Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 Hi JO, Happy (belated) Birthday! Hope you had a pain free wonderful day, you deserve it! I have a quick question, when did you start this group? I have been a member since 2000 or 2001 I think and I was just curious how long before that the group was started. Thanks, Jai Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 In a message dated 8/5/04 8:04:47 PM Pacific Daylight Time, RSD-CRPSofAmerica writes: Just wanted to let everyone know that sadly I won't be going in to treatment until next week. Hi Lori, hope that your foot is feeling better. What treatment are you going in for? I read all of the posts but can't remember what the treatment is. I have very bad memory problems from the RSD and cocktail of meds! Again, hope you are feeling better. Jai Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 Thank you, Jai for the birthday wishes. I had a very nice day (except for the working part of it). Deb and I started an online group in 1998 I believe. We changed the name and started this group in 2000 I think. I think you were one of the first members.. I could check it all out and be exact if you want, but it's been awhile, that's for sure. Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 In a message dated 8/5/04 8:04:47 PM Pacific Daylight Time, RSD-CRPSofAmerica writes: .. Also can someone please tell me if they have these days where your talking and right in middle of it forget what you were discussing, what you said, just not able to be following line of discussion????????? I am really getting somewhat nervous about this. Now could be I am just not getting enough rest but can't see how that would be. Hi JoAnn, I totally understand what you are talking about! Since the RSD I always was having some problems with short term memory but about two years ago my memory problems became very severe. I too would be talking and just stop and have no idea what I was talking about. Also, everyday things like getting food, medicne,or something out of a cabinet I would not be able to remember where things were kept even though it had been in the same place for years. Or I would open a cabinet to get cookies or something and be standing in front of the cabinet and have no idea why I was standing there. Also I started falling. I mean everyday. Not tripping or losing my balance but just all of the sudden drop. This was not good because I have Osteoporosis (from the RSD, I am only in my 30's) And also my speech became almost unintelligible. I would try to say something and my voice and jaw would go into these spasms it was embarrassing and frustrating. My neuro did many tests and basically determined it was related to the RSD, I can't remember the actual diagnosis, but they changed my meds around put me on some new stuff and changed dosages of other stuff. It took a while but it helped. Sorry I can't be more specific about what exactly it was it's been a while ago,but it WAS related to the RSD. Have you called your doctor yet? I would definitely let him know, it's scary stuff when things like this happen. I still have short term memory loss and occasionally have the speech problems but I have not had a fall in a long time. Since my body is in intense physical and occupational therapy I decided t o take it upon my self to get some BRAIN therapy! I enrolled in a class at a local college, I already have my degree but thought this would be a good way to make my brain have to work. What used to come so naturally to me was very difficult. I graduated nursing school on the Dean's list and here I was taking a semi easy class and struggling through. I had an extremely difficult time with reading comprehension and memorization. I studied for hours every day. I ended up with a B which I was proud of considering that just a couple of years ago I was in a rehab hospital unable to do anything for my self and a poor prognosis. I was in a wheel chair and weighed 89 pounds (I am 5'11" tall) that's scary. I guess that even at our darkest hours we need to push hard to get our bodies and minds back in shape. It is so easy to give up, and believe me sometimes I did! Somewhere there was a spark in me that has kept me going. I think we all have that in us, sometimes it is just hard to find! Sorry to ramble on........and talk your ear off! Please let me know of your progress. Love, Jai Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 I can relate but my mind has a double edge problem. I suffered a mild brain injury with accident. Which my short term memory and word searching problems. It was noticable to me. But in these last few years my brain has gotten worse. Doc stated it's related to RSD. I had brain rehab. which has helped alot with everyday living. I also agree we have to chanllange our brains or lose them. Which for me is not much lol. Check with your doc. there is hope for us all. Laurie Quote Link to comment Share on other sites More sharing options...
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