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Rhonda,

M couldn't have said it any better! Depression is just as

much a medical condition as a broken leg and NO ONE would expect you

to pull yourself out of that alone!

Research done during the past 5-10 years shows that the most

successful treatment for chronic depression (depression lasting more

than 2 months I think) is the combination of counselling and anti-

depressant medication. Naturally, that doesn't take into account

the determination and motivation of the sufferer. Sounds like

you've got what it takes to get the black dog off your back!

Depression is the nastiest black hole in the universe. As

wrote, the meds just give you the chance to get your balance in

order to heal.

All the best - you'll make it!

Jaci, Australia

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I suffered horribly from depression for years.

When doing research regarding my daughter's condition and finding out about

EFAs, I tried them out myself. I took a gram of EPA a day and decreased my dairy

>( Omega 6) intake drastically and within 5 days, depression lifted and I have

never looked back.

in Germany

Re: Rhonda

Rhonda,

M couldn't have said it any better! Depression is just as

much a medical condition as a broken leg and NO ONE would expect you

to pull yourself out of that alone!

Research done during the past 5-10 years shows that the most

successful treatment for chronic depression (depression lasting more

than 2 months I think) is the combination of counselling and anti-

depressant medication. Naturally, that doesn't take into account

the determination and motivation of the sufferer. Sounds like

you've got what it takes to get the black dog off your back!

Depression is the nastiest black hole in the universe. As

wrote, the meds just give you the chance to get your balance in

order to heal.

All the best - you'll make it!

Jaci, Australia

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I love this list. Thanks so much for all your support. I wish my

husband offered me a quarter of the support I get here. Right now he's

using the shrink thing against me. You know, " how the hell would you

know, your the crazy one seeing a shrink and taking pills " , that sort of

crap. Urgh. I'm not liking him at all right now. He just doesn't get

it. His depth runs about a half an inch. In fact, and sorry to get so

personal, right now I just need to vent, but I'm thinking that tonight I

may suggest a temporary separation. I can't fix myself and him too and

he's just making things harder for me. Now I shall go cry and let myself

have a 10 minute pity party. Thanks again for all your wonderful

support, I truly appreciate it more than you'll ever know.

Rhonda

Olivia's mom

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Been there, felt that. I'm sorry you're in such pain right now. As if you don't

have enough on your mind. My husband was called to active duty right after the

Sept. 11 attacks. He was gone for a year. I was so upset, after fighting

everyone for a year, we had just that day ( Sept. 11) gotten a firm diagnosis of

Autism, moderate to severe. Turns out, his being gone for a year was the best

thing that could have happened. Of course that is hindsight. Shortly after being

diagnosed Autistic, ph was diagnosed Celiac's disease and IgA deficient (

completely). It was a rough year, but I've posted before about how wonderful it

was to be able to devote my whole day to ph, and the evenings were free for

research. No one to contradict my decisions, no one to roll their eyes at me, no

one to bring inappropriate food home and leave it out for ph to eat. No

husband to make me feel guilty the laundry is piling up, dinner is plain, I'm

" coddling " ph, etc. I wouldn't have ever thought about separating prior to

Sept. 11, but I can say there are some benefits. It's just toxic to be around so

much negativity, we need help, not to be pulled down. Parenting these children

can be the loneliest experience. I've just scheduled an appt. with a therapist

because I need someone to listen to me vent once a week, and darn it, if I have

to pay to have that done, then that's what will happen. It just makes my husband

and family so sad, and it's so confusing to them when I try to discuss what I'm

thinking or what information I've just come across. The reality of separating is

that you don't often get to keep the rest of your world intact. I was fortunate

in that our separation meant only the removal of my husband from the household.

Financially, and physically everything else remained the same. So I will say

prayers for you that you come to a decision that will best benefit you and your

child. Keep in mind that classifying you as " crazy " makes it easier for your

husband to tolerate all the things you " might " be saying about him in therapy.

