Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 here did you get access to this record> This is intriguing. On Feb 29, 2008, at 7:11 PM, wiccantwinpaths wrote: > > I was reading the hospital discharge records for one of Dr Browns > patients () and I noticed that his discharge notes do not in > anyway have anything in common with the protocl that is said to Dr > Browns. > > Apparently Dr Brown saw him about every six months for IV antibiotic > treatment. In addition to the Nsaids and opiates used I was checking > out the Antibiotics. Oh yeah, and once Dr Brown even used an > antihistimine/decongestant as a NSAID. > > 07/10/78 > > Minocin 100mg (appears to mean 50mg bid) > Amoxicillin 250mg every other night at bedtime > > 01/15/79 > > Sumycin 500mg and Ampicillian 2(probably 250mg) Both MWF at bedtime > > 07/05/79 > No antibiotics mentioned on discharge > > 01/07/80 > Minocin 50mg bid > > 07/08/80 > No antibiotics mentioned on discharge > > 06/01/81 > No discharge statement at all > > 06/29/82 > Tetracycline 500 mg Tid MF > > 07/05/84 > Tetracycline 500 mg Tid MF > > I thought this was pretty interesting as it's nothing like the > protocols. Would love to see other records. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 Wiccan, Ethel has extensive knowledge of Dr. Brown's protocol. I believe she was a patient of his. Perhaps she will address your questions. The web site at www.rheumatic.org is a compilation of Dr. Brown's protocol. Have you studied it? I believe Dr. Brown used tetracycline because that was the drug that was available when he started to use antibiotics for rheumatic diseases. Also, it's not one size fits all. We have to find what works for us. There are many facets to consider. That's why a knowledgeable AP doctor can be of great help. Some of us can do it on our own, especially if we do respond well to the protocol right off. It gets trickier in more complicated cases. Then you want someone with experience, not play with a partial deck. Yes, some of use Benedryl to help with symptom control for periods of time. Take care, Ute Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 For " wiccantwinpaths " <Shilnagig@...> I don't have much time this morning for a lengthy email, but will jot down a few random thoughts for you . Dr. Brown's protocol is unlike any other protocol your physician, use to prescribing conventional treatments, has probably ever used. Treatment is normally pulsed. We are all unique individuals consisting not only of our own genetic background, but, according to the microbiologists that worked for Dr. Brown, there is a residue within each of us of everything that has happened to us in the past - bacterial, viral, fungal infections, etc. - necessitating in many cases that the protocol be tailored specifically for you. Also, the length of time we have had disease and it's severity must be taken into consideration when putting together a protocol - realizing that protocol may need to be changed as treatment progresses. There are so many variables which is one of the reasons 's treatment was posted. Because the protocol for each patient changed from time to time, and because these patients often suffered from 'brain fog', Dr. Brown always recorded his conversations with them and then gave them the tape. I've listened to some of those tapes and their is a wealth of information on them. You need to keep in mind most of his patients were from out of town - coming to him after failing all conventional therapies. (Dr. Whitman's grandmother was one of them.) Dr. Brown treated most of them in a hospital setting - usually every 6 months to a year as they could afford. So, what works for you may not work for someone else. One size does NOT fit all! Some people in this group have done very well just using the basic protocol, but for others it's been a fight to find what works - which was the original intent of this group. Sometimes people do very well on the protocol and then all of a sudden seem to plateau. Dr. Lida Mattman, author of the textbook on stealth pathogens, told us there are times when these organisms overlay each other - requiring a different antibiotic to get rid of it, and then progress with the original antibiotic would be experienced again. Then too, there may be other conditions in the body that need to be dealt with simultaneously for optimum benefit of this therapy. (Read the FAQ.) Think too of the people who have been mis-diagnosed being treated for a rheumatic disease when they actually had Lyme Disease - so very difficult to get rid of. We've also had patients being treated for a rheumatic disease being diagnosed with cancer or they were diagnosed with cancer first and then a rheumatic disease. Is the same organism(s) causing both diseases? As I write this various patients