Doctors who support SCD (was Re: Success Story :)

[Guest guest]

Hi there,

My daughter sees Dr. Fusunyan at Mass General for Kids (and I

love that it's a world-renowned hospital where docs support the

diet!). When she was hospitalized, we asked every GI doc who came in

her room if they were familiar with the book BTVC. The " worst "

response we got was " if you want to try it, that would be fine with

me " . Dr. Fusunyan's was the most positive--he has a RD he works with

who helps families implement the diet--so we went with him.

Dr. Katz at MGH is also supportive of the diet.

From what I hear, the GI docs at Children's Hospital in Boston are not

supportive of the SC diet, so I'm glad that we ended up at the right

hopsital for us.

Hang in there,

Ellen

11 y/o dd scd sicne 5/06 for Crohn's

med-free and doing great

[Guest guest]

on http://www.scdiet.net/ is location of Dr.s

http://www.scdiet.org/8resources/doctors.html

According to the SCD New England Yahoo Group "MGH for Kids in Waltham and Boston: Dr. Fusunyan, Dr. Katz and Dr. Buie are all pro-SCD. Dr. Biller is ANTI-SCD and Dr. Israel is wishy-washy ("if you want to do it, I won't stop you"). No docs at Children's were recommended (not that there aren't any who are pro-SCD there, just maybe no one on this list sees them). There is also a nutritionist at MGH who works w. families implementing the SC diet. She is in Waltham."

Please click on BTVC: BTVC Doctors Elaine's list.http://www.breakingtheviciouscycle.info/friendly_docs/doclist2.htm

Dr. Carol Englender, M.D. 160 Speen Street Ste. 203 Framingham, MA 01701-2003 **We have some [Word of Mouth] Doctors that have not used the Feedback Form

but have been recommended by patients.

*Dr. Buie, Massachusetts General Hospital Pediatric

GI unit or Ladder Clinic for ASD, 65 Walnut Street, Wellesley, 02481

(781 )449-6074 http://www.ladders.org http://www.hardyhealthcare.com/ Sent in by: Dhillon dhillons@...

And Jenn Lessard jlessard1@... wrote:

He is very good and trustworthy. Very gentle with the kids. If he is taking new patients right

now, there are names of people willing to "put up" small families for a night or two. Let me

know if you need these "host" family names. Anyone willing to learn how to get an appt.

with a doctor that is not taking new patients may contact me. Jenn Lessard

** Fusunyan, MD Massachusetts General Hospital for Children : 55 Fruit Street

Boston, 02114 RDFUSUNYAN@...

http://massgeneral.photobooks.com/directory/profile.asp?dbase=main & setsize=100 & specialty=10 & pict_id=1000510

(he also works at Mass General for Kids in Waltham and Lowell)

Sent in by Ellen Mama@...

**Jeanne Hubbuch, MD, 288 Walnut Street, Suite 420, Newton, 02460

Phone: E-mail: drhubbuch@... web site:

http://boston.citysearch.com/profile/4797006/newton_ma/hubbuch_jeanne_md_hubbuch_jeanne_md.html

Really like her very much. we see her every 3 months or so. she's been great

with my son, a very small office, so getting her if it's a holiday or something is

harder. She always tries to work quite holistically, which we like.

Sent in by Brazil akb1200@...

**Dr. Millard Hardy Hardy Healthcare Associates, P.C.62 Derby Street Suite 11

Hingham, 02043 phone fax

www.hardyhealthcare.com http://www.hardyhealthcare.com/HCFDND.htm

http://www.hardyhealthcare.com/office/iel/pnh.htm

I like him very much! Sent in by Donna dlgmarchand@...

Loving Care, Grammy Gay CD '94. SCD '97. No meds. '98, Indianapolis, INSCD™Support Group: http://www.scdiet.net/ Recipes, Dr.s, DCCC, SCDer's etc.

[Guest guest]

>on http://www.scdiet.net/ is location of

Dr.s

>http://www.scdiet.org/8resources/doctors.html

Thank you for posting this. I was delighted to see Dr. Bolte

on the list. I am in TN and he is in NY but I read about him. Discover magazine

did an article about him because supposedly he is ‘the real Dr. House’. I had

contacted him for an appointment and he asked me to send him a letter with my

medical history. That was right before Christmas and I have not heard back

from him, but seeing that he is on the list makes me happy in case I go see

him.

Has anybody worked with Dr. bolte?

a

[Guest guest]

Hi,I want to thank everyone for your caring and generous postings.   I get a lot from reading your contributions.Finding an appropriate Allopathic-what's considered traditional western medicine--Dr. is not easy.  We live 100 miles North of NYC.   Anyone know about these docs, on the SCD Doctor list, with asterisks?  I could not find explanation for asterisks! thanks.**Saul G. Agus, MD, 1080 Fifth Avenue, Suite 1C, New York, NY 10128, ** , MD, 1751 York Avenue, New York, NY 10128, ** Philip G. Kazlow, MD (Pediatric Gastroenterologist), 3959 Broadway (@ W. 165th Street), Suite 718N, New York, NY 10032, ** Legnani, MD, 1751 York Avenue, New York, NY 10128, **Simon Lichtiger, MD, 1755 York Avenue (@ 91st Street), New York, NY 10128 , **Jerrold F. Schwartz, MD, 11 North Airmont Road, Suffern, NY 10901, **Sam Weissman, MD, 202 Avenue, Suite C, Brooklyn, NY 11230,