It's very telling that instead of supporting your decision to get healthier

emotionally, he is instead blaming you for being upset in the first place. Does

it make it easier for him to dominate a conversation by throwing that in your

face? Is it easier to yell at you than acknowledge how much fear, pain and doubt

he is feeling? Re: Re: Rhonda

I love this list. Thanks so much for all your support. I wish my

husband offered me a quarter of the support I get here. Right now he's

using the shrink thing against me. You know, " how the hell would you

know, your the crazy one seeing a shrink and taking pills " , that sort of

crap. Urgh. I'm not liking him at all right now. He just doesn't get

it. His depth runs about a half an inch. In fact, and sorry to get so

personal, right now I just need to vent, but I'm thinking that tonight I

may suggest a temporary separation. I can't fix myself and him too and

he's just making things harder for me. Now I shall go cry and let myself

have a 10 minute pity party. Thanks again for all your wonderful

support, I truly appreciate it more than you'll ever know.

Rhonda

Olivia's mom

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I think these lists on the internet are such life-savers - help us get

thru sickness and relationships, too !

Re: Re: Rhonda

I love this list. Thanks so much for all your support. I wish my

husband offered me a quarter of the support I get here. Right now he's

using the shrink thing against me. You know, " how the hell would you

know, your the crazy one seeing a shrink and taking pills " , that sort of

crap. Urgh. I'm not liking him at all right now. He just doesn't get

it. His depth runs about a half an inch. In fact, and sorry to get so

personal, right now I just need to vent, but I'm thinking that tonight I

may suggest a temporary separation. I can't fix myself and him too and

he's just making things harder for me. Now I shall go cry and let

myself

have a 10 minute pity party. Thanks again for all your wonderful

support, I truly appreciate it more than you'll ever know.

Rhonda

Olivia's mom

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  • 1 year later...

Thank you for doing the survey. I needed to hear that it took years of abx

for you to improve and that you are able to work now.

I have been on abx for almost 2 years and was beginning to wonder about

continuing it.

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--

I think what did me the most good was the IV ABX. I know that no one

wants to say that it takes YEARS of IV ABX to kick this bug if you have

had it for awhile because the insurance industry just won't go for

it....but I really didn't see marked improvement until I was on them for

almost a year! Then my brain started...very slowly...to start to clear

so that I could think again! I couldn't even read because I couldn't

finish a sentence....And I am a High School Computer Science Teacher!!!

Imagine trying to teach programming when I couldn't even think. I

couldn't even remember my student's names...I carried around my seating

chart and explained to my students what I had and what was going on and

they were great...but I knew that I needed to take some medical time off

because I really couldn't function. I think between the IV ABX and

having therapeutic massage twice a month, it enabled my body to help get

rid of some of the toxins. I know I will probably never be " over "

this...but I can function now and I know my limits and I do not cross

them....I know where I will end up if I do!!

I had a severe case of neuro lyme. It also affected my joints and so

many other parts that I cannot list them all. I really thought since

they kept telling me it was all in my head, that I had early onset

alzheimers and I would be in a home within a year. Don't give up. Keep

listening to your doctor as long as he/she keeps listening to you.

~Rhonna

kam004@... wrote:

>Thank you for doing the survey. I needed to hear that it took years of abx

>for you to improve and that you are able to work now.

>

>I have been on abx for almost 2 years and was beginning to wonder about

>continuing it.

>

>

>

>

>

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  • 2 months later...
Guest guest

Good luck with your treatment :)

Rhonda

[ ] Re: Rhonda

>

>

> hi Rhonda Congrats on your last shot I just gave myself my 5th shot

> I have 23 weeks to go

> Annita

>

>

>

>

>

>

>

>

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  • 3 weeks later...
Guest guest

My dad died over the weekend and I'm way behind in my email.

Rhonda

Dear Rhonda,

My condolences on your loss. It is a hard time to go through. Blessings on thee.

Hugs,

Marge

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Guest guest

My dad died over the weekend and I'm way behind in my email.

Rhonda

Dear Rhonda,

My condolences on your loss. It is a hard time to go through. Blessings on thee.

Hugs,

Marge

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Guest guest

and condolences to you Marge.

Take it easy on yourself.

Hugs

Aussie Margaret

Re: RHONDA

My dad died over the weekend and I'm way behind in

my email.

