new member

[Guest guest]

Dear Debi,

Don't be scared, that won't help at all. This is not an easy trip but it's best to deal with difficulty from your strengths not your fears. Investigate, learn, be in control as much as you can and try to focus on the things of life that are important to you and that you feel that are good.

Best wishes and welcome to the board

"never saw the sun shining so bright. never saw things going so right, . . . blue days all of them gone, nothing but blue skies do I see"

Poncho

[Guest guest]

Dear Poncho,

Thank you for the wise words... I guess we can all

use a reminder about how precious life is, and not

to drell on the bad. It is just overwhelming because

it is so new to me. But, I get up in the morning, and

that in itself is a gift. Thank you for reminding me!

Sincerely,

Debi

> Dear Debi,

> Don't be scared, that won't help at all. This is not an easy trip

but it's

> best to deal with difficulty from your strengths not your fears.

Investigate,

> learn, be in control as much as you can and try to focus on the

things of

> life that are important to you and that you feel that are good.

> Best wishes and welcome to the board

> " never saw the sun shining so bright. never saw things going so

right, . . .

> blue days all of them gone, nothing but blue skies do I see "

> Poncho

[Guest guest]

Hello, I am a new member also and live in Southern California Welcome.

[Guest guest]

Hello, I am a new member also and live in Southern California Welcome.

[Guest guest]

Hi Debbie #3... *LOL*

I am the Colorado Debi, and I having an ercp/ sphinct on Friday to open a duct.

I'm not sure

which one, and didn't know there was more than one to be opened. I have

pancreatic

divisum, so I'm sure it is the main duct that needs to be opened. The vicodin

is still in

me, or I'd remember the name...

Nice to meet you, and we will keep our fingers crossed for each other!

Hugs,

Debi<br clear=all><hr>Get your FREE download of MSN Explorer at <a

href= " http://explorer.msn.com " >http://explorer.msn.com</a><br></p>

[Guest guest]

Dear Debbie (cal),

Welcome to the group. It is a really great place for finding info.

but mostly just for the support! Take care!

[Guest guest]

Dear Debbie (cal),

Welcome to the group. It is a really great place for finding info.

but mostly just for the support! Take care!

[Guest guest]

Dear Debbie (cal),

Welcome to the group. It is a really great place for finding info.

but mostly just for the support! Take care!

[Guest guest]

Hi Debbie,

I first became sick w/pancreatitis in 93 from an ERCP I had done at

Ohio State. Last January when I saw Dr. Lehman he told we they have

come a long ways with ERCP since 93. I see you have been sick since

92, do you agree with this? ERCP scares me to death, and I know he

was trying to help me relax some before he did the ERCP. Thanks for

your opinion.

Lots of Hugs,

______________________________________________________________________

> Hi all, I have had pancreatitis on and off since my gallbladder was

> removed in 1992 and they left sludge behind. I am about to have my

> 7th ERCP on March 5th where they plan to do a spinctertotomy of the

> pancreatic duct. In 1992 I had an ERCP with spincterotomy of the

> common bile duct at UCLA. I was the last ERCP that Dr.Sherman did

> prior to moving to Indiana! I agree, he is the best!I live in So.

> Calif., but I am orginally from the northern region of Indiana.

> Sounds like I need to go back to be closer to Dr. Sherman!It is

nice

> to have this board so we don't have to feel alone in our disease.

> Thanks to all, Debbie

[Guest guest]

Hi Cal Debbie,

I'm sorry these procedures haven't worked for you. What are they going to try

next? There

has to be something that works....

Best Wishes,

Col Debi<br clear=all><hr>Get your FREE download of MSN Explorer at <a

href= " http://explorer.msn.com " >http://explorer.msn.com</a><br></p>

[Guest guest]

--- liamhoha20@... wrote:

> Hi Debbie,

>

> I first became sick w/pancreatitis in 93 from an

> ERCP I had done at

> Ohio State. Last January when I saw Dr. Lehman he

> told we they have

> come a long ways with ERCP since 93. I see you have

> been sick since

> 92, do you agree with this? ERCP scares me to

> death, and I know he

> was trying to help me relax some before he did the

> ERCP. Thanks for

> your opinion.

> Lots of Hugs,

Hi , my GI doc said the same thing...and I

believe that it is much safer than it was in 92 &

93.Many times they can go in and fix the problem with

an ERCP, much better than cutting your belly open. I

think my problem is scar tissue from my previous

ERCP;s and an exploratory laparotomy (open belly

surgery). The best plan to go into surgery is with a

positive attitude, bring a walkman and listen to soft

music prior to the surgery. When is your ERCP? Hugs,

Cal Debbie

>

______________________________________________________________________

>

>

>

> > Hi all, I have had pancreatitis on and off since

> my gallbladder was

> > removed in 1992 and they left sludge behind. I am

> about to have my

> > 7th ERCP on March 5th where they plan to do a

> spinctertotomy of the

> > pancreatic duct. In 1992 I had an ERCP with

> spincterotomy of the

> > common bile duct at UCLA. I was the last ERCP that

> Dr.Sherman did

> > prior to moving to Indiana! I agree, he is the

> best!I live in So.

