Re: thanks to everyone for their input

[Guest guest]

Dale, I have had the same experience. My daughter had gone with a young man

for 4 years and give no indication that it was going anywhere. I often

thought it was because of me having PLS and his mother had remarried a man who

had water on the brain. He saw how much work his mother had to do for his

stepfather. He didn't come over very much either. I guess I'll never know my

daughter ended the relationship a year and a half ago. She did meet a

wonderful

caring man, also a teacher like my daughter. Three month later he asked her

father for her hand in marriage. Good old fashion guy! They were married

this past May. His father had brain cancer but luckily he is OK now. These

kinds of things put life into perspective..........................Flora

[Guest guest]

In a message dated 10/20/2004 10:10:16 AM Pacific Daylight Time,

ellerbert@... writes:

the best is my friend who wants me to go to her psychic..

yep -- that's the best one I've heard too. Any takers on her psychic

giving a negative report?

Gentner

Alone we can do so little. Together we can do so much.

Helen Keller (1880-1968)

[Guest guest]

Exactly Fern, our society doesn't teach us how to handle these things and

people say the darndest things. We are never shown what to do for death

(thinking back to when my father died I remember all the friends that

stopped coming around or would say stuff like " Just keep busy, you'll get

over IT " ) Our old self has or is dying and we are different people. I

think back over the years and now realize some of the dumb things I said in

these situations.

Sidebar, after a couple of years my daughter has a boyfriend again. He's a

very nice guy and on first meeting me talked to me for about an hour and a

half, even with my slurred, slow speech. Then Anne (daughter) told me why

they hit it off so well, his father is disabled!

dale

Re: thanks to everyone for their input

>

> Thank you everyone for your input. On an intellectual level I know why

> everyone treats me this way; it is not about me but rather about them.

> They cannot

[Guest guest]

I can't let this one go by without adding my 2¢ worth. The guy Flora is

referring to would never have passed the " Dad Test " in a million years.

His reluctance to come over had nothing to do with how much water was on

his stepfather's brain or his mother's caregiving issues. At one point in

that relationship with our daughter, I got him aside and said " I have a

shotgun, a shovel and 5 acres

out back. Any Questions? " Never saw the old boy after that. Have a great

day to everyone...Doug/St. sburg, FL

belgium46@...

To:

PLS-FRIENDS

10/20/04 02:45 PM cc:

Please respond to Subject: Re:

thanks to everyone for their input

PLS-FRIENDS

Dale, I have had the same experience. My daughter had gone with a young

man

for 4 years and give no indication that it was going anywhere. I often

thought it was because of me having PLS and his mother had remarried a man

who

had water on the brain. He saw how much work his mother had to do for his

stepfather. He didn't come over very much either. I guess I'll never know

my

daughter ended the relationship a year and a half ago. She did meet a

wonderful

caring man, also a teacher like my daughter. Three month later he asked

her

father for her hand in marriage. Good old fashion guy! They were married

this past May. His father had brain cancer but luckily he is OK now.

These

kinds of things put life into perspective..........................Flora

[Guest guest]

Hi Fern;

My name is Doug, from Brooklyn, now in Phoenix. First I was diagnosed

in 96, but I saw the first signs in 91. I had 28 years with NYC

Transit Authority as an electrician. I also had no help from my union,

and my " friends " some I went to High School with were now running the

Dept. couldn't come up with a light duty job. I was forced off duty,

taken out of service after punching in by my Superintendent because I

couldn't climb up a 60' ladder and walk a 6 " wibe beam above a fully

functional bus depot. You are just a number. Friends I known from

grammer school don't even call, save just a few. A few coworkers had

about a 1yr run but nothing from about 99 on.

Now for the good news. When I went to the medical for the retirement

board, I waited to be seen longer than it took to get an answer. The

person I handed my paperwork at the end on your way out, looked at the

file and told me to call back when I got home. I did and was told it

was approved. As far as SS is concerned as long as you can pack bags

part time your not TOTALLY DISABLED. I went to my local office for all

the paper work. After 4-5 hours of them seeing I couldn't sit long or

stand long and that the pen would fall out of my hand and it took me

forever to fill out a short form, I let them see my hands distort in

cramps, it was done. I was told to go home to wait for what might be 6

months. Within 2 weeks I had my approval statement. The SS money

comes, once approved, 6 months from the last day you worked. The City

is in its own dimention so there's no telling how long that will take.

If you don't expect anything from people you won't be disappointed.

Anything you get you can rejoice over.

Good luck and God Bless

> Thank you everyone for your input. On an intellectual level I know

why

> everyone treats me this way; it is not about me but rather about

them. They cannot

> look at me because I remind them of their own vulnerability and

mortality, and

> they are reminded that the same thing can happen to any of them. A

lot of

> people ask me about the causel; they want to know that it is

something I did

> that they can prevent. For instance, my sister insists it was my

addiction to

> diet sodas. Now I know that there is a theory about a connection to

aspartame,

> but it can be a number of things that cause our condition. It is

just that

> people want to blame something. And the advice I get is laughable

sometimes,

> like " you know I just read that there is a drug which can slow

progression. You

> should ask your doctor about it " . .. duh.. I am on rilutek.. then

I can

> relate to the " think positive " people.. I hear " miracles happen .

... you are

> going to get better " .. my answer to them is " from your mouth to

God's ears. let's

> hope so " .. but the best is my friend who wants me to go to her

psychic..

> she claims that the psychic can tell me what is in my future. Well,

I live day

> to day.. that is all we can do .. thank you everyone for letting

me know that

> you have been through it too.

> Fern in NY

> dx 1/04

>

>

>

> check out my ebay items

> eBay Seller List: fec139

>

>

>