Guest guest Posted December 10, 2004 Report Share Posted December 10, 2004 Cy, Have we ever told you how amazing is? :-) I'm sure many times before, but he continues to amaze me! He sounds like a wonderful, well-founded and very mature 14-year-old! How proud you must be!! I'm hoping the labs become stable again and you can skip the prednisone. Let us know about the C3-I always wait for 's update on that level as I've had problems with C3/C4 also. I know he'd do much much much better than me at the Geography Bee!! Just wondering, is one of the cities Brazzaville, Congo? ~Dana quick update Hi guys, Just a quick update from these quarters. After about a year of great BP's and labs, labs stopped being quite so reliably excellent: BP up, proteinuria bouncing around after a period of relative stability, and one bizarrely high creatinine (we all knew it was lab error, but it did get my attention). We were back at the neph yesterday with most recent labs in hand. Proteinuria was back down, but as the doc indicated, it's been trending up. C3 is down (not good). If it stays down next month, the neph says she'll try pred IV's followed by a very rapid taper. Amazingly, this is where we were at exactly this time last year. All last fall, labs started to look a bit dicey. The docs responded by threatening another around of pred IVs if things didn't improve in January. Fortunately, in January C3 surged up - and stayed up almost all year. It's less nerve wracking this time round. I just hope we have a rerun of last year. On other fronts - ph and the Technicolor Dreamcoast opens tomorrow night. was cast in 101 Dalmations and will be taking off for Atlanta over MLK weekend where the play will showcased -- and as of yesterday, he's made it to the semi-fnals for the National Geographic Geography Bee competition at the school level. Next week will be the finals. Fingers crossed! Quick: what two two major African cities are on either side of the Congo River? Cy To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2004 Report Share Posted December 10, 2004 Cy I do hope it's just a blip like last year. I wonder if it could be caused by school starting up again...does his eating habits/styles change when the school year starts up? Could the added stress cause his numbers to jump around a bit then by January he is settled into his classes and routine so they come back down/up? Just some random thoughts... You have one incredible kid there! Wish him luck in the Geography Bee...and tell him to watch out for those homeschoolers...they sneak in and win. ;o) Good luck too with the upcoming plays! Does he have any intention to pursue acting after he is out of highschool? Amy G. quick update Hi guys, Just a quick update from these quarters. After about a year of great BP's and labs, labs stopped being quite so reliably excellent: BP up, proteinuria bouncing around after a period of relative stability, and one bizarrely high creatinine (we all knew it was lab error, but it did get my attention). We were back at the neph yesterday with most recent labs in hand. Proteinuria was back down, but as the doc indicated, it's been trending up. C3 is down (not good). If it stays down next month, the neph says she'll try pred IV's followed by a very rapid taper. Amazingly, this is where we were at exactly this time last year. All last fall, labs started to look a bit dicey. The docs responded by threatening another around of pred IVs if things didn't improve in January. Fortunately, in January C3 surged up - and stayed up almost all year. It's less nerve wracking this time round. I just hope we have a rerun of last year. On other fronts - ph and the Technicolor Dreamcoast opens tomorrow night. was cast in 101 Dalmations and will be taking off for Atlanta over MLK weekend where the play will showcased -- and as of yesterday, he's made it to the semi-fnals for the National Geographic Geography Bee competition at the school level. Next week will be the finals. Fingers crossed! Quick: what two two major African cities are on either side of the Congo River? Cy To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2004 Report Share Posted December 10, 2004 Oh Cy, I just hated reading your email about 's labs trending worse and seeming to be less stable. We prayed him through it last year, and we need to do that again this year. I really pray in Jan of 2005 you get the same kind of news you got in Jan of 2004. I know you will keep us posted. He is really our poster child with all he has endured and how active he is. What an amazing young man he is. Tell to break a leg with ph and 101 Dalmatians! Best of luck on the Geography Bee too! In a message dated 12/9/2004 10:36:42 PM Pacific Standard Time, cyashleywebb@... writes: > Hi guys, > > Just a quick update from these quarters. After about a year of great BP's > and labs, labs stopped being quite so reliably excellent: BP up, > proteinuria bouncing around after a period of relative stability, and one > bizarrely high creatinine (we all knew it was lab error, but it did get my > attention). We were back at the neph yesterday with most recent labs in > hand. Proteinuria was back down, but as the doc indicated, it's been > trending up. C3 is down (not good). If it stays down next month, the neph > says she'll try pred IV's followed by a very rapid taper. > > Amazingly, this is where we were at exactly this time last year. All last > fall, labs started to look a bit dicey. The docs responded by threatening > another around of pred IVs if things didn't improve in January. > Fortunately, in January C3 surged up - and stayed up almost all year. It's > less nerve wracking this time round. I just hope we have a rerun of last > year. > > On other fronts - ph and the Technicolor Dreamcoast opens tomorrow > night. was cast in 101 Dalmations and will be taking off for Atlanta > over MLK weekend where the play will showcased -- and as of yesterday, he's > made it to the semi-fnals for the National Geographic Geography Bee > competition at the school level. Next week will be the finals. Fingers > crossed! Quick: what two two major African cities are on either side of the > Congo River? > > Cy > Quote Link to comment Share on other sites More sharing options...
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