Rhonda

Dear Rhonda,

My condolences on your loss. It is a hard time to go

through. Blessings on thee.

Hugs,

Marge

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Guest guest

Not my dad, Margaret, it was Rhonda's.

and condolences to you Marge.Take it easy on yourself.HugsAussie Margaret My dad died over the weekend and I'm way behind inmy email. Rhonda

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Guest guest

my sincerest wishes of sympathy...on your loss...

sue vogelmarge <palybami@...> wrote:

My dad died over the weekend and I'm way behind in my email.

Rhonda

Dear Rhonda,

My condolences on your loss. It is a hard time to go through. Blessings on thee.

Hugs,

Marge

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  • 2 years later...

Mike,

What disease do you have?

Hi lynne

> > > > >

> > > > > As you know my Dr. prscribed Medrol 2 mg 4 days a week

> > > > > to lower my inflammation. my ESR is high 120.

> > > > > I thought it is not a bad idea because i read high

> > > > > inflammtion doesn't allow minocin to penetrate cells.

> > > > > anyway last nightI took my first medrol and I got up

> > > > > with less pain and less stiffness. My hands are no

> > > > > puffy right now. wow I didn't know a low dose of

> > > > > steroid can make a big difference. I don't like to

> > > > > take steroid because of side effects. my Dr. also

> > > > > doesn't like it. I am going to take it only 3 days a

> > > > > week. I hope it helps me to put on some weight.

> > > > > what do you think?

> > > > > By the way you do lots of work. I couldn't do such

> > > > > amonth of work even when I was healthy. like you I

> > > > > always followed a healthy diet, did excersize. no

> > > > > smoking and drinking but I was not a happy person.

> > > > > I didn't realize the most important thing is my

> > > > > health.

> > > > >

> > > > > enjoy the weekend

> > > > >

> > > > > soheila

> > > > >

> > > > > __________________________________________________________

> > > > > Looking for last minute shopping deals?

> > > > > Find them fast with Search.

> > > > http://tools.search./newsearch/category.php?

> > > > category=shopping

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ---------------------------------

> > > > > Looking for last minute shopping deals? Find them fast with

> > > > Search.

> > > > >

> > > > >

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Friendships do require effort and right now in my life, with being sick, all my

effort goes to getting through each day and trying to get better. There is not

much energy left for much else. My dogs have become great physical therapists as

they push me to move and I have met very nice people walking them. Also this

year as sort of a resolution I am forcing myself, as I am now comfortable in my

recluse existance, to try to call someone for lunch once a week or so. Only on

days when I feel I have the energy because you are right Leonie it takes a lot

out of you and I come home and collapse, not sure if it is worth it or not.

Hugs,

Sue

rheumatic Re: Depression in Chronic Illnesses!

The lesson I've learned the hard way is when people don't listen,

don't believe, don't support me with this illness, our relationship

is jeopardized. Scleroderma is not just testing me, it's testing my

family & friends, and only a handful are passing the test.

I recently was telling a long-term friend how expensive Minocin and

my supplements are. He replied that I should take the generic,

there's no difference. He quickly refuted me with 'science' when I

tried to explain, ending it with a shameful " Well, it's your

choice " . Later in the conversation I was telling him how I've felt

so lost since I became sick. He said I should just 'laugh it off',

and that I'm starting to sound like his grandmother. I felt totally

unheard, and said I had to get off the phone to work on finding

cheaper ways to get meds. He replied that if he were me, he would

just give up & die because that's his life philosophy, to let nature

take its course.

I never would have guessed how insensitive people can be until my

dx. A true friend with good communication skills would have asked

me more questions, let me talk it out and let me know that he really

hears me. Would have offered on-point support, helped me brainstorm

solutions, just been on my side. If he was uncomfortable with

my 'negative' feelings, they would have passed naturally had he

taken a helpful role, instead of throwing out his surface level

advice.

Since my dx I've lost so many relationships over insensitivities.

Our entire culture seems to be needing lessons in empathy and

communication & especially listening skills.

Since everyone in these forums is in the same boat, that's the one

thing I feel we can count on one another for, shared understanding.

