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Hi , when you get your thyroid screen from Genova, post the

results here but also post the reference range for each of the tests done,

otherwise, we have nothing to check your results against. We need to know

whether they low, in the middle or high in the range in order to help you. I DO

know however, that your B12 is FAR too low. More often than not, B12 reference

interval is something like 175 to 800 - and your result sho7uld be right at the

top of the range for you to feel good. Most definitely, this result is NOT NORMAL.

If your ferritin ref. range (for a man) is somewhere in the region of 30 to

300, then your level should be around 15- to 175 - so you can see your level of

82 is too low.

TSH would be better at 1.0 - if you lived in Germany, Belgium or

Sweden, then you would be given a diagnosis, because their ref. range for TSH

is 0.3 to 2.5. If you lived in America you would be borderline, as their ref.

range is 0.3 to 3.0. Here in the mad, bad UK endocrinology world, they make you

wait until your TSH is outside of the ref. range 0.5 to 10.0 - a limit that is

very rarely reached by sufferers, and they are denied a diagnosis and therefore

not given the treatment they need. Any chance of seeing a private specialist?

You may need to write a letter to your GP (sending a copy to the

Head of Practice) listing all your symptoms, signs, basal temperature taken for

4 or 5 days before you get out of bed in a morning. You should mention whether

there are any members of your family with a thyroid or autoimmune disease.

Ask for the following blood tests: Vitamin B12, vitamin D3,

folate, magnesium, copper and zinc. Never allow a doctor to tell you that your

tests are " normal " - always get the figure and the ref. range and

post them here. Doctors cannot withhold your test results. These belong to you.

Ask for a referral to an endocrinologists and tell your GP you

are no longer prepared to put up with these symptoms without getting a proper

diagnosis as to the cause.

Last, ask for your letter of requests to be placed into your

medical notes, and send a copy of that letter to the Head of Practice.

Luv - Sheila

TSH- 2.53

FT4-13.3

B12- 242

FOLATE -479

FERRITIN- 82

I have been bed ridden, very depressed still. I have ordered complete thyroid

screen from genova diagnostics as well as the reverse t3.

I had other blood tests done, but like everything they say they are normal.

Amazing how everything is normal but I wan't to kill myself.

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  • 2 weeks later...

Hi, GP can refuse a referral if s/ he wishes so I'd write a letter instead-requesting a referral to an endo with an interest in thyroid issues as you cannot continue as you are, listing all your symptoms, asking for ferritin zinc selenium D3 and B12 to be tested as if any are low it will prevent proper use of thyroid hormones . Note that around 90% of healthy folk have a TSh of 1.0 so you would like that to be a goal and as a patient you regard the symptoms as the most important thing as you are the one who has to live with them. Ask for the letter to be kept on file and CC head of practice. Be prepared to travel- it can be really worth it as eventually you want your GP to take over prescribing and the weight that a good endo will have will make a difference. > thyroid treatment > From: j.leighton498@...> Date: Tue, 17 Aug 2010 11:32:38 +0000> Subject: blood test results> > Im still on 75mcg Levo despite telling my GP I still dont feel well (although much improved). She told me as my TSH is now within range she wont increase dose as they go off blood tests not symptoms!!! My TSH then was 3.66 (range cant remember bottom but top was 4) T4 was 12.9. > > Since then I have had two more blood tests done:> > TSH 2.47 (lowest its ever been)> T4 12.4 (this has dropped slightly even though TSH also dropped)!> > > Latest:> > TSH 3.33> T4 13.7 (T4 has risen but TSH has also risen).> > Im going to make another appointment and ask again for an increase to 100mcg. If no joy I will ask to be referred. Can GP refuse to refer me because TSH within range? > > If I do get a referral will an endo increase doseage if TSH within range or will it just depend if I get a good one? Sheila has sent me her list in the past but there are no endo's on there anyway near where I live (near Manchester). > > My other option is to increase levo myself (should I tell Gp this is what Im going to do)?> > Thanks> ne> > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

