Re: another sleepless night

[Guest guest]

Kim, When you find the sleep answer let me know. I usually sleep with the meds the doctor gives me but lately they don't work. My PT told me to call him but I am being stubborn and won't call. Maybe a call is what we both should do. By the way, I'm Debbie and I live in Louisiana. I was diagnosed, I think this year but time doesn't always pass quickly. Does it? a little humor. I am in stage 4 and my family consists of a mom (75) and a married daughter who in lives in AlisoViejo, CA (25, who has been married only 1 year). I really got the final diagnosis immediatlely when I returned from her wedding last year come to think of it. I went to see her last week (10 days) and tried to explain how things had changed but I was okay she didn't give me the response I expected. The opposite - she thinks that I am just not trying, my doc is a quack, and I shouldn't be on meds. She's tired of hearing about how I feel and "I should just get over it - it's just temporary

and I am overreacting. Boy, did that hurt! I have a positive attitude and really no one at works even knows about my pain,meds, etc. I play a game from 7:30 until 4:30 each day. I just wanted my only child to hear me out and be there. I am afraid to confide in my mom because my stepdad died 4 years ago and she's had several strongs but she's healthier than me at this time. I don't what I am rambling about but I am heartbroken. Kim's dad and I divorced when she was 2 and she's all I have as family. I know I have read books on RSD and it explains how people, even those closest don't understand, but why not? Can't they see the pain, and how we want to be back to our oldselves. I don't want to be tired. crouchy, etc. Instead of using common since when I was in sunny CA for vacation I proud to myself that I could do eveything she said. We shopped like we used to, went out at nights with her husband, stayed up watching movies, but I came home yesterday and I feel like that

trip set me back emotionally and physically. I will get over it and by tomorrow move on but the loneliness, physical and emotion pain is back. I thought I had the monster in a cage but i guess it was just chained up. HA!HA! I have usually the positive one in a crowd and at work the one everyone turns to for inspiration but I JUST DON"T CARE at this moment in time. Thanks for listening. I hope I didn't make you feel bad. We will both be better once we sleep. That is the one thing that I found that helps more than anything else - a good rest.

Love,

Debbie from Louisiana

PS I will write tomorrow and be more cheerful!!! I promise.

Kim wrote: here it is 430 in the morning and I have been up most all night. I have sleeping pills but they don't seem to work. Does anyone have another suggestion to maybe help me get just a few hours sleep? Even with all my pain meds I still can't sleep.Thank youKim

[Guest guest]

Hi, this is s, Momma JoAnn and do you have any anti-anxiety meds that

might help, or muscle relaxers, to take at night. Those are best I can

think of at this time of morning. Sorry you are hurting so much. Are you

able to rest during daytime? How old are your children Kim? Just wondering

if during school year you are able to be home alone and rest. Hope your

doctor can help you. Talk later new friend.

s Momma

JoAnn

another sleepless night

> here it is 430 in the morning and I have been up most all night. I

> have sleeping pills but they don't seem to work. Does anyone have

> another suggestion to maybe help me get just a few hours sleep? Even

> with all my pain meds I still can't sleep.Thank you

> Kim

>

>

>

>

[Guest guest]

Debbie,

It's so sad to hear that your daughter does not want to "listen". My feeling is that she may be in denial more than anything. No one wants to hear that their parents are dealing with an illness, especially one that there is so little known (or said) about.

Please give it some time. She will come to realize that you need her. She will come to accept the fact that you are in pain and have an illness.

My children, for the most part, don't say much about my illness, just accept it for what it is, though they sometimes forget I may have some limitations, but that is my fault, as I don't say no to anything! In the beginning, though they didn't say it, I know they wanted to think I was not ill, and that given enough time, I'd be back to "normal". Now they know this is normal for me.

I hope the same happens with your daughter.

Hugs,

JO

[Guest guest]

hello JoAnn, no I don't have any anti- anxiety meds. they have just

given me depression pills about a month ago. I have stupid sleeping

pills that I take but don't seem to work all that well.I try to rest

during the day but most the time like today I have so much pain that

I still can't do that. My kids are 19 and 16. my 16 yr old is more

of a help than the 19 yr, but he has recently started to work so he

can save up for a truck. My 19 yr old will be starting college next

month so she will be pretty busy as well.Well, that's it for now,

talk soon.

Kim

> Hi, this is s, Momma JoAnn and do you have any anti-anxiety

meds that

> might help, or muscle relaxers, to take at night. Those are best

I can

> think of at this time of morning. Sorry you are hurting so much.

Are you

> able to rest during daytime? How old are your children Kim? Just

wondering

> if during school year you are able to be home alone and rest.

Hope your

> doctor can help you. Talk later new friend.

> s Momma

> JoAnn

> another sleepless night

>

>

> > here it is 430 in the morning and I have been up most all night.

I

> > have sleeping pills but they don't seem to work. Does anyone have

> > another suggestion to maybe help me get just a few hours sleep?

Even

> > with all my pain meds I still can't sleep.Thank you

> > Kim

> >

> >

> >

> >

[Guest guest]

Kim,

I was up with ya last night at the same time, but my husband was finally able to come home, and I ended up going into the bedroom with him to go to bed, but ended up having to stay up till 6 am with my 17 month old son who woke up from a nightmare and didn't fall back to sleep until then, while watching me play my GameCube......(it works every time to get him to go back to sleep!)

So, I'm S**ry that I didn't get back to you as soon as I would have liked to....

Are you taking an antidepressant by any chance? Some Antidepressants double as sleeping pills also......and they do help really good.

I'm taking Temazepam, Generic for Restoril, which is a sleeping pill. There are other kinds, but one to stay away from if you are sensitive to meds, is Elavil! it will give you really bad, vivid nightmares that will haunt you for the rest of your life. It did me anyways... and I have a really hard time in getting any kind of sleeping pills to work!

Have you tried taking a hot, relaxing bath, with like Lavender bubble bath in it? That is supposed to help a person sleep. Add some music to it, maybe read a book while in the bath tub..........

Just a few extra idea's.......

Tonia

-------Original Message-------

Hi, this is s, Momma JoAnn and do you have any anti-anxiety meds thatmight help, or muscle relaxers, to take at night. Those are best I canthink of at this time of morning. Sorry you are hurting so much. Are youable to rest during daytime? How old are your children Kim? Just wonderingif during school year you are able to be home alone and rest. Hope yourdoctor can help you. Talk later new friend.s MommaJoAnn----- Original Message -----> here it is 430 in the morning and I have been up most all night. I> have sleeping pills but they don't seem to work. Does anyone have> another suggestion to maybe help me get just a few hours sleep? Even> with all my pain meds I still can't sleep.Thank you> Kim

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