hello

July 6, 2004

Have you had his vision checked?

P

--- khsesrussell <khsesrussell@...> wrote:

> Hi, all I am new here. My son was diagnosed with

> PDD:NOS last april

> 2003. I would appreciate all emails or posts

> considering eyes all of

> a sudden crossing a few times a day. Hubby says he

> is just tired. Is

> this possible? My birth to three class teacher

> suggested lazy eye

> pops up around this age (3)? Any suggestions? Anyone

> can check out my

> profile if they wish I would love to hear some

> support as I am a busy

> mom of three with a hombased business to run so I

> don't really have

> time to go to a support group 30 minutes away.

> Thanks in advance )

>

July 6, 2004

sarah, not yet, my son jsut started in the last two weeks even speaking in

sentences since we started on Xango(it's a natural juice form of xanthones which

are healing strains so I know that is not it) Besides he started doing this long

before we put him on Xango.

Can the vision test be accurate for that new of vocabulary of saying what he

says. P.S. Ethan has always had amazing sight even far away. I don't think he

has normal vision problems unless a few times during the day when he crosses his

eyes. I will take him in soon. I was also referred to a nuerologist for this

reason. Does that seem right?

thanks,

)

Fred Davies <mrrva@...> wrote:

Have you had his vision checked?

P

--- khsesrussell <khsesrussell@...> wrote:

> Hi, all I am new here. My son was diagnosed with

> PDD:NOS last april

> 2003. I would appreciate all emails or posts

> considering eyes all of

> a sudden crossing a few times a day. Hubby says he

> is just tired. Is

> this possible? My birth to three class teacher

> suggested lazy eye

> pops up around this age (3)? Any suggestions? Anyone

> can check out my

> profile if they wish I would love to hear some

> support as I am a busy

> mom of three with a hombased business to run so I

> don't really have

> time to go to a support group 30 minutes away.

> Thanks in advance )

>

July 6, 2004

Silly question:

Could this be a stim (interesting way of seeing things?) My son

looks at things ALL different sorts of ways - it is like he is

seeing things all new when he squints and looks out of the corner of

his eyes at it.

Dolly

> > Hi, all I am new here. My son was diagnosed with

> > PDD:NOS last april

> > 2003. I would appreciate all emails or posts

> > considering eyes all of

> > a sudden crossing a few times a day. Hubby says he

> > is just tired. Is

> > this possible? My birth to three class teacher

> > suggested lazy eye

> > pops up around this age (3)? Any suggestions? Anyone

> > can check out my

> > profile if they wish I would love to hear some

> > support as I am a busy

> > mom of three with a hombased business to run so I

> > don't really have

> > time to go to a support group 30 minutes away.

> > Thanks in advance )

> >

July 6, 2004

hmm...maybe i hadn't thought of that. thank you )

dollycason <dollymomma@...> wrote:Silly question:

Could this be a stim (interesting way of seeing things?) My son

looks at things ALL different sorts of ways - it is like he is

seeing things all new when he squints and looks out of the corner of

his eyes at it.

Dolly

> > Hi, all I am new here. My son was diagnosed with

> > PDD:NOS last april

> > 2003. I would appreciate all emails or posts

> > considering eyes all of

> > a sudden crossing a few times a day. Hubby says he

> > is just tired. Is

> > this possible? My birth to three class teacher

> > suggested lazy eye

> > pops up around this age (3)? Any suggestions? Anyone

> > can check out my

> > profile if they wish I would love to hear some

> > support as I am a busy

> > mom of three with a hombased business to run so I

> > don't really have

> > time to go to a support group 30 minutes away.

> > Thanks in advance )

> >

July 6, 2004

'hair test' in the index of http://tinyurl.com/2csa3

> what is a hair test? why would you recommend that? and where in the

heck would i get one? LOL I know nothing about them.

>

> Thanks in advance,

>

July 7, 2004

> Hi, all I am new here. My son was diagnosed with PDD:NOS last april

> 2003. I would appreciate all emails or posts considering eyes all of

> a sudden crossing a few times a day. Hubby says he is just tired. Is

> this possible? My birth to three class teacher suggested lazy eye

> pops up around this age (3)?