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Hi fliss, try the iron prescribed and take a lot of vit C with it to improve absorption( and help with the inevitable constipation- you can try something else if that doesn't help. > thyroid treatment > From: fliss.peck@...> Date: Tue, 17 Aug 2010 13:00:17 +0000> Subject: BLOOD TEST RESULTS> > I just got my results back and my TSH has gone from 50 to 1.6!!! I am staring to feel better now I am on 1.5 grains of ERFA and 5 NAE.> Other results:> Serum magnesium: 0/91 (range 0.66-1.07)> serum b12 1809 (range 180-900) So guess I can stop my B12 supplements?!> Serum ferritin :30 (range 30-470) This is low so I need to take iron..what kind and dose do you recommend? > my dr has given me ferrus fumarate 210mg tablets . each give 68mg elemental iron and I am told to take 2 a day which would give me 136mg iron a day...is that ok? is it the right type?> thanks> > Fliss> > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

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  • 2 weeks later...

Han, your free T4 is very high - outside the top of the

reference range. This could mean that the mainly inactive thyroxine is not

converting to the active hormone T3 and you are getting symptoms of toxicity.

Check out the attached document to see why this might be happening (or not

happening in your case) and what you can do about it. Never let a doctor tell

you that your blood results are normal because they are within the so called

'normal' reference range. Please get these results and post them here together

with the reference range for each one and we will let you know whether they are

'normal' or not. It matters whether they are at the bottom, the middle or the

top of the range.

If your adrenal stress profile showed low at any time during the

day, then you need to start boosting your adrenals with Nutri Adrenal Extra

(you can get 33% discount on these as a TPA Member. Go to our FILES section and

scroll down the list to 'Discounts' and follow the instructions there. If you

have low adrenal reserve, no amount of thyroid hormone can get into the cells.

Read Dr Peatfield's paper in our web site www.tpa-uk.org.uk

- click on 'Hypothyroidism' and then click on 'Associated Conditions' and read

it there. Read also about the Candida/Thyroid Association.

Luv - Sheila

TSH 0.01 (0.4-4.0)

Free T3 4.3 (3.0-6.2)

Free T4 24.1 (12.0-22.0)

I had the blood drawn in the evening about 8pm and had taken my thyroxine at

6am that day. I understand that later blood samples can cause the readings to

alter. I am on 125mcgs and still feel unwell with symptoms of hypo. I have had

all the bloods taken - iron, B12 etc and they were within normal range but on

the low side so I have started taking the suppliments advised here. I have had

an adrenal stress profile done and I am low on two of the samples and outside

range on the late afternoon one and before bedtime one. Any advice would be

appreciated.Thank You

Han

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Hi Sheila

Thanks for reply.

My B12 351 (211-911)

Ferritin 70 (10-322)

Folate 7.1 (5.4-24.0)

My other tests were well within range - Copper, Zinc and D5.

What should I do in the event that I might be toxic as a result of high T4?

Would you suggest trying a reduction in thyroxine from 125 to 100mcgs? If the T4

is not being converted to T3 I can understand why I would be feeling hypo and at

the same time being toxic from too much T4. What do you think about my T3

result? should it be higher? I am confused about this as I would think if my T4

is not converting then wouldn't my T3 be very low?

I have just ordered some NAX and am thinking that maybe I should start it.

Han

>

> Han, your free T4 is very high - outside the top of the reference range.

> This could mean that the mainly inactive thyroxine is not converting to the

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B12 needs supplementing - this is far too low. You can buy

sublingual tablets 1000mcgs - take one daily. You should never take B12 orally

in case you have the missing Intrinsic factor. Your result should be pretty

near to the top of the reference range. Ferritin is fine - Folate too low, you

need to supplement using 5mgs Folic Acid daily.