presenting considerable challenges come to mind. One was a lady with long standing, severe RA who was in this group when it first started. She had hip and knee replacements at the famed National Orthopedic Hospital in Arlington where Dr. Brown practiced. She had been on the protocol for nearly five years with no results, and then all of a sudden she found herself in remission. What a happy lady! For Loftis, a scleroderma patient of Dr. Brown's, it took 7 years. She is still alive. Then there is Joan who had suffered for years with a mix of lupus, scleroderma and Sjogren's that led to other serious problems. The side effects from the high doses of prednisone (60 to 120 mg daily) she was placed on for so many years took a terrible toll, making her a semi-invalid. It took several years of antibiotic therapy (IV and oral) and due diligence on her part, but she was able to stop the progression of the disease AND get off the prednisone. I wish I had time to tell the whole story. She was a major casualty of a medical system that refused to recognize the infectious cause of these diseases - first discovered in 1939. And who remembers 's life and death battle? She was blessed to find a physician that thought 'out of the box' and now is working in the medical profession to get this story out. Then there is in the group. What a battle she has fought! It certainly has not been 100 mg. of Minocin three times a week for her, but she has been one willing to do the basics others refuse to do. She's alive, but the battle to stay well will go on for the rest of her life. When Dr. Brown, then well past retirement age, took sick himself, one of his patients realized he was going to die and there was nothing in print about the therapy which is how the first book came to be written with Henry Scammell - " The Road Back - Rheumatoid Arthritis - It's Cause and Its Treatment " . Recognizing the likely fire storm the book would create in the medical profession, the emphasis of the book was on treating rheumatoid arthritis, as the medical profession would never believe the same treatment worked for other inflammatory rheumatic diseases as well. The program 20/20 introduced the book in a negative manner but many patients and physicians had their eyes opened to the infectious cause of these diseases. Dr. ph Mercola was one of them and he along with Dr. Franco and Dr. Millicent Coker-Vann were of great help back then in starting the Road Back Foundation - which I resigned from when helped me make the protocol available on the net. (RBF eventually made the protocol and all of their publications available on the net.) They contributed immensely in helping me put together the first protocol ever published on this therapy. My how much more we've learned since then. When Drs. Brown and Albert Sabin first discovered the infectious cause of these diseases, Minocin and Vibramycin were not available so tetracycline was the drug of choice. As they became available he incorporated them into the protocol - varying them as necessary, but still using tetracycline from time to time. The basic protocol that worked for most people was 100 mg. of Minocin or maybe doxycycline three times a week - starting with IV lincocin or clindamycin for severe and/or long standing disease - and always for systemic scleroderma. Sometimes he had patients taking one tetracycline drug in the AM and another one in the PM three times a week, sometimes 5 days a week. Nizoral or Nystatin was most often prescribed along with the tetracycline drug to deal with the fungal component of these diseases. Today other anti-fungals are prescribed such as Diflucan. There are things people with disease can do to hasten their recovery, as doctors like , D..O., Pieter deWet, M.D., and ph Mercola, DO, to name a few, have discovered, and some of them have been eluded to briefly in the FAQ, as well as offered from time to time in the group, but few people seem interested. 'Nuff for now. Ethel rheumatic Dr Brown Protocol > > I was reading the hospital discharge records for one of Dr Browns > patients () and I noticed that his discharge notes do not in > anyway have anything in common with the protocl that is said to Dr > Browns. > > Apparently Dr Brown saw him about every six months for IV antibiotic > treatment. In addition to the Nsaids and opiates used I was checking > out the Antibiotics. Oh yeah, and once Dr Brown even used an > antihistimine/decongestant as a NSAID. > > 07/10/78 > > Minocin 100mg (appears to mean 50mg bid) > Amoxicillin 250mg every other night at bedtime > > 01/15/79 > > Sumycin 500mg and Ampicillian 2(probably 250mg) Both MWF at bedtime > > 07/05/79 > No antibiotics mentioned on discharge > > 01/07/80 > Minocin 50mg bid > > 07/08/80 > No antibiotics mentioned on discharge > > 06/01/81 > No discharge statement at all > > 06/29/82 > Tetracycline 500 mg Tid MF > > 07/05/84 > Tetracycline 500 mg Tid MF > > I thought this was pretty interesting as it's nothing like the > protocols. Would love to see other records. > > > > > > To unsubscribe, email: rheumatic-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 thank you so much for this great article. I read the book but you put it so everyone can understand the reason why we all have to take different antibiotics. Tank you, Eva Ethel Snooks <emsnooks@...