For my #4, it was food intolerance and yeast that caused this.

Removing foods and addressing yeast was very helpful.

Chelation removed the problem entirely.

http://www.danasview.net/chelate.htm

Dana

July 7, 2004

> Could this be a stim (interesting way of seeing things?) My son

> looks at things ALL different sorts of ways - it is like he is

> seeing things all new when he squints and looks out of the corner of

> his eyes at it.

This was a visual stim for my son, caused by measles virus. For some

kids, adding vitamin A [usually cod liver oil] can help, but my son

needed the high dose vitamin A protocol to eliminate measles virus

http://www.danasview.net/vitamina.htm

He needed a few additional things after that, but this was the key to

end 7+ years of this. That protocol also helped with language and

social interaction.

Good luck.

Dana

July 7, 2004

> what is a hair test? why would you recommend that? and where in the

heck would i get one? LOL I know nothing about them.

Scroll down this page to my section on testing

http://www.danasview.net/chelate.htm

Dana

July 7, 2004

, just wanted to share what we are doing. My DS is 2 yr. 3

mo., dx ASD 3/04. We began ABA through our Birth to 3 program in

May. Our particular Consultant uses a modified discrete trial

approach, utilizing aspects of Natural Environment Training,

Incidental Teaching, Pivotal Response Training, Discrete Trial

Training, and Play Therapy. Since my son is so young, has good play

skills and strong resistance to instructional control (doesn't want

to do ANYTHING that you want him to do), a play therapy approach has

been very successful. To date (week 6 of the program), they are

able to make 150 demands/90 min. session with him, all done

during " play " . He is now much more attentive in therapy, exhibiting

much less noncompliance during the sessions.

When I thought of ABA, I thought of strict discrete trial method.

Sitting at a table, therapist saying " Touch your nose " . Hand over

handing my child, then saying again, " touch your nose " , etc. That

would have been really tough on my child, who hated table work (at

27 months, not an unreasonable dislike!). Now, he initiates

activities, like painting at the table, or reading a book, along

with playing with Mr. Potato Head, etc. I credit both the program

and the implementation of the GFCF diet (mid May) with his

tremendous progress.

Thought you might like to hear a pro-play therapy ABA approach

testimonial. By the way, we are doing between 10-16 hours/week of

ABA, in 90 min. sessions, along w/2 hrs ST and 2 hrs OT per week.

Best of luck in whatever path you take.

July 9, 2004

> I want to help my son as much as possible. That little turkey seems

to be trying new things on his own before the speech therapists,

occupation therapists, and dev specialists have a chance to work with

him. Is that common with autism?

My son does that.

>>I have heard of people having to do ABA therapy becuase the children

can't get what is being taught the first time. I seem to have quite

the opposit problem My therapists and specialist strongly disagree

with ABA method and prefer the more social settings and therapy.

Learning through play. Does this seem very laid back?

Depends on how it is implemented.

> How do other's feel about the one on one therapy versus what has

been a " laid back " but learning by play approach in the birth to three

and preschool programs?

Some people believe 1:1 is best, others don't.

>>Also, does anyone have advice on what to do with a child that only

eats chicken nuggets, applesauce, strawberry or peach yoplait yogurt

(with red label), bananas, ungreasy canadian bacon pizza, cereal bars

(i found the ones that have the most vitamins in them at costco),

graham crackers?

Enzymes can help expand food choices.

>>I have a book that says give him what he wants but keep offering

other stuff on his plate and eventually he will get curious enough to

try it.

Not necessarily.

Dana

July 9, 2004

> thank you dana i will try it. thank you so much. i was warned about

lazy eye in autistic kids around the age of three. is this something

you hear about alot and then fixed by the oil?

Many children are deficient in vitamin A, and adding cod liver oil

will help with that.

>>i don't want him to get lazy eye if there is a way to prevent it?

This makes sense.

Dana

July 16, 2004

I would get his eyes checked by a behairo optometrist. The testing is cool.

WE tool our middle daughter but her eye tracking is getting better so he did

not recommend vision therapy. I do slight exercises with her at home.