> > Calif., but I am orginally from the northern

> region of Indiana.

> > Sounds like I need to go back to be closer to Dr.

> Sherman!It is

> nice

> > to have this board so we don't have to feel alone

> in our disease.

> > Thanks to all, Debbie

>

>

__________________________________________________

[Guest guest]

> Hi Cal Debbie,

>

> I'm sorry these procedures haven't worked for you. What are they

going to try next? There

> has to be something that works....

>

> Best Wishes,

> Col Debi

Hi, I will have an ERCP on March 5th to open my pancreatic duct, will

that help? They hope so, and so do I!! Take Care, Cal Debbie

[Guest guest]

In a message dated 2/19/01 9:54:55 AM Eastern Standard Time,

liamhoha20@... writes:

>

> Hi Debbie,

>

> I first became sick w/pancreatitis in 93 from an ERCP I had done at

> Ohio State. Last January when I saw Dr. Lehman he told we they have

> come a long ways with ERCP since 93. I see you have been sick since

> 92, do you agree with this? ERCP scares me to death, and I know he

> was trying to help me relax some before he did the ERCP. Thanks for

> your opinion.

>

> Lots of Hugs,

>

>

Hi , I found no difference with the ercp from 93 to now. I did have Dr.

Lehman do all my ercps and stints which I feel are harmful but if anyone is

going to do them he or Dr. Sherman would be the best. I hope this helps and

not scares you. Love, Shirley

[Guest guest]

--- djssekis@... wrote:

> In a message dated 2/18/01 9:05:55 PM Central

> Standard Time,

> calindy59@... writes:

>

>

> > Hi, it is only recently that a pancreatic duct

> could be cut during an

> > ERCP. They measure the pressures inside the duct

> and if they are too

> >

>

> > they made a " slight " cut and i am supposed to go

> back to them wed. of this

> week. i'll be making a list of questions for them

> between then and now.

> debbie (ark)

> Keep us posted:) Cal Debbie

>

> >

__________________________________________________

[Guest guest]

Hi Shirley,

I thought the sphinct. would open the main one, and they were going

to put the stent in the accessory one?? I'm so confused... I think I will

call the dr today.

Thanks!

Debi<br clear=all><hr>Get your FREE download of MSN Explorer at <a

href= " http://explorer.msn.com " >http://explorer.msn.com</a><br></p>

[Guest guest]

No Debbie, I just cjhanged to Kaiser and they have not sent me to GI

specialist yet. It is in referal along with the hemotologist for my platlet

count and now the cardiologist for the PVC's i am throwing every other heart

beat!!! Thank you for offering to talk to you doctor. No I have never had an

Ercp. I just got diagnosed with pancreatitis even though I have been seeing

doctor for 5 to 10 years for symptoms that I now know have been

misdiagnosed. I changed insurance companies before they could get very far in

the treatment after they finally diagnosed it. Thanks again. I am sending you

visions of healing white and pink light.

[Guest guest]

Debbie,

another Californian, yeah. Hello, I'm live in the SF bay area and they

also have some really great doctors out here if you need them (at least

closer than Indy). I was lucky enough to have doctors (most of the time)

who have done their utmost to help me get the care I need. My doctor, a

former physician and several others who deal with the pancreatitis out

here have started a weekly conference call to discuss their patients and

pool their knowledge. Just thought I'd say hello.

Kimber

[Guest guest]

Debbie,

another Californian, yeah. Hello, I'm live in the SF bay area and they

also have some really great doctors out here if you need them (at least

closer than Indy). I was lucky enough to have doctors (most of the time)

who have done their utmost to help me get the care I need. My doctor, a

former physician and several others who deal with the pancreatitis out

here have started a weekly conference call to discuss their patients and

pool their knowledge. Just thought I'd say hello.

Kimber

[Guest guest]

Hi Kimber, glad to hear I have a neighbor (sort of)! My doc at Kaiser

Fontana is very good, and I trust him. When he did not want to do

another ERCP in Sept 92 he sent me out of the Kaiser system to UCLA

so Dr. Sherman could do it, so he is a gem! I was Dr. Sherman's last

ERCP at UCLA, the next day he was on the way to IU! Take Care, Cal Deb

[Guest guest]

Hi Kimber, glad to hear I have a neighbor (sort of)! My doc at Kaiser

Fontana is very good, and I trust him. When he did not want to do

another ERCP in Sept 92 he sent me out of the Kaiser system to UCLA

so Dr. Sherman could do it, so he is a gem! I was Dr. Sherman's last

ERCP at UCLA, the next day he was on the way to IU! Take Care, Cal Deb

[Guest guest]

Hi Calif. Deb,

yes, it is good to know someone else in CA. So far, everyone else I had

met was outside the state. Let me know if you do need any help with the

Kaiser system.