These forums keep me functioning emotionally. These forums are an

essential component to my physical and emotional health.

I don't post often, but I read every post, and every post makes me

more knowledgable, and stronger. I feel somehow bonded with you all

in this magical electronic world. What the heck did people like us

do before this electronic medium?

Hi lynne

> > > >

> > > > As you know my Dr. prscribed Medrol 2 mg 4 days a week

> > > > to lower my inflammation. my ESR is high 120.

> > > > I thought it is not a bad idea because i read high

> > > > inflammtion doesn't allow minocin to penetrate cells.

> > > > anyway last nightI took my first medrol and I got up

> > > > with less pain and less stiffness. My hands are no

> > > > puffy right now. wow I didn't know a low dose of

> > > > steroid can make a big difference. I don't like to

> > > > take steroid because of side effects. my Dr. also

> > > > doesn't like it. I am going to take it only 3 days a

> > > > week. I hope it helps me to put on some weight.

> > > > what do you think?

> > > > By the way you do lots of work. I couldn't do such

> > > > amonth of work even when I was healthy. like you I

> > > > always followed a healthy diet, did excersize. no

> > > > smoking and drinking but I was not a happy person.

> > > > I didn't realize the most important thing is my

> > > > health.

> > > >

> > > > enjoy the weekend

> > > >

> > > > soheila

> > > >

> > > > __________________________________________________________

> > > > Looking for last minute shopping deals?

> > > > Find them fast with Search.

> > > http://tools.search./newsearch/category.php?

> > > category=shopping

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > ---------------------------------

> > > > Looking for last minute shopping deals? Find them fast with

> > > Search.

> > > >

> > > >

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Hi Sue,

I'm a recluse too. I belong to the world of the sick. Not the size

6 work-out moms driving a Lexus like carpool line.

Hi lynne

> > > > >

> > > > > As you know my Dr. prscribed Medrol 2 mg 4 days a week

> > > > > to lower my inflammation. my ESR is high 120.

> > > > > I thought it is not a bad idea because i read high

> > > > > inflammtion doesn't allow minocin to penetrate cells.

> > > > > anyway last nightI took my first medrol and I got up

> > > > > with less pain and less stiffness. My hands are no

> > > > > puffy right now. wow I didn't know a low dose of

> > > > > steroid can make a big difference. I don't like to

> > > > > take steroid because of side effects. my Dr. also

> > > > > doesn't like it. I am going to take it only 3 days a

> > > > > week. I hope it helps me to put on some weight.

> > > > > what do you think?

> > > > > By the way you do lots of work. I couldn't do such

> > > > > amonth of work even when I was healthy. like you I

> > > > > always followed a healthy diet, did excersize. no

> > > > > smoking and drinking but I was not a happy person.

> > > > > I didn't realize the most important thing is my

> > > > > health.

> > > > >

> > > > > enjoy the weekend

> > > > >

> > > > > soheila

> > > > >

> > > > > __________________________________________________________

> > > > > Looking for last minute shopping deals?

> > > > > Find them fast with Search.

> > > > http://tools.search./newsearch/category.php?

> > > > category=shopping

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ---------------------------------

> > > > > Looking for last minute shopping deals? Find them fast

with

> > > > Search.

> > > > >

> > > > >

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Hi Sue,

I'm a recluse too. I belong to the world of the sick. Not the size

6 work-out moms driving a Lexus like carpool line.

Hi lynne

> > > > >

> > > > > As you know my Dr. prscribed Medrol 2 mg 4 days a week

> > > > > to lower my inflammation. my ESR is high 120.

> > > > > I thought it is not a bad idea because i read high

> > > > > inflammtion doesn't allow minocin to penetrate cells.

> > > > > anyway last nightI took my first medrol and I got up

> > > > > with less pain and less stiffness. My hands are no

> > > > > puffy right now. wow I didn't know a low dose of

> > > > > steroid can make a big difference. I don't like to

> > > > > take steroid because of side effects. my Dr. also

> > > > > doesn't like it. I am going to take it only 3 days a

> > > > > week. I hope it helps me to put on some weight.

> > > > > what do you think?

