be back to doctor after 4-5 months. Right now

the only blod value which shows some kind of

problem is my anti CCP which is around 250. They say I have to wait. And it is

for the better cause I don't want to get any grug until

it is absolutely necessary.

Kamran

rheumatic Kamran and AP

Kamran,

Most doctors in the US, and other places, are not enthusiastic about

antibiotics for rheumatic diseases either. That's why we have to educate

ourselves and take the initiative to obtain the treatment of our choice,

AP. This list and the website www.rheumatic.org are here specifically to

support us in that endeavor. I encourage you not so sit back and let

someone else make the decisions concerning your health.

Take care,

Ute

----------------------------------------------------------

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Guest guest

Dear Dolores

Thanks for you advises and guidance. I undertstand your point and try to do so.

It is just that I am new in this area and it is sometimes so frustrating to not

know what is wrong with your body, and then the pessimistic words from doctors

like " there is no cure " !

But I am optimistic and will do my research. Have already bought the books from

Amazon and they are on the way. Read also websites.

My first thought for the moment, when I read this problems with healt care

system in US and upgoing prices of good antibiotics is that whether it is a wise

decision to come to US instead of living in Europe? Of course there are many

other factors playing role which are personal but I meant just the health care

system.

Any way thanks for being there and hearing.

Wishing us the best

Kamran

rheumatic Re: Kamran and AP

I started having flareups in May of 2006. Had to wait until August

to see the Rheumatologist, who prescribed large doses of NSAIDS, and

did all the blood tests. Which confirmed the RA. Three months later,

after I had done a LOT of online research and reading, I met with him

again. I had started working on trying to correct problems with my

colon, as " leaky gut " is pointed out as a strong causative factor in

RA. I had also been compiling a list of foods that seemed to trigger

the flare-ups. And I had been reading all about Minocycline. I asked

him to prescribe the Minocycline. He surprised me by saying he would.

We discussed the way in which that antibiotic works against RA...he

seemed to feel that it simply depressed the inflammation response,

while what I had read indicated that it went after certain types of

bacteria in the inflamed joints. I started taking 100mg twice a day,

and in TEN DAYS the inflammations subsided. Within one month I was

able to eat all the " forbidden foods " without any problems. I stayed

on it for about 10 weeks, then had a sudden problem with spotting and

a bout of the flu. So I stopped. It apparantly had an effect on the

HRT I was taking. But the flareups had not come back when I saw the

Dr. again 10 days later, so we decided to have me wait and see how

long the " cure " lasted. In all, it took six weeks for them to start

up again, (the flareups came back only after I had eaten something

that was apparently riddled with bacteria, and gave me intestinal

distress for three days....) and I went back on the minocycline. I

have now dropped back to taking just one per day, only six days a

week, and am still free of problems, everything normal. I can eat any

food I want. I am still working on that gut thing, which is

definitely the source-causative agent.

I did find that a couple of knuckle joints had started to swell up

after about a month on the two-a-day dose the second time, and going

down to one a day corrected that. I could tell that the issue with

the knuckles swelling was not an RA thing...it was just different,

but very noticeable. and they say that joint swelling can be a side

effect. But no other joints have given me any problems, and the

knuckles all have gone back to normal sizes. It took about a week.

So far, so good, and it has now been a year since this started, and

December since the minocycline...which seems to be working.

Regards

mousey

>

> Kamran,

> Most doctors in the US, and other places, are not enthusiastic

about

> antibiotics for rheumatic diseases either. That's why we have to

educate

> ourselves and take the initiative to obtain the treatment of our

choice,

> AP. This list and the website www.rheumatic.org are here

specifically to

> support us in that endeavor. I encourage you not so sit back and

let

> someone else make the decisions concerning your health.

> Take care,

> Ute

>

----------------------------------------------------------

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Guest guest

Hi Karam;

There is no such thing as good foods and bad foods other than high

fat and sugary ones.You do know that food sensitivities will cause your

immune system to try and fight the problem and it therefore does not

have enough strenght to fight a disease.By omitting certain foods for a

year or two that helps a lot and eventually you can bring them back into

your diet. You rarely feel a food sensitivityA food allergy makes you

sick almost immediately and you cannot eat those anymore.You should have

your doctor take a blood sample and send it to U.S. Bio Tek 13500 Linden

Ave north,Seattle Washington 98133 U.S.A. They will do an IgG and IgE

test and send him the print out of what you can and cannot have Lynne

Kamran Jamshidi wrote:

> thanks Mousey for sharing your history. It is very hope giving.

> Though I know that there are many places on the net to find writings

> about " good " and " bad "

> foods I would like to ask you write down a list of those food which

> trigger you and vise versa. Could you?

> I would appreciate.

>

> Kamran

> rheumatic Re: Kamran and AP

>

> I started having flareups in May of 2006. Had to wait until August

> to see the Rheumatologist, who prescribed large doses of NSAIDS, and

> did all the blood tests. Which confirmed the RA. Three months later,

> after I had done a LOT of online research and reading, I met with him

> again. I had started working on trying to correct problems with my

> colon, as " leaky gut " is pointed out as a strong causative factor in

> RA. I had also been compiling a list of foods that seemed to trigger

> the flare-ups. And I had been reading all about Minocycline. I asked

> him to prescribe the Minocycline. He surprised me by saying he would.

> We discussed the way in which that antibiotic works against RA...he

> seemed to feel that it simply depressed the inflammation response,

> while what I had read indicated that it went after certain types of

> bacteria in the inflamed joints. I started taking 100mg twice a day,

> and in TEN DAYS the inflammations subsided. Within one month I was

> able to eat all the " forbidden foods " without any problems. I stayed

> on it for about 10 weeks, then had a sudden problem with spotting and

> a bout of the flu. So I stopped. It apparantly had an effect on the

> HRT I was taking. But the flareups had not come back when I saw the

> Dr. again 10 days later, so we decided to have me wait and see how

> long the " cure " lasted. In all, it took six weeks for them to start

> up again, (the flareups came back only after I had eaten something

> that was apparently riddled with bacteria, and gave me intestinal

> distress for three days....) and I went back on the minocycline. I

> have now dropped back to taking just one per day, only six days a

> week, and am still free of problems, everything normal. I can eat any

> food I want. I am still working on that gut thing, which is

> definitely the source-causative agent.

>

> I did find that a couple of knuckle joints had started to swell up

> after about a month on the two-a-day dose the second time, and going

> down to one a day corrected that. I could tell that the issue with

> the knuckles swelling was not an RA thing...it was just different,

> but very noticeable. and they say that joint swelling can be a side

> effect. But no other joints have given me any problems, and the

> knuckles all have gone back to normal sizes. It took about a week.

>

> So far, so good, and it has now been a year since this started, and

> December since the minocycline...which seems to be working.

>

> Regards

>

> mousey

>

>

> >

> > Kamran,

> > Most doctors in the US, and other places, are not enthusiastic

> about

> > antibiotics for rheumatic diseases either. That's why we have to

> educate

> > ourselves and take the initiative to obtain the treatment of our

> choice,

> > AP. This list and the website www.rheumatic.org are here

> specifically to

> > support us in that endeavor. I encourage you not so sit back and

> let

> > someone else make the decisions concerning your health.

> > Take care,

> > Ute

> >

>

> ----------------------------------------------------------

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.9.0/852 - Release Date:

> 2007-06-17 08:23

>

> --

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> 3801 spam har blivit blockerade hittills.

> Betalande användare har inte detta meddelande i sin e-post.

> Hämta gratis SPAMfighter här: http://www.spamfighter.com/lsv

> <http://www.spamfighter.com/lsv>

>

>

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