Guest guest Posted December 23, 2004 Report Share Posted December 23, 2004 Hi Y'all, The Solu-Medrol is working it's magic again - yesterday Gregg was pain-free for the first time in weeks (if not months). He slept all day (REAL sleep - not fitful, restless, drugged sleep...) yesterday while I was off campus (I'm trying hard not to be envious..lol). The Docs have finally added Methotrexate to his regimen, and he's had his 2nd Remecaid infusion. The first Remecaid infusion didn't have any appreciable effect (that we could see). He did sweat all night the 2nd night after it. This time, his chest became tight and he got short of breath, so they stopped it, but were able to successfully finish it the next day. Dr. Awad wants him to have at least 3 before we decide if it's helping or not. Though I am aware of my stress level connected with having to be responsible for absolutely everything by myself - while he is having a rough time, I'm unaware of how much his condition effects my own frame of mind and emotions - it's only when there's a point of relief that I realize just how much impact his challenges have on me at other times. Though I haven't had much sleep over the last week, I'm feeling much lighter and happier because of his recent improvement! We will be here through tomorrow while he receives the last of his 3-day solu-medrol course. Just after lunch tomorrow, my parents are going to bring all three of our boys here for a little Christmas celebration. I have some presents and all our stockings in the car, and I think that will work much better than trying to do it after the challenge of travelling home and getting settled again. Also, it will be much more enjoyable with Gregg feeling at his best in a long time! I want to thank each and every one of you for your support through this! I would not have survived so well, so far if not for you. Lots of Love, Happy Holidays and a wonderful 2005 to you! Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2004 Report Share Posted December 23, 2004 Jeri and Greg... I am glad he is finally getting some real pain relief. I am also glad that you, Jeri, realize the strain you are under and that you are getting those moments of release and good feelings from Greg having his relief. He is where he needs to be so don't rush it for the holidays. It sounds like your plans of celebrating the day is his room is a very good plan indeed. If you can get some sleep while he's in the hospital please try. We don't want you to get sick, too! Love and soft hugs and Christmas greetings to both of you and your family... S.KangiKanti7@... wrote: Hi Y'all,The Solu-Medrol is working it's magic again - yesterday Gregg was pain-free for the first time in weeks (if not months). He slept all day (REAL sleep - not fitful, restless, drugged sleep...) yesterday while I was off campus (I'm trying hard not to be envious..lol). The Docs have finally added Methotrexate to his regimen, and he's had his 2nd Remecaid infusion. The first Remecaid infusion didn't have any appreciable effect (that we could see). He did sweat all night the 2nd night after it. This time, his chest became tight and he got short of breath, so they stopped it, but were able to successfully finish it the next day. Dr. Awad wants him to have at least 3 before we decide if it's helping or not. Though I am aware of my stress level connected with having to be responsible for absolutely everything by myself - while he is having a rough time, I'm unaware of how much his condition effects my own frame of mind and emotions - it's only when there's a point of relief that I realize just how much impact his challenges have on me at other times. Though I haven't had much sleep over the last week, I'm feeling much lighter and happier because of his recent improvement! We will be here through tomorrow while he receives the last of his 3-day solu-medrol course. Just after lunch tomorrow, my parents are going to bring all three of our boys here for a little Christmas celebration. I have some presents and all our stockings in the car, and I think that will work much better than trying to do it after the challenge of travelling home and getting settled again. Also, it will be much more enjoyable with Gregg feeling at his best in a long time!I want to thank each and every one of you for your support through this! I would not have survived so well, so far if not for you.Lots of Love, Happy Holidays and a wonderful 2005 to you!Jeri~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2004 Report Share Posted December 24, 2004 Jeri, It is so good to hear that Gregg is responding so well to both the Remicade and the solu-medrol. I know from my experience, that the Remicade was incredible in releaving my pain. I pray that tomorrow is a peaceful day, and that you can enjoy the time with Gregg, his parents and the kids. I also pray that you can find the time to give yourself a bit of "relaxation time" so that you can renew your spirit and mind. As always, I hold you in my heart, and send loving compassion for you and your family as you make this journey. Love, Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 God Bless You, Jeri...you are an Angel... Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 God Bless You, Jeri...you are an Angel... Joan Quote Link to comment Share on other sites More sharing options...
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