If you are getting symptoms of toxicity, you need to lower your

T4 further, and probably increase your T3. Whenever anybody is taking any form

of T3, often it is well into the upper third of the reference range and

sometimes, right at the top which is to be expected. Your thyroid does secrete

a small amount of T3 so it doesn't reply completely on T4 converting to all the

T3 in your blood.

If you start the NAX, it is recommended you stop thyroid hormone

replacement for about a week if possible and just use the NAX. Start with one

tablet with breakfast, and increase to another tablet after 7 to 10 days and

take that dose with lunch. never take any after 1.00p.m. or it might keep you

awake. If necessary, increase your NAX again in 7 to 10 days until your

symptoms start to subside. You can start your thyroid hormone after the first 7

days of being on NAX.

Hope this makes sense.

Luv - Sheila

Hi Sheila

Thanks for reply.

My B12 351 (211-911)

Ferritin 70 (10-322)

Folate 7.1 (5.4-24.0)

My other tests were well within range - Copper, Zinc and D5.

What should I do in the event that I might be toxic as a result of high T4? Would

you suggest trying a reduction in thyroxine from 125 to 100mcgs? If the T4 is

not being converted to T3 I can understand why I would be feeling hypo and at

the same time being toxic from too much T4. What do you think about my T3

result? should it be higher? I am confused about this as I would think if my T4

is not converting then wouldn't my T3 be very low?

I have just ordered some NAX and am thinking that maybe I should start it.

Han

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With ERFA and natural thyroid meds we stop the medication 24 hours before

testing and take our dose after the labs are done. If we don't do this, it

screws up the results or gives results which are not accurate enough. It has to

be out of our system for at least 24 hours.

I don't know if this is the regime with synthetic thyroid meds?

Sheila, does that matter with synthetic?

Thanks,

JOT

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Hi Sheila, when I start taking NAX do I stop my vit C and B supplements as I see

many are already in NAX?

Han

>

> B12 needs supplementing - this is far too low. You can buy sublingual

> tablets 1000mcgs - take one daily. You should never take B12 orally in case

> you have the missing Intrinsic factor. Your result should be pretty near to

> the top of the reference range. Ferritin is fine - Folate too low, you need

> to supplement using 5mgs Folic Acid daily.

>

>

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Hi Jot, It setainaly applies to T3 containig meds- you can get a result at least twice notmal if you don't stop meds before testing. T4 and TSH are less affected. > thyroid treatment > From: jitterjotter@...> Date: Fri, 27 Aug 2010 23:09:47 +0000> Subject: Re: Blood Test results> > > > With ERFA and natural thyroid meds we stop the medication 24 hours before testing and take our dose after the labs are done. If we don't do this, it screws up the results or gives results which are not accurate enough. It has to be out of our system for at least 24 hours.> > I don't know if this is the regime with synthetic thyroid meds?> Sheila, does that matter with synthetic?> > Thanks,> JOT > > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

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Hi Han, no, there is no need to stop your vitamin and B

supplements. When you are hypothyroid, you need more than the recommended daily

dose, you need quite high doses of supplements so you can carry on taking

these. However, you should ensure that you are at least taking 1000mgs vitamin

C - you could even take 2000mgs and if low in vitamin B12, you need at least

1000mcgs B12 sublingual tablets.

Luv - Sheila

Hi Sheila, when I start taking NAX do I stop my vit C and B supplements as I

see many are already in NAX?

Han

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Hi Hannah, high T4 and med range T3- you are having problems converting T4 to T3. Taking the supplements may help, or you may need to reduce T4 and take some T3 to balance. Have you seen the adrenal stuff in the files? > thyroid treatment > From: hannahleahy@...> Date: Fri, 27 Aug 2010 10:57:02 +0000> Subject: Blood Test results> > Please can anyone give advice on these results. > TSH 0.01 (0.4-4.0)> Free T3 4.3 (3.0-6.2)> Free T4 24.1 (12.0-22.0)> > > I had the blood drawn in the evening about 8pm and had taken my thyroxine at 6am that day. I understand that later blood samples can cause the readings to alter. I am on 125mcgs and still feel unwell with symptoms of hypo. I have had all the bloods taken - iron, B12 etc and they were within normal range but on the low side so I have started taking the suppliments advised here. I have had an adrenal stress profile done and I am low on two of the samples and outside range on the late afternoon one and before bedtime one. Any advice would be appreciated.Thank You> Han> > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

