Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 Hi Amy, You had mentioned this in the past and it still concerns me. I do bruise easily, probably from the anemia, but not spontaneously. I wonder if there is something else going on that is causing this for you. I know your docs are aware of it, but I sure do wish they could find an answer for you. In a message dated 12/1/2004 2:05:21 PM Pacific Standard Time, purrfect@... writes: > > I know I've brought it up before but I'm going to breech the subject again. > Does anyone else have problems with severe bruising and what have you been > able to do about it? Mine has gotten to the point where I have severe pain in > a spot and within an hour (or less) I have a bruise. My GP has run all > sorts of blood test for who knows what but everything he has checked for has come > back normal (which I am quite happy about). However it has done nothing to > help the bruising problem. A few nights ago my lower left leg was in intense > pain for a few hours, I thought from sitting in front of my sewing machines > for so long. So I laid down and put my feet up for a bit thinking it was a > swelling thing...well no such luck. I have multiple bruises now all over my > calf, around my knee and on the shin. Any more ideas on this guys?? > Thankfully it's cold out and I can wear longsleeves and long pants without looking > funny! > > Amy G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 Not me. Never had any bruising like you describe. Sorry if I forget Amy, but you're not on Cellcept or other similar drugs are you? Prednisone? Those could certainly cause excessive bruising like that. Pierre Spontanious bruising > > I know I've brought it up before but I'm going to breech the subject again. Does anyone else have problems with severe bruising and what have you been able to do about it? Mine has gotten to the point where I have severe pain in a spot and within an hour (or less) I have a bruise. My GP has run all sorts of blood test for who knows what but everything he has checked for has come back normal (which I am quite happy about). However it has done nothing to help the bruising problem. A few nights ago my lower left leg was in intense pain for a few hours, I thought from sitting in front of my sewing machines for so long. So I laid down and put my feet up for a bit thinking it was a swelling thing...well no such luck. I have multiple bruises now all over my calf, around my knee and on the shin. Any more ideas on this guys?? Thankfully it's cold out and I can wear longsleeves and long pants without looking funny! > > Amy G. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 Hi Amy, I get the exact same thing and it was diagnosed as " superficial thrombophlebitis " which is a fancy name for inflammation and clotting in the top (superficial) veins. For months I had the super painful bruises, then one day I had a black and blue vein around my knee and it was diagnosed. They did tons of tests for clotting, ect.. but that never turned up anything either. In my case, it's inflammation. It's under control with exercise (moving around helps) and prednisone. -beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 beth, Thanks for the reply... the funny thing is my GP thinks mine is being caused by the prednisone. Ah well one man's poison ivy is another man's spinach. I bruised easily prior to going on the pred and didn't have too many problems with spontaneous bruising until just these past few months. I'm wondering if my drop to 5mg then 2 months later my turn around raise to 10mg threw my body way off. Amy G. Re: Spontanious bruising Hi Amy, I get the exact same thing and it was diagnosed as " superficial thrombophlebitis " which is a fancy name for inflammation and clotting in the top (superficial) veins. For months I had the super painful bruises, then one day I had a black and blue vein around my knee and it was diagnosed. They did tons of tests for clotting, ect.. but that never turned up anything either. In my case, it's inflammation. It's under control with exercise (moving around helps) and prednisone. -beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2004 Report Share Posted December 2, 2004 Hi Amy, Ouch! I'm sorry to hear this is still a problem. Does icing these help at all? I'm glad all the tests that your GP ran came back normal. Out of curiousity, do you know what kind of stuff he was trying to rule out? Is is possible that what you are seeing is from the pred? It sounds very similar to side effects my mom (NOT a kidney patient) had from pred. She had done pred on and off for decades - had had great psychedelic bruises on her arms and legs to show for it. Cy > > In a message dated 12/1/2004 2:05:21 PM Pacific Standard Time, > purrfect@... writes: > > > > > I know I've brought it up before but I'm going to breech the subject again. > > Does anyone else have problems with severe bruising and what have you been > > able to do about it? Mine has gotten to the point where I have severe pain in > > a spot and within an hour (or less) I have a bruise. My GP has run all > > sorts of blood test for who knows what but everything he has checked for has come > > back normal (which I am quite happy about). However it has done nothing to > > help the bruising problem. A few nights ago my lower left leg was in intense > > pain for a few hours, I thought from sitting in front of my sewing machines > > for so long. So I laid down and put my feet up for a bit thinking it was a > > swelling thing...well no such luck. I have multiple bruises now all over my > > calf, around my knee and on the shin. Any more ideas on this guys?? > > Thankfully it's cold out and I can wear longsleeves and long pants without looking > > funny! > > > > Amy G. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2004 Report Share Posted December 2, 2004 Hey Cy, I've tried icing the areas when I first feel the pain onset but I still end up with a lovely huge bruise. I have no clue what the blood work was for as my GP's staff has yet to send me a copy of my labs. They sent me a sheet in the mail that read " We would like to inform you that your recent test results were normal " I called them and said " UM What SET of tests would that be for? " LOL... I go in for my yearly pelvic exam on the 17th so if I haven't gotten a copy of them in the mail by then I'll have them print one up while I wait. I think he was checking on different protein levels and clotting times...and other stuff beyond that. They took 13 tubes of blood that day. Amy G. Re: Spontanious bruising Hi Amy, Ouch! I'm sorry to hear this is still a problem. Does icing these help at all? I'm glad all the tests that your GP ran came back normal. Out of curiousity, do you know what kind of stuff he was trying to rule out? Is is possible that what you are seeing is from the pred? It sounds very similar to side effects my mom (NOT a kidney patient) had from pred. She had done pred on and off for decades - had had great psychedelic bruises on her arms and legs to show for it. Cy > > In a message dated 12/1/2004 2:05:21 PM Pacific Standard Time, > purrfect@... writes: > > > > > I know I've brought it up before but I'm going to breech the subject again. > > Does anyone else have problems with severe bruising and what have you been > > able to do about it? Mine has gotten to the point where I have severe pain in > > a spot and within an hour (or less) I have a bruise. My GP has run all > > sorts of blood test for who knows what but everything he has checked for has come > > back normal (which I am quite happy about). However it has done nothing to > > help the bruising problem. A few nights ago my lower left leg was in intense > > pain for a few hours, I thought from sitting in front of my sewing machines > > for so long. So I laid down and put my feet up for a bit thinking it was a > > swelling thing...well no such luck. I have multiple bruises now all over my > > calf, around my knee and on the shin. Any more ideas on this guys?? > > Thankfully it's cold out and I can wear longsleeves and long pants without looking > > funny! > > > > Amy G. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2004 Report Share Posted December 2, 2004 That must have been so scary Marcia! I guess it is a good thing they monitor patients so closely post transplant! In a message dated 12/2/2004 7:14:42 PM Pacific Standard Time, newlife_oct_2002@... writes: > Amy > > I experience bruising as well, but mine is due to the high dose of > Warfarin/Coumidin I'm on. After my transplant I had a blood clot the pain was so > severe. It felt like the devil had his big foot on my chest. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Yoiks! 13 tubes! I've be having bruising problems from that alone! I hope they get to the bottom of this for you. Cy Re: Spontanious bruising > > > Hi Amy, > > Ouch! I'm sorry to hear this is still a problem. Does icing these help at > all? I'm glad all the tests that your GP ran came back normal. Out of > curiousity, do you know what kind of stuff he was trying to rule out? > > Is is possible that what you are seeing is from the pred? It sounds very > similar to side effects my mom (NOT a kidney patient) had from pred. She > had done pred on and off for decades - had had great psychedelic bruises on > her arms and legs to show for it. > > Cy > > > > > In a message dated 12/1/2004 2:05:21 PM Pacific Standard Time, > > purrfect@... writes: > > > > > > > > I know I've brought it up before but I'm going to breech the subject > again. > > > Does anyone else have problems with severe bruising and what have you > been > > > able to do about it? Mine has gotten to the point where I have severe > pain in > > > a spot and within an hour (or less) I have a bruise. My GP has run all > > > sorts of blood test for who knows what but everything he has checked for > has come > > > back normal (which I am quite happy about). However it has done nothing > to > > > help the bruising problem. A few nights ago my lower left leg was in > intense > > > pain for a few hours, I thought from sitting in front of my sewing > machines > > > for so long. So I laid down and put my feet up for a bit thinking it > was a > > > swelling thing...well no such luck. I have multiple bruises now all > over my > > > calf, around my knee and on the shin. Any more ideas on this guys?? > > > Thankfully it's cold out and I can wear longsleeves and long pants > without looking > > > funny! > > > > > > Amy G. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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