Migdalia (DEE)

March 1, 2005

Hi ,

Yes, I think you're talking about costochondritis, which is inflammation of the

joints between the sternum and the ribs. And yes, it is very painful. One can

ease a lot of joint pain by immobilizing the affected joint, but you can't

immobilize these ones because you have to keep breathing - it's a bugger!

Painkillers help to a degree, but the best thing is if you can get the disease

process under control. Since taking Enbrel all this rib pain - and all the

others - has gone away for me.

n

[ ] Hello

It has been awhile...... Anyway I was wondering if

anyone gets pain in their sternum/ribs area. Mine is

killing me today, and it hurts to breath.

Thanks! Jess

April 11, 2005

Welcome to the goup, Pat. You are a strong woman to have to deal

with this disease and take care of your husband. Sorry to hear

about the trouble Humira gave you. But, at least you have a

treatment that is helping you. Trust me, no one in here minds it if

you sign with hugs. Many of us do!!

We have been discussing the issue with fatigue, but no miracle cure

yet!! I hope we hear more from you...Take care...Marina

> Hello Everyone,

>

> My name is Pat and I am new to the list. I have been diagnosed for

> several years now and am presently being treated for my RA by

> being infused with Remicade every 8 weeks and taking low dose

> Methotrexate every week. So far I have had no ill effects from

> this treatment. After original diagnosis I began being treated with

> Humira. My joints never felt so good. However, after several months

> of injecting myself with this medicine I began having breathing

> problems and was so tired I didn't even care if I did breathe. I

> changed doctors and treatment and am grateful for the medication

> that I am receiving.

>

> I take care of my husband who became a paraplegic last November

> and I sometimes don't know if I will have the energy to do

everything

> for him that needs to be done every day and night. I am very tired

most

> of the time. I know having to get up 3 times during the night to

turn him

> isn't helping with the fatigue but it is something that has to be

done. I

> am wondering if there is anyone in this group that is taking

medication

> that helps with fatigue?

>

> Hope to get better acquainted with all of you and thanks for the

support.

>

> I always sign my mail with hugs, I hope you don't mind.

>

> Hugs,

> Pat

>

April 11, 2005

I really think that Enbrel helps me with fatigue. Sue

On Monday, April 11, 2005, at 09:58 PM, pathinze wrote:

> I know having to get up 3 times during the night to turn him

> isn't helping with the fatigue but it is something that has to be

> done. I

> am wondering if there is anyone in this group that is taking medication

> that helps with fatigue?

June 28, 2005

Welcome to the group Loretta. I hope you like it here. We have a lot

of great people here and we all have so much in common.

I understand the unrelenting pain and having to take so many meds. But

at least they help.

a

On Jun 27, 2005, at 4:52 PM, teaforeight wrote:

> I have just joined this group and I am looking forward to getting to

> know you all.Â I have an autoimmune disease andFibromyalgia and also

> migrains. I am on alot of meds for pain and to control the migrains. I

> get so tired and hurt and it never seems to end.Â I am sure you all

> know what this is like. Loretta

>

July 24, 2005

> mercury poisioning. I have researched this before, but just saw about

> mercury poisioning. I am curious to have the child tested to see if

> this could be the cause this. Thanks for your help!

I have info here, plus links to other sites for more info

http://www.danasview.net/chelate.htm

Dana

July 24, 2005

> Hello. I am new to the group. I joined because my 5 yr old step

son

> has been diagnosed with Autism PDD-NOS. He has an appointment with

the

> nuroligist tomorrow morning. I am trying to figure out a list of

> questions to ask. Can anyone help? I am also wondering about the

> mercury poisioning. I have researched this before, but just saw

about

> mercury poisioning. I am curious to have the child tested to see if

> this could be the cause this. Thanks for your help!

>

The neurologist is probably not going to want to discuss

mercury/vaccines.

July 24, 2005

I would definitely recommend mercury testing but like someone else said your

doctor will very likely be absolutely no help. What they will probably say is

all the party lines about how shots don't cause autism. He may very well get

defensive or angry. I swore my peds doctor was going to blow steam out of her

ears when I told her I wasn't vaccinating my second son. I still didn't

vaccinate him and at almost three is very typical and healthy.