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Hi , Thanks for reply, i am currently taking suppliments as you suggest,

and had my adrenal saliva test done - low cortisol in 3 readings. I do not have

an endo that prescribes T3, so I have asked for referral to another one from the

list- just waiting on appt. i think I am not converting to T3 - I reduced my

thyroxine by 50mcgs the last two days and felt even worse. Obviously there is a

high concentration of T4 in my blood and I'm sure that is causing me symptoms,

but it feels like when I reduce the dose of thyroxine even less T3 is getting to

the cells - what a mess!!

Han

>

>

> Hi Hannah,

> high T4 and med range T3- you are having problems converting

T4 to T3. Taking the supplements may help, or you may need to reduce T4 and take

some T3 to balance. Have you seen the adrenal stuff in the files?

>

>

> >

> >

> >

> >

> >

> >

> >

> > ------------------------------------

> >

> > TPA is not medically qualified. Consult with a qualified medical

practitioner before changing medication.

> >

> >

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Thanks Sheila

I am not on T3 just T4 and I'm wondering if this is where the problem lies!

Han

>

> B12 needs supplementing - this is far too low. You can buy sublingual

> tablets 1000mcgs - take one daily. You should never take B12 orally in case

> you have the missing Intrinsic factor. Your result should be pretty near to

> the top of the reference range. Ferritin is fine - Folate too low, you need

> to supplement using 5mgs Folic Acid daily.

>

> If you are getting symptoms of toxicity, you need to lower your T4 further,

> and probably increase your T3. Whenever anybody is taking any form of T3,

> often it is well into the upper third of the reference range and sometimes,

> right at the top which is to be expected. Your thyroid does secrete a small

> amount of T3 so it doesn't reply completely on T4 converting to all the T3

> in your blood.

>

>

>

>

>

>

>

>

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 8.5.441 / Virus Database: 271.1.1/3096 - Release Date: 08/26/10

> 18:34:00

>

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Hi Hannah, well there you are! but the right vits an minerals are still vital. > thyroid treatment > From: hannahleahy@...> Date: Tue, 31 Aug 2010 12:58:56 +0000> Subject: Re: Blood Test results> > > Thanks Sheila> I am not on T3 just T4 and I'm wondering if this is where the problem lies!> Han> > >> > B12 needs supplementing - this is far too low. You can buy sublingual> > tablets 1000mcgs - take one daily. You should never take B12 orally in case> > you have the missing Intrinsic factor. Your result should be pretty near to> > the top of the reference range. Ferritin is fine - Folate too low, you need> > to supplement using 5mgs Folic Acid daily. > > > > > > > > > > > > > > > > > > > > > > > > No virus found in this incoming message.> > Checked by AVG - www.avg.com> > Version: 8.5.441 / Virus Database: 271.1.1/3096 - Release Date: 08/26/10> > 18:34:00> >> > > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

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Gail, please be really careful here. This doc may be trying to make a lot of

money off of you. I bet he is willing to sell you all these things himself, for

a considerable profit.

Just becuase you're taking vitamins, etc does not mean you will not become

deficient - all the things you mention are things that Bandsters commonly become

deficient in, unless they are taken USP-certified BARIATRIC vits. I've talked a

lot about the very poor quality of the general OTC vits, and recommend only

bariatric vits like Bariatric Advantage.

Re the vitamin D - Most people in the US are deficient in Vit D, since we don't

get the sun exposure we need - and becuase we need to be using sunscreens to

prevent skin cancers and melanomas.

The Vit D recommendations are badly out of date - most vits contain only the 400

micrograms that used to be the recommendation . The current recc. is at least

1000-2000 iu a day. I've discussed that here regularly, too.

Please see the Vitamin document and the and Vitamin D document in the files

here.

Please learn a lot more about arsenice before you beleieve you need an expensive

" de-tox " . We can't esacape low levels of arsenic from water, veggies and more.

here is more basic info:

http://www.greenfacts.org/en/arsenic/index.htm

As far as this " metalloclear " stuff, I can not find ONE scientific study showing

it does a thing. All I find is a million testimonials and places that will

happily sell this expensive stuff to you.

I'd urge you to see another doctor in consultation about all this - and also to

start on decent Bariatric vitamins like Bariatric Advantage.

This just SCREAMS " SCAM!!!! " to me.

Sandy r

>

> Hi all,

>

> I recently went to a new general doc who seems to think I have a leaky gut and

has recommended a sort of detox with vitamins and medical food powder and

probiotic, staying away frm wheat and dairy. He's basing this partially on my

blood test, which came back w/ low iron, low folic acid, low vit d, low

glutomine, low b-12. All this and I take my vitamins regularly and eat healthy

(most of the time :-))

>

> So one of the other things that could cause my mal-absorption of vitamins is

metals like mercury in my body. I took another blood test and the docs office

called and told me the test came back w/ elevated levels of arsenic. Anyone ever

hear of such a thing? I am supposed to take this metalloclear medicine, which

will clear the metal frm my body. Weird!

>

> Gail

>

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  • 4 months later...

Hi ,

It is possible that the hormones are circulating in your blood but can't get

into the cells.

Group Moderator

>

> Hi Bee,

> I just got my blood work back for my hormone testing and everything came back

perfect! I'm not in menopause (being I am only 30), my thyroid levels came back

perfect and so did all the other ones they tested. Sorry...don't remember

everything they tested.

>

> Anyway, do you think it's odd I haven't had a period in 2 years if all my

hormones are at the right levels? Of course I'm going to continue just doing

your program but just want to see if you think it's odd all my hormone levels

came back good yet I'm still not getting a period.

> Thanks,

>

>

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Hi ,

Since I've been on Bee's program for almost 2 years though don't you think that

my cells would be starting to repair by now where the hormones could get into

them?

Thanks,

It is possible that the hormones are circulating in your blood but can't get

into the cells.

Group Moderator

> Hi Bee,

> I just got my blood work back for my hormone testing and everything came back

>perfect! I'm not in menopause (being I am only 30), my thyroid levels came back

>perfect and so did all the other ones they tested. Sorry...don't remember

>everything they tested.

>

> Anyway, do you think it's odd I haven't had a period in 2 years if all my

>hormones are at the right levels? Of course I'm going to continue just doing

>your program but just want to see if you think it's odd all my hormone levels

>came back good yet I'm still not getting a period.

> Thanks,

>

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>

> Hi ,

> Since I've been on Bee's program for almost 2 years though don't you think

that my cells would be starting to repair by now where the hormones could get

into them?

+++Hi ,

It may not be about cellular health and their ability to intake nutrients,

hormones, etc. at this point in time.

Other factors can be involved. Stress causes more problems than you can

imagine, since it means your body is running on its fight/flight nervous system,

which causes hormone imbalances too. So that's why it is so important to lessen

stresses, to relax, to not be around toxic people, and to do deep breathing

exercises.

Bee

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Hi ,

I think you'll have to ask Bee about that.

Group Moderator

>

> Hi ,

> Since I've been on Bee's program for almost 2 years though don't you think

that

> my cells would be starting to repair by now where the hormones could get into

> them?

> Thanks,

>

>

> It is possible that the hormones are circulating in your blood but can't get

> into the cells.

>

>

>

> Group Moderator

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  • 4 weeks later...

You need to check on your adrenals. They help run blood sugar....

On 2/18/2011 4:55 PM, Lori@... wrote:

My ND did a blood test this week to check a few things.

My iodine came back

high and TSH came back higher than it has been. Is a blood

test a good

indicator of iodine? I thought I read about the iodine

loading test. Should

I continue my dosage or cut back? Also, how long does the

TSH stay high

before coming back down once starting iodine? Would that

mean I should

increase my thyroid medication?

My insulin also came back low. Has anyone heard of what

can cause that?

When I came home after fasting, I almost fainted. I got

real sweaty, felt

sick and almost passed out!! I haven't done a fasting

blood test for some

time.

Lori

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You want to keep your insulin levels on the low end of the range. Does sound like adrenal issue.LinnOn Feb 18, 2011, at 7:17 PM, Teel wrote:

You need to check on your adrenals. They help run blood sugar....

On 2/18/2011 4:55 PM, Lori@... wrote:

My ND did a blood test this week to check a few things.

My iodine came back

high and TSH came back higher than it has been. Is a blood

test a good

indicator of iodine? I thought I read about the iodine

loading test. Should

I continue my dosage or cut back? Also, how long does the

TSH stay high

before coming back down once starting iodine? Would that

mean I should

increase my thyroid medication?

My insulin also came back low. Has anyone heard of what

can cause that?

When I came home after fasting, I almost fainted. I got

real sweaty, felt

sick and almost passed out!! I haven't done a fasting

blood test for some

time.

Lori

Linn Sew Sweet Designz by Linnhttp://www.sewsweetdesignzbylinn.comhttp://www.facebook.com/pages/Sew-Sweet-Designz-by-Linn/126648997385690281-778-1006

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Thanks .

Lori

Re: blood test

results

You need to check on your adrenals. They help

run blood sugar....

On 2/18/2011 4:55 PM, Lori@...

wrote:

My ND did a blood test

this week to check a few things. My iodine came back

high and TSH came back higher than it has been. Is a blood test a good

indicator of iodine? I thought I read about the iodine loading test. Should

I continue my dosage or cut back? Also, how long does the TSH stay high

before coming back down once starting iodine? Would that mean I should

increase my thyroid medication?

My insulin also came back low. Has anyone heard of what can cause that?

When I came home after fasting, I almost fainted. I got real sweaty, felt

sick and almost passed out!! I haven't done a fasting blood test for some

time.

Lori

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Hi Glynis,

I agree with , you need an increase. I increased my meds and when my t3

was at 7 I got a slightly raised eyebrow from the doc. But no threat of

lowering the dose. My tsh has been at around 0.001 for at least the past 10

years apart from a couple of years ago when I lowered my meds, felt dreadful and

it went up to 0.1. The endo said he was happy with that, so I told him I wasnt'

there to make him happy and never went back.

I've had a bone density scan and had the bones of a 30 year old (2 years ago).

Tell the endo firmly that the tsh should not show that you need more thyroid

meds as you are taking them. Tell him your t4 and t3 are within range, in fact

they are on the low side and that when and if, they go out of range, you will

consider lowering your dose. Afraid I woundn't pussy foot around, not getting

his back up.... I'd let him have it big style.... He obviously thinks the tsh

being low will give you osteoporosis and heart problems.... well apparantly it

can do this, but only if its low due to hyperthyroidism caused by graves.

He needs to do some research, the internet is a good place to stat....

Grrrrrrr!!

x

nning <jennystenning@...> wrote:

>

> , he obviously does not know that taking T3 means that TSH will always be low.

I'd say on those results a dose increase would probably help more than a

decrease- your T3 should be nearer the top of the range not the bottom!

>

>

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  • 4 weeks later...
Guest guest

I got a few results back today - have not spoke with the Dr. yet.

However, I wanted to ask if anyone has had a CBC DIFFERENTIAL PLATELET

drawn where their GRANS were High and their LYMPHS tested low. From

what I read this can indicate infection, which is interesting and

would make even more sense to start AP. I have yet to start AP due to

breastfeeding my 4 month old, but plan to.

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