> > > > > By the way you do lots of work. I couldn't do such

> > > > > amonth of work even when I was healthy. like you I

> > > > > always followed a healthy diet, did excersize. no

> > > > > smoking and drinking but I was not a happy person.

> > > > > I didn't realize the most important thing is my

> > > > > health.

> > > > >

> > > > > enjoy the weekend

> > > > >

> > > > > soheila

> > > > >

> > > > > __________________________________________________________

> > > > > Looking for last minute shopping deals?

> > > > > Find them fast with Search.

> > > > http://tools.search./newsearch/category.php?

> > > > category=shopping

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ---------------------------------

> > > > > Looking for last minute shopping deals? Find them fast

with

> > > > Search.

> > > > >

> > > > >

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  • 1 year later...
Guest guest

Hi ,

I agree. I had my worst ear implanted first. It had been essentially

unstimulated for over 30 years. I was unable to wear a hearing aid in that ear

due to profound hearing loss, severe distortion, recruitment and hyperacusis.

The CI in that ear has worked exceptionally well. I believe her audiologist can

test the 8th nerve fuction with an ABR, Auditory Brainstem Response, to test the

health of her 8th nerve.

Jim

>

> Hi Rhonda,

> There used to be a test called the Promontory stimulation test that

> was administered to see if a hearing nerve was still functional. I was

> implanted in an ear that had no hearing and no stimulation for 20 years,

> and the implant works just fine in that ear. So do ask if the CI

> evaluation can include something like the prom stim to verify that the

> nerve is, in fact, dead. Because it might well be possible to have an

> implant in that ear despite its not being used for 30 years. Never hurts

> to ask. If you can be implanted in that ear, you'd have bilateral

> hearing, using a hearing aid in the other ear.

>

>

>

> They are unable to implant my right ear because the nerve has been dead

> for so long, so when I get the implant, I will have the 30 days of pure

> silence. I have has many years to prepare for this and thought I was, but

> it is very scary.

> ____________________________________________________________

> Criminal Lawyers - Click here.

>

http://thirdpartyoffers.juno.com/TGL2141/fc/BLSrjpTOVoMdutSklEwkyHJc24yI89BUEJbu\

azv7XOLWPpenzICet0zaNjy/

>

>

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Guest guest

Same here -- implanted my worse ear which had not been stimulated for about

30 years. The CI worked beautifully and obviously the implanted side is

now my " good " side.

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  • 4 weeks later...
Guest guest

Single payer is actually less restrictive or bureaucratic for docs and

consumers because there is simply more money spent on care rather than

administration.

On Jul 26, 2009, at 5:16 PM, Rhonda Goebel wrote:

> -

>

> I didn't state my opinion for or against the bill, just advocated

> compassion. I am actually against the bill - it's a corporate

> profitizing mechanism created through corporate puppet politicians.

> Health care is about health, not expanding market potential.

>

> I'm for what other progressive countries have, single-payer, which

> this bill definately isn't. I'm for waiting either for a shift

> toward compassion, or a breakdown & replacement of our militaristic

> oligarchy with a system of, by & for the people. Though I haven't

> read the bill, I'm no longer living in Orwell's 1984, in the matrix.

>

> Peace,

> Rhonda

>

> From: Ana Andrescu <anaandrescu@...>

> Subject: Re: rheumatic Rhonda

> rheumatic

> Date: Sunday, July 26, 2009, 12:02 PM

>

>

>

> Dear Moderator,

> please allow only people that have read the bill to discuss about

> it, otherwise this discussions becomes a source of misinformation.

> thank you,

>

>

> ____________ _________ _________ __

> From: O' Conchubair <RNMSWbellsouth (DOT) net>

> Rheumatic <Rheumatic@grou ps.com>

> Sent: Saturday, July 25, 2009 1:29:49 PM

> Subject: rheumatic Rhonda

>

>

> I guess in a Fascist society it is not acceptable to criticize the

> U.S. Frightening!

>

>

>

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Guest guest

Rhonda,

my letter was not about agreeing or disagreeing with you, in reality I agree

with you.

my letter was about the general negative tone of the discussion

if it is a debate, let's debate the contents of the bill not just hearsay.

