Disease of color???

[Guest guest]

Hi Gang:

I had a very interesting conversation this afternoon with a gal named

Penny from Africa, Kenya to be exact. She come's in to my neighbor

who is confined to a wheel chair, and helps her around her

apartment. She was curious as to what PLS was, and she asked me if I

had ever met any African/American's or any other race of people who had

PLS or was it strictly a " white " disease. I was stunned for a moment,

and the more I thought about it, I could not honestly give her an

answer. So here I am " asking the expert's " . I hope nobody get's

offended, but she sure peaked my curiosity.

Rita

[Guest guest]

Rita,

I don't know of any PLSers who are also African, or African-

American. I was wondering about this about a year ago and I found

the following website listing famous people around the world with

ALS/MND:

http://www.alsmndalliance.org/famous_people.html

I do know that Ezzard (Cincinnati boxer) and Hubbie

Ledbetter (musician called " Leadbelly " ) were African Americans. It

has also been confirmed by his personal physician that Mao tse dung

died of ALS.

Seems to be a majority of athletes and musicians on this " famous "

list.

B.

>

> Hi Gang:

>

> I had a very interesting conversation this afternoon with a gal

named

> Penny from Africa, Kenya to be exact. She come's in to my

neighbor

> who is confined to a wheel chair, and helps her around her

> apartment. She was curious as to what PLS was, and she asked me

if I

> had ever met any African/American's or any other race of people

who had

> PLS or was it strictly a " white " disease. I was stunned for a

moment,

> and the more I thought about it, I could not honestly give her an

> answer. So here I am " asking the expert's " . I hope nobody get's

> offended, but she sure peaked my curiosity.

>

> Rita

[Guest guest]

Rita

I have been pondering the same questiion but was afraid to ask. I

know when I research Bulbar Palsy that the successful acupuncture

study had been done in China. It did not specify whether they had

pure bulbar palsy or PLS.

Also in the article on diagnostistics to differentiate between PLS

and ALS I sent a couple of days ago shows the study was done in Cuba

and I beleive it listed 20 PLS subjects. Think about that..... 20

PLSers involved in a study on the small island of Cuba.

I have known black friends who died of ALS and know that their race

tends to accellerate symptoms.

Does PLS attack one race more or one not at all? That's still an

open question.

Eva in WV

>

> Hi Gang:

>

> I had a very interesting conversation this afternoon with a gal

named

> Penny from Africa, Kenya to be exact. She come's in to my neighbor

> who is confined to a wheel chair, and helps her around her

> apartment. She was curious as to what PLS was, and she asked me if

I

> had ever met any African/American's or any other race of people who

had

> PLS or was it strictly a " white " disease. I was stunned for a

moment,

> and the more I thought about it, I could not honestly give her an

> answer. So here I am " asking the expert's " . I hope nobody get's

> offended, but she sure peaked my curiosity.

>

> Rita

[Guest guest]

Eva,

I have wondered too if it was more caucasian subjects with PLS & HSP, or if

other races were also affected. I have heard that when a black person gets

hypertension, diabetes, MS, or diseases such as that, their sx are greatly

accelerated.

I've always wondered why.

Take care,

Laurel

[Guest guest]

This question was posed on the HSP Listserve, and Dr. Fink answered

that it hits all races and ethnic groups, (OK, my words now and

doesn't spare anyone Except the 12 billion or however many live on

Earth now, who didn't draw this short straw, eh).

> Eva,

> I have wondered too if it was more caucasian subjects with PLS &

HSP, or if other races were also affected.