There are ways to test for mercury. Hair testing and trial rounds of chelation

are the two most popular. Hair testing is easiest. There is a certain lab most

use and they offer a discount if you mention this group.

Getting the metals out of your son is the best chance that kiddo has at a normal

life. Someone said that better than 75% recover (correct me if I am wrong!) to

the point that they lose their diagnosis.

Best bet is to find a DAN doctor if you can afford one...or you can do this

yourself like many do. Best of luck at the doctor, let us know how it goes.

angelaseibel <angelaseibel@...> wrote:

> Hello. I am new to the group. I joined because my 5 yr old step

son

> has been diagnosed with Autism PDD-NOS. He has an appointment with

the

> nuroligist tomorrow morning. I am trying to figure out a list of

> questions to ask. Can anyone help? I am also wondering about the

> mercury poisioning. I have researched this before, but just saw

about

> mercury poisioning. I am curious to have the child tested to see if

> this could be the cause this. Thanks for your help!

>

The neurologist is probably not going to want to discuss

mercury/vaccines.

=======================================================

July 25, 2005

Hi ,

Welcome to the list. See if the neurologist will order a DDI (Doctor's Data,

Inc) hair elements test. If not, you can order one on your own through DLS

(Direct Lab Services). If you mention this list they will give you a discount.

Be sure to apply the counting rules as mercury causes disordered mineral

transport. Does your son have any mercury amalgam dental fillings? If not,

make sure he doesn't get any.

S S

<tt>

> Hello. I am new to the group. I joined because my 5 yr old step

son

> has been diagnosed with Autism PDD-NOS. He has an appointment with

the

> nuroligist tomorrow morning. I am trying to figure out a list of

> questions to ask. Can anyone help? I am also wondering about the

> mercury poisioning. I have researched this before, but just saw

about

> mercury poisioning. I am curious to have the child tested to see if

> this could be the cause this. Thanks for your help!

>

The neurologist is probably not going to want to discuss

mercury/vaccines.

</tt>

<tt>

=======================================================

September 4, 2005

Welcome to the group, but sorry that you have to be here. This is a very

informative group with people who actually DO know what you are going through. I

hope better and pain free days for you. I'm a 28 year old female, mother to two,

so far diagnosed with RA, carpal tunnel palsy, migraines amongst other things.

Take care of yourself...

kerri sue

pattyk630 <babies1@...> wrote:

I am new to the group, and I thought I would tell you a little about

myself. I am a 49 year old female that feels 100. I am a nurse in a

very busy pediatric practice. I have hypothyroidism and started

having a lot of problems, so I went to the doctor, and more doctors,

and then more doctors. My blood test were off the wall for RA, but

then came a additional problem - hemachromatosis, or better called

iron overload. This also causes a different type of arthritis, and

joint pain. I am looking forward to talking to others with RA and

venting every now and then. My family, husband, two daughters, and

four grandchildren are wonderful and supportive, but they only see the

outside and can't understand all that is happening on the inside. I am

really looking forward to this group.

September 4, 2005

Hello and welcome to the group, 35 year old mother of 2 and one hubby

with newly diagnosed RA (in May) I am a OB sonographer, Dallas county

hospital. This a good group to be in, it is nice to be with a group

that understand that although you look fine, the pain is very real.

Cassy

> I am new to the group, and I thought I would tell you a little about

> myself. I am a 49 year old female that feels 100. I am a nurse in

a

> very busy pediatric practice. I have hypothyroidism and started

> having a lot of problems, so I went to the doctor, and more doctors,

> and then more doctors. My blood test were off the wall for RA, but

> then came a additional problem - hemachromatosis, or better called

> iron overload. This also causes a different type of arthritis, and

> joint pain. I am looking forward to talking to others with RA and

> venting every now and then. My family, husband, two daughters, and

> four grandchildren are wonderful and supportive, but they only see

the

> outside and can't understand all that is happening on the inside. I

am

> really looking forward to this group.

September 4, 2005

Hello Kerri,

I can't imagine being a young Mother with the problems. When my son was young

there is so much they need us for. I hope you have lots of help from family?

Thanks for the welcome though. I wish I wasn't here also. The pain and being

so tired makes me sad, plus living alone.

kerri paquette <ksp2242@...> wrote: