Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 Hi Colleen, I have taken Provigil for around 2 years now. I call it my miracle drug to help me through the day. Before I started on it I didnt have any energy, constantly taking naps, and my house looked terrible. Now that I am taking it my house stays clean and I have energy to help me through. I take 1/2 in a.m then another 1/2 at noon. Be careful not to take it past noon or it could prevent you from sleeping well at night. I can relate with you about your Neuro, I am my Neuro, rehab and primary docs first patient with PLS. Do you take Baclofen for your spacticity and tightness? You might talk to your doc about increasing it if you take it, if you havent started on it I would myself talk to your doc about something to help you with spacticity. You mentioned that you are still working, do you sit all day? I find for myself if I do stretching excersizes it really helps too, especially if I am on this darn computer for too long. What meds are you on? I take Baclofen for spasms, Provigil, Neurotin for spasms and tightness for PLS and restless leg syndrome, Trazadone to help me sleep and here in Oregon we have the medical marijuana which I use. I hope this helps some. Take care Colleen, Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 Sandy, THANKS - i feel much better about trying it now! I take zanaflex 8mgs day and 8mgs with 600mg neurontin at night to sleep. (my doc just increased the zanaflex to 8mgs from 4 and added it to the day time slot - previous was only at night) How much provigil do you take? I just started and it is supposed to be 200mgs, but i started only 100 (am an Rx chicken ). Doc talked about switching to baclofen, but since the zanaflex was working, he stay with it for now. Yes, i sit at a computer all day. Fortunately, i work from home a couple of days a week and can sneak in some nap time. In the office, i hit the wall somewhere around 11 am and spend much of the rest of the day staring, trying to hold it together. I strecth 1 or 2x a day and i exercise very regularly. Bike mostly (have a trikke too), but walking is much more difficult for me so i only do that every so often with a cane. My theory is that on the bike, my feet never move from 'terra firma' aka the pedal, so it makes it easier to do. Of course trying to balance or walk the first hour or so afterwards is a joke - look like a totally blotto drunk. Funny what you say about your house - i can't do both - work and clean, and since i work....... Thanks again! Colleen > Hi Colleen, > I have taken Provigil for around 2 years now. I call it my miracle drug to help me through the day. Before I started on it I didnt have any energy, constantly taking naps, and my house looked terrible. Now that I am taking it my house stays clean and I have energy to help me through. I take 1/2 in a.m then another 1/2 at noon. Be careful not to take it past noon or it could prevent you from sleeping well at night. > > I can relate with you about your Neuro, I am my Neuro, rehab and primary docs first patient with PLS. > > Do you take Baclofen for your spacticity and tightness? You might talk to your doc about increasing it if you take it, if you havent started on it I would myself talk to your doc about something to help you with spacticity. > > You mentioned that you are still working, do you sit all day? I find for myself if I do stretching excersizes it really helps too, especially if I am on this darn computer for too long. > > What meds are you on? > I take Baclofen for spasms, Provigil, Neurotin for spasms and tightness for PLS and restless leg syndrome, Trazadone to help me sleep and here in Oregon we have the medical marijuana which I use. > I hope this helps some. > Take care Colleen, Sandy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 Colleen, Nice to hear from you again. I take Provigil 200 mgs in the morning. It helps me through the day. I do have some problems in the afternoon and am starting to think that I should take 100 in the morning and 100 at noon. I also take baclofen and snaffle and looping, all of which will make me drowsy. Mike Question about Provigil > > > Greetings, > > I have posted here in the past and somehow my id got all screwed up - > maybe from non-use???? . Anyway, my name is Colleen and I was > diagnosed with PLS about a year and a half ago. > > My doctor is in NYC and i have a local neuro upstate here as well > (he's been my sanity for the last 5 years especially while i was > searching for the root cause of my 'problems') . He isn't too PLS > literate but in his defense, always willing to learn. I saw him > recently to give him an update and he perscribed provigil. As you > are all too well aware, the fatigue we have is beyond description > and i needed to now start taking meds during the day (i still work) > and i was whining that i did not think i could up them anymore and > get through the day. Gee, add a little more fatigue in to the mix! > > I hemmed and hawed about taking the provigil and finally took one > today. I don't think spasticity and this medicine mix. Am feeling > a little tighter. > > Has or does any one else take this and are you having sucess with > it?? > > Thanks in advance... > > Colleen > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2004 Report Share Posted October 12, 2004 Colleen, I take Provigil and I think it is wonderful. I can't really do more when I take it but am awake while I am doing it. Without it I fall asleep every chance I get and my mind feels dull, when I take it I am alert and feel alive. Susieq in Calif smartytsunami wrote: I saw him recently to give him an update and he perscribed provigil. Quote Link to comment Share on other sites More sharing options...
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