> wrote: For " wiccantwinpaths " <Shilnagig@...> I don't have much time this morning for a lengthy email, but will jot down a few random thoughts for you . Dr. Brown's protocol is unlike any other protocol your physician, use to prescribing conventional treatments, has probably ever used. Treatment is normally pulsed. We are all unique individuals consisting not only of our own genetic background, but, according to the microbiologists that worked for Dr. Brown, there is a residue within each of us of everything that has happened to us in the past - bacterial, viral, fungal infections, etc. - necessitating in many cases that the protocol be tailored specifically for you. Also, the length of time we have had disease and it's severity must be taken into consideration when putting together a protocol - realizing that protocol may need to be changed as treatment progresses. There are so many variables which is one of the reasons 's treatment was posted. Because the protocol for each patient changed from time to time, and because these patients often suffered from 'brain fog', Dr. Brown always recorded his conversations with them and then gave them the tape. I've listened to some of those tapes and their is a wealth of information on them. You need to keep in mind most of his patients were from out of town - coming to him after failing all conventional therapies. (Dr. Whitman's grandmother was one of them.) Dr. Brown treated most of them in a hospital setting - usually every 6 months to a year as they could afford. So, what works for you may not work for someone else. One size does NOT fit all! Some people in this group have done very well just using the basic protocol, but for others it's been a fight to find what works - which was the original intent of this group. Sometimes people do very well on the protocol and then all of a sudden seem to plateau. Dr. Lida Mattman, author of the textbook on stealth pathogens, told us there are times when these organisms overlay each other - requiring a different antibiotic to get rid of it, and then progress with the original antibiotic would be experienced again. Then too, there may be other conditions in the body that need to be dealt with simultaneously for optimum benefit of this therapy. (Read the FAQ.) Think too of the people who have been mis-diagnosed being treated for a rheumatic disease when they actually had Lyme Disease - so very difficult to get rid of. We've also had patients being treated for a rheumatic disease being diagnosed with cancer or they were diagnosed with cancer first and then a rheumatic disease. Is the same organism(s) causing both diseases? As I write this various patients presenting considerable challenges come to mind. One was a lady with long standing, severe RA who was in this group when it first started. She had hip and knee replacements at the famed National Orthopedic Hospital in Arlington where Dr. Brown practiced. She had been on the protocol for nearly five years with no results, and then all of a sudden she found herself in remission. What a happy lady! For Loftis, a scleroderma patient of Dr. Brown's, it took 7 years. She is still alive. Then there is Joan who had suffered for years with a mix of lupus, scleroderma and Sjogren's that led to other serious problems. The side effects from the high doses of prednisone (60 to 120 mg daily) she was placed on for so many years took a terrible toll, making her a semi-invalid. It took several years of antibiotic therapy (IV and oral) and due diligence on her part, but she was able to stop the progression of the disease AND get off the prednisone. I wish I had time to tell the whole story. She was a major casualty of a medical system that refused to recognize the infectious cause of these diseases - first discovered in 1939. And who remembers 's life and death battle? She was blessed to find a physician that thought 'out of the box' and now is working in the medical profession to get this story out. Then there is in the group. What a battle she has fought! It certainly has not been 100 mg. of Minocin three times a week for her, but she has been one willing to do the basics others refuse to do. She's alive, but the battle to stay well will go on for the rest of her life. When Dr. Brown, then well past retirement