Guest guest Posted November 29, 2004 Report Share Posted November 29, 2004 I went to the er today due to my left ankle becoming very hard to put any pressure and moving it. They took x-rays and it not broken. The doctor thinks it could be infectious monoucleosis of my ankle. Has anyone every heard of it? PLease I scared the other thing it could be is a synovial cyst, which what my boyfriend look up is in its self bad. Any help would be apperaicated . Martha PS can email at marthagrubb@... just please put Iga in RE: so I will open it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Sorry about your pain!!! We still hear you Dale--and let us know when you have those bad days and we will listen--well I will listen 'til I start talking or should I say, idly chattering again--LOL I know the difference of just not being able to walk normally and it progressing but then you have been hit by that and your voice and in such a short time...Hang in there!! HUGS, Sue Me I was like SueMe (except when I talk it wasn't just chatter ;-) > known as the talker, making the rounds, telling jokes. Today, I can barely > speak load enough for the person next to me to hear (with the soft xmass > music and everyone else). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2005 Report Share Posted February 11, 2005 Sorry so late. The biggest problem I have is that the only thing the pump worked well on for me is my colon. The colon spasms to excrete the waste and my pump, can't work on my legs, but sure works there... What they set up for me was a ridged schedule and eating right (wellthat I always did). But every night right after dinner I go to the bathroom and have to use Ducalax, which will cause the colon to spasm. Is he on a schedule, this might help? One of the things I wasn't told about the pump... dale HELP > > Hello everyone, > I know I don't write often but I try to keep up with all the reading > from > everyone here in the group and I am so surprised at how many new people > seem > to be joining this group. I was wondering if I might hit you folks with > some > real personal questions as I need some real help here. Just to let anyone > who > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2005 Report Share Posted February 16, 2005 Shirley, This is Jane Anne and I meet you at Dr. Fink office. I am so sorry that is so much worst. I am a lot better than I have been in a long time. I am riding a horse now and getting my balance back. I talked to Joanie today and they were thrilled I was doing so well. Tell I will pray for him and you take care of yourself. Jane Anne from Ga. Hey we hit 79 yesterday and 76 today. Re: HELP > > Hi , > Thanks so much for sending me your information. Makes me feel better to > know that I am not the only one cleaning up messes. As far and the > urination > goes has to straight cath. because his bladder is so relaxed that it > can no > longer empty on it's own so he has to go inside after the urine. He has so > much pain with the bladder the doctor has given him botox injections > right > into the wall of the bladder and it has done nothing to relieve the pain. > We > just went to see Dr. Fink this week and he has now started him on valium > for the > pain and spasms in the bladder. I sure hope this helps as I am thinking > that > if we can get the bladder pain under control maybe we can focus on the > bowel > issues. Thanks again . > Shirley > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2005 Report Share Posted February 18, 2005 Shirley, I have found that keeping a potty chair real close by at times when my stomach gets to feeling funny, has saved me from having a mess to clean up, cause I can't run to the bathroom with this PLS sloooow walk. I would rather have to empty the potty ,than the other mess. Even my husband would prefer helping me with it that way. It took me a long time and I still feel awful about asking him to help me. I have always been the caretaker around here, and I did it for him when he needed it, but he's always telling me there is no need for me to apologize, but I just hate asking for help. Hope this helps......Take care...njjeannie To: <PLS-Friends > Sent: Monday, February 07, 2005 7:35 PM Subject: HELP > > Hello everyone, > I know I don't write often but I try to keep up with all the reading from > everyone here in the group and I am so surprised at how many new people seem > to be joining this group. I was wondering if I might hit you folks with some > real personal questions as I need some real help here. Just to let anyone who > does not know me I am a caregiver for my husband who has PLS now for 11 > years. What I want to know is if anyone here in this group who has PLS if you > have to urinate by straight cath. ? I would also like to know about your bowel > movements. My husband is having a real hard time with his bowels on minute he > is going in his pants and the next time he can't go at all and I have to give > him enema's. he does not use diapers as he has to cath. so much and is to > hard for him to work around a diaper. But I can tell you I am very tired of > cleaning the mess when he goes in his pants. I hope I have not offended anyone > but I really would like to know what the process if for others with PLS. Please > help me to understand. Thanks Shirley > > > Quote Link to comment Share on other sites More sharing options...
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