Re: Exercise is sooo important!

[Guest guest]

Cheryl, et.al.,

I know I had read jumping jacks and running in place before in the pool...so

I tried and I can't do it. I've lost the coordination I guess; I can't swim

either. I have a " water walker " and then I also wrap a noddle around my

waist and kick away...at least that's what I did this summer (we have a

pool)...not now. What I do is go to the deep end and " run in place " but I

doubt it's

as good because since I am not touching bottom, it's not weight bearing. I

feel like everything is in slow motion. I walk around in the shallow end.

All the water walker is are 2 4-ft. long PVC pipes with kick boards attached

front and back so it floats. We don't have a Y in my city...lots of clubs

though but I'm too self-conscious. I feel like a slug and need to get my rear

in gear!

[Guest guest]

Up until last year, I did water exercises. Now I can't get up and

down the steps into and out of the pool. My community has a

hydraulic chair into the pool, but I have to step up on the lip

around the pool to get in the chair, and I cant do that anymore

either.

Edith

>

>

> Hello everyone!

>

> Now that I'm finally " caught up " with reading posts to

these listserves, I'm posting some responses to some of these

posts....They will be posted with subject lines so that any of you

not interested in the particular subject can delete certain posts.

>

> I've read posts about inability to run, etc.. I can't

remember when I was able to run--I think between the age of 10-12

(I'm now 41--soon to be 42). I just realized last year (hadn't

attempted it for about 3 years earlier) that I can no longer get on

a bike (when attempting to get on it, while bringing my leg up and

around the bike, it and I fell down)..anyway, I try to be

appreciative of what I can do and not dwell on what I cannot do.

Hopefully, all of you live your lives that way. I find that it takes

less energy to be happy then to be sad (by dwelling on things you

can not do)...

>

> Although I've posted the following before, I know there

are some " newbies " so I really want to encourage any of you with

HSP, PLS, or not, to try out water jogging classes. It is wonderful

to be able to run, do jumping jacks and other things that I cannot

do on land. My exercise routine continues to be water jogging

3x/week and work out with a personal trainer 2x/week.

>

> I have had times that I've missed my exercise sessions,

but find that I feel much better when I go. I do agree with the

fact that we (with HSP & PLS) shouldn't overdo it, but I find my

5x/week routine along with stretches and exercises with my exercise

ball in between works well for me. I realize that we are all at

different stages in our progression, but I know it is very important

that we do what we can for exercises and/or stretches!

>

> I welcome responses from all of you!

>

> Cheryl in Maine

>

>

>

[Guest guest]

Roy,

That's for sure that all PLSers aren't created equal (nor are the

people with HSP like Cheryl). Most of our neurologists do

encourage at least stretching to help with our spastiscity.

Dr. Fink, who is the SPF Medical Advisor, encourages

us to keep walking as long as possible if nothing else.

You can see his take on this on our SPF Website at:

_http://sp-foundation.org/treatment.htm_

(http://sp-foundation.org/treatment.htm)

Gentner, PLS

sp-foundation

[Guest guest]

I guess PLS is not the same for everyone Cheryl, I realy wonder

why??? Even in my begining stages I could not do what you do in the

water classes!!! I would be up all night with extreamly painful

cramping. I tried it!! Stretching did the same thing. I dont think

forcing the issue would stop the progression. I'm happy it works

for you!!

Roy

>

>

> Hello everyone!

>

> Now that I'm finally " caught up " with reading posts to

these listserves, I'm posting some responses to some of these

posts....They will be posted with subject lines so that any of you

not interested in the particular subject can delete certain posts.

>

> I've read posts about inability to run, etc.. I can't

remember when I was able to run--I think between the age of 10-12

(I'm now 41--soon to be 42). I just realized last year (hadn't

attempted it for about 3 years earlier) that I can no longer get on a

bike (when attempting to get on it, while bringing my leg up and

around the bike, it and I fell down)..anyway, I try to be

appreciative of what I can do and not dwell on what I cannot do.

Hopefully, all of you live your lives that way. I find that it takes

less energy to be happy then to be sad (by dwelling on things you can

not do)...

>

> Although I've posted the following before, I know there are

some " newbies " so I really want to encourage any of you with HSP,

PLS, or not, to try out water jogging classes. It is wonderful to be

able to run, do jumping jacks and other things that I cannot do on

land. My exercise routine continues to be water jogging 3x/week and

work out with a personal trainer 2x/week.

>

> I have had times that I've missed my exercise sessions, but

find that I feel much better when I go. I do agree with the fact

that we (with HSP & PLS) shouldn't overdo it, but I find my 5x/week

routine along with stretches and exercises with my exercise ball in

between works well for me. I realize that we are all at different

stages in our progression, but I know it is very important that we do

what we can for exercises and/or stretches!

>

> I welcome responses from all of you!

>

> Cheryl in Maine

>

>

>