age, took sick himself, one of his patients realized he was going to die and there was nothing in print about the therapy which is how the first book came to be written with Henry Scammell - " The Road Back - Rheumatoid Arthritis - It's Cause and Its Treatment " . Recognizing the likely fire storm the book would create in the medical profession, the emphasis of the book was on treating rheumatoid arthritis, as the medical profession would never believe the same treatment worked for other inflammatory rheumatic diseases as well. The program 20/20 introduced the book in a negative manner but many patients and physicians had their eyes opened to the infectious cause of these diseases. Dr. ph Mercola was one of them and he along with Dr. Franco and Dr. Millicent Coker-Vann were of great help back then in starting the Road Back Foundation - which I resigned from when helped me make the protocol available on the net. (RBF eventually made the protocol and all of their publications available on the net.) They contributed immensely in helping me put together the first protocol ever published on this therapy. My how much more we've learned since then. When Drs. Brown and Albert Sabin first discovered the infectious cause of these diseases, Minocin and Vibramycin were not available so tetracycline was the drug of choice. As they became available he incorporated them into the protocol - varying them as necessary, but still using tetracycline from time to time. The basic protocol that worked for most people was 100 mg. of Minocin or maybe doxycycline three times a week - starting with IV lincocin or clindamycin for severe and/or long standing disease - and always for systemic scleroderma. Sometimes he had patients taking one tetracycline drug in the AM and another one in the PM three times a week, sometimes 5 days a week. Nizoral or Nystatin was most often prescribed along with the tetracycline drug to deal with the fungal component of these diseases. Today other anti-fungals are prescribed such as Diflucan. There are things people with disease can do to hasten their recovery, as doctors like , D..O., Pieter deWet, M.D., and ph Mercola, DO, to name a few, have discovered, and some of them have been eluded to briefly in the FAQ, as well as offered from time to time in the group, but few people seem interested. 'Nuff for now. Ethel rheumatic Dr Brown Protocol > > I was reading the hospital discharge records for one of Dr Browns > patients () and I noticed that his discharge notes do not in > anyway have anything in common with the protocl that is said to Dr > Browns. > > Apparently Dr Brown saw him about every six months for IV antibiotic > treatment. In addition to the Nsaids and opiates used I was checking > out the Antibiotics. Oh yeah, and once Dr Brown even used an > antihistimine/decongestant as a NSAID. > > 07/10/78 > > Minocin 100mg (appears to mean 50mg bid) > Amoxicillin 250mg every other night at bedtime > > 01/15/79 > > Sumycin 500mg and Ampicillian 2(probably 250mg) Both MWF at bedtime > > 07/05/79 > No antibiotics mentioned on discharge > > 01/07/80 > Minocin 50mg bid > > 07/08/80 > No antibiotics mentioned on discharge > > 06/01/81 > No discharge statement at all > > 06/29/82 > Tetracycline 500 mg Tid MF > > 07/05/84 > Tetracycline 500 mg Tid MF > > I thought this was pretty interesting as it's nothing like the > protocols. Would love to see other records. > > > > > > To unsubscribe, email: rheumatic-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 Ethel, You are a true treasure for this group, and the time, energy, effort and care you put forth with your detailed information is invaluable. Thank you! Judy **************Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ 2050827?NCID=aolcmp00300000002598) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 Thank you Ethel for sharing your knowledge and experience with us, Take care, Ute Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 And thank you, Ute, for the wisdom you share with this group in so many ways. Ethel Re: rheumatic Dr Brown Protocol > Thank you Ethel for sharing your knowledge and experience with us, > Take care, > Ute > > > > To unsubscribe, email: rheumatic-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 Thank you both for everything!---Dolores Ethel Snooks <emsnooks@...> wrote: And thank you, Ute, for the wisdom you share with this group in so many ways. Ethel Re: rheumatic Dr Brown Protocol > Thank you Ethel for sharing your knowledge and experience with us, > Take care, > Ute > > > > To unsubscribe, email: rheumatic-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 ethel you are such a wealth of info. have you considered writing a book? i am so glad we have you as a resource. thanks! monique Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.