  

________________________________

From: Beckman <beckman5@...>

rheumatic

Sent: Sunday, July 26, 2009 2:19:04 PM

Subject: Re: rheumatic Rhonda

 

Single payer is actually less restrictive or bureaucratic for docs and

consumers because there is simply more money spent on care rather than

administration.

On Jul 26, 2009, at 5:16 PM, Rhonda Goebel wrote:

> -

>

> I didn't state my opinion for or against the bill, just advocated

> compassion. I am actually against the bill - it's a corporate

> profitizing mechanism created through corporate puppet politicians.

> Health care is about health, not expanding market potential.

>

> I'm for what other progressive countries have, single-payer, which

> this bill definately isn't. I'm for waiting either for a shift

> toward compassion, or a breakdown & replacement of our militaristic

> oligarchy with a system of, by & for the people. Though I haven't

> read the bill, I'm no longer living in Orwell's 1984, in the matrix.

>

> Peace,

> Rhonda

>

> From: Ana Andrescu <anaandrescu>

> Subject: Re: rheumatic Rhonda

> rheumatic@grou ps.com

> Date: Sunday, July 26, 2009, 12:02 PM

>

>

>

> Dear Moderator,

> please allow only people that have read the bill to discuss about

> it, otherwise this discussions becomes a source of misinformation.

> thank you,

>

>

> ____________ _________ _________ __

> From: O' Conchubair <RNMSWbellsouth (DOT) net>

> Rheumatic <Rheumatic@gro u ps.com>

> Sent: Saturday, July 25, 2009 1:29:49 PM

> Subject: rheumatic Rhonda

>

>

> I guess in a Fascist society it is not acceptable to criticize the

> U.S. Frightening!

>

>

>

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Guest guest

Most of us here understand first hand the insanity & injustice of an inhumane

health care system.  If the will of the people were realized, seems like it

shouldn't be too difficult to provide quality health care for all, with choice

of doctors, decisions made between patients & doctors, and with no corporations

carving out profits.  

 

In the blink of an eye we bail out banks & invade countries.  Surely like

all 'developed' countries we can realize health care as a basic human right. 

For example, each one of us should be able to afford an AP doc & Minocin if we

choose, regardless of whether or not we are a millionaire, or are able to work

full time for an employer who offers quality, affordable health insurance.

 

So many of us have struggled, and though some struggling may subside if this

health care plan passes, in general it seems the struggling for health care

justice for all will continue for now. 

 

Injustice anywhere is injustice everywhere.  MLK

> >

> >> -

> >>

> >> I didn't state my opinion for or against the bill, just advocated

> >> compassion. I am actually against the bill - it's a corporate

> >> profitizing mechanism created through corporate puppet politicians.

> >> Health care is about health, not expanding market potential.

> >>

> >> I'm for what other progressive countries have, single-payer, which

> >> this bill definately isn't. I'm for waiting either for a shift

> >> toward compassion, or a breakdown & replacement of our militaristic

> >> oligarchy with a system of, by & for the people. Though I haven't

> >> read the bill, I'm no longer living in Orwell's 1984, in the

> matrix.

> >>

> >> Peace,

> >> Rhonda

> >>

> >> From: Ana Andrescu <anaandrescu>

> >> Subject: Re: rheumatic Rhonda

> >> rheumatic@grou ps.com

> >> Date: Sunday, July 26, 2009, 12:02 PM

> >>

> >>

> >>

> >> Dear Moderator,

> >> please allow only people that have read the bill to discuss about

> >> it, otherwise this discussions becomes a source of misinformation.

> >> thank you,

> >>

> >>

> >> ____________ _________ _________ __

> >> From: O' Conchubair <RNMSWbellsouth (DOT) net>

> >> Rheumatic <Rheumatic@gro u ps.com>

> >> Sent: Saturday, July 25, 2009 1:29:49 PM

> >> Subject: rheumatic Rhonda

> >>

> >>

> >> I guess in a Fascist society it is not acceptable to criticize the

> >> U.S. Frightening!

> >>

> >>

> >>

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