Kaiser does see the need to see a specialist they can't provide, which

is good.

You know a good doctor by the fact that he knows what he doesn't know

and is willing to refer when necessary. If I'm ever in LA, I'll let you

know, maybe we can get together and meet.

Kimber

[Guest guest]

In a message dated 4/18/01 12:05:35 PM Eastern Daylight Time,

mira.crocker@... writes:

>

Mira, no one knows how to handle the pain, we just do the best we can and

live through it until it's a little better. Don't be discouraged, it takes

time to know yourself, work with your Dr. to get the best medication and

dosage, get the best Dr. period. learn how to recognize an incident early and

thus begin pain medication soon enough to be effective, etc. Just keep

working with it and while you most likely won't like the outcome or

prognosis, you can come to better terms with the condition of Panc.

Poncho

[Guest guest]

Mira:

I am very glad to meet you. I also experience the worst pain in the morning

and night. I can relate to you more than ever. I imagine this affects your

ability to sleep as much as me. Please take comfort in knowing that as you

lie awake, feeling the pain and uncertainty that accompany this disease,

know that I to am awake and thinking the same things. That is all I can

offer, because I do not have the answers.

Friends,

Ken Ross

new member

Hello Everyone,

My name is Mira, I wish to introduce myself to the group,

I have been diagnosed with pancreatitis 6 months ago.

I would like to know why the pain is very strong during the night and

early morning.

I have had 5 ERCP - in Halifax NS the last one the doctor replaced the

stent with a new one which he said can stay in the pancreas for 3

months, Although I have the stent I still get attack every month, . As

for pain management I still did't master this and somedays I do not

know how to handle the pain.

Please write back

Mira

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[Guest guest]

Hi Renarda,

Welcome to our group. There is a lot of good and caring people here. The MRI is not bad, you just lay there and listen to music. I close my eyes and that seem to help. I was 43 when I found out I had neurosar. but they said that I have had it for along time. Things are better now than they were when I first found out I was sick. A lot of meds. prayers and my faith has brought me thru so far. There is life with this disease, you just have to make the best of every minute and change the way you do things. The days that are really bad just think tomorrow is another day. Remember to listen to your body it will tell you when you need to rest!

Best wishes.

HI MY NAME IS RENARDA. THIS IS MY FIRST TIME JOINING A SUPPORT

GROUP. I HAVE BEEN SEEING A ENDOCRINE DOCTOR AND HE INFORMED ME THAT

HE THINKS THAT I HAVE NEUROSARCOIDOSIS. I HAD SARCOIDOSIS IN

[Guest guest]

Renarda,

Welcome, and I'm sorry you have to deal with this at such an young age,

but it seems to hit us when ever, and however. Mine started in my lungs

9 years ago, after I was told it wouldn't bother me at all!! It's a

funny disease, but this is a great, warm, loving group of people with a

lot of expericne. so welcome, and make yourself at home here, we love you.

Marla

:

>HI MY NAME IS RENARDA. THIS IS MY FIRST TIME JOINING A SUPPORT

>GROUP. I HAVE BEEN SEEING A ENDOCRINE DOCTOR AND HE INFORMED ME THAT

>HE THINKS THAT I HAVE NEUROSARCOIDOSIS. I HAD SARCOIDOSIS IN MY LUNGS

>ABOUT 5 YEARS AGO. (NO ONE TOLD ME UNTIL NOW THAT THIS DISEASE CAN

>SHOW UP IN OTHER AREAS OF YOUR BODY). I WILL BE HAVING A MRI, FOR

>THE FIRST TIME IN MY LIFE, ON JUNE 30TH. I AM VERY NERVOUS ABOUT THE

>MRI. BUT I WILL BE GLAD WHEN IT IS OVER. AND I WILL KNOW IF A

>NEUROSARCOID IS EXERTING PRESSURE ON MY PITUTARY GLAND IN MY BRAIN

>AND CAUSING MY ADRENAL GLANDS NOT TO WORK. I HAVE BEEN TAKING CORTEF

>(HYDROCORTISONE)TO REPLACE THE CORTISOL MY BODY NEEDS TO COPE WITH

>PHYSICAL AND MENTAL STRESSES. I WAS TOLD THAT I MAY BE TAKING CORTEF

>FOR THE REST OF MY LIFE. THIS HAS BEEN A VERY TRYING TIME FOR ME, I

>AM ONLY 28 YEARS OLD AND I HAVE A FIVE YEAR OLD SON. I WOULD EXPECT

>A SICKNESS SUCH AS THIS TO COME UPON ME AT A LATER AGE ( BECAUSE

>THERE IS STILL SO MUCH THAT I WANT TO ACCOMPLISH AND THE DISEASE IS

>SLOWING ME DOWN). I AM SO GLAD THAT I FOUND A PLACE WHERE I CAN VENT.

>THANKS FOR LISTENING.

>

>

>

>

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