Guest guest Posted March 28, 2004 Report Share Posted March 28, 2004 So what other tests can find out? I have to call and schedule another appt with the neuro. I had been doing so good, my next appt wasn't for 6 months. That sucks. I'm just so tired of having a surgery every 6 months!!!! Now we aren't even waiting 6 months, it's going to every 3 months including my arms! I'll probably have it done but I think I'm switching docs. I had such an easy time with this last surgery as opposed to the others, I remember telling Ronnie I felt like he didn't do anything but cut it open and sew it up. CT results Weeeeeeelllllllllll ....... my neuro called today with my CT results: the knot on the lower back side of my head is not showing up at all which he says leads him to think it's lymph node involvement (I've had swollen lymph nodes... this is too far back, way too hard and way too big... I'm not buying that theory) BUT what did show up is... everyone sitting down?.... tada.... a tumor in my left maxillary sinus!!! hehehe I've had 3 surgeries for this. In the past ummmm 3 years? One for both sides to start us off and then 2 more to remove tumors on the left. Here we go again? NO!!!! He offered to set up another appt with my ENT and I said no thanks. I'm not interested. No wonder I've been very uncomfortable using my CPAP lately.... I can't breathe! We weren't even looking for this!! UGH!!!!!!!!! I HATE THIS! Now to wait for my endoscopy results. What could HE find that isn't even close to the problem he's looking to solve? GRRRRRRR I hate doctors! On my way to the hot tub! Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2004 Report Share Posted March 29, 2004 Did they do both an MRI and a CT? Sometimes one shows what another won't. The cyst on my pineal and the eye tumor only showed up on the CT--well the eye thing was apparant on the MRI, but they were unable to distinguish what it was. They may even want to do a biopsy. I'm not sure what else, but it just seems that no matter what it is they'd want to know. I'm glad you're going to have the sinus thing out. It won't be so often all the time...sometimes there are years like that, though. Kathy CT results Weeeeeeelllllllllll ....... my neuro called today with my CT results: the knot on the lower back side of my head is not showing up at all which he says leads him to think it's lymph node involvement (I've had swollen lymph nodes... this is too far back, way too hard and way too big... I'm not buying that theory) BUT what did show up is... everyone sitting down?.... tada.... a tumor in my left maxillary sinus!!! hehehe I've had 3 surgeries for this. In the past ummmm 3 years? One for both sides to start us off and then 2 more to remove tumors on the left. Here we go again? NO!!!! He offered to set up another appt with my ENT and I said no thanks. I'm not interested. No wonder I've been very uncomfortable using my CPAP lately.... I can't breathe! We weren't even looking for this!! UGH!!!!!!!!! I HATE THIS! Now to wait for my endoscopy results. What could HE find that isn't even close to the problem he's looking to solve? GRRRRRRR I hate doctors! On my way to the hot tub! Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 You mean like getting hit in the eye by a buckeye....lol Or whatever it was that fell from JImmy 's tree. ShirleyChristy wrote: I dunno. It's under my hair but it's not "hot-feeling." Feels kinda like a goose-egg you know when someone is beaned on the head with a baseball or something LOL About that size too. CT results Weeeeeeelllllllllll ....... my neuro called today with my CT results: the knot on the lower back side of my head is not showing up at all which he says leads him to think it's lymph node involvement (I've had swollen lymph nodes... this is too far back, way too hard and way too big... I'm not buying that theory) BUT what did show up is... everyone sitting down?.... tada.... a tumor in my left maxillary sinus!!! hehehe I've had 3 surgeries for this. In the past ummmm 3 years? One for both sides to start us off and then 2 more to remove tumors on the left. Here we go again? NO!!!! He offered to set up another appt with my ENT and I said no thanks. I'm not interested. No wonder I've been very uncomfortable using my CPAP lately.... I can't breathe! We weren't even looking for this!! UGH!!!!!!!!! I HATE THIS! Now to wait for my endoscopy results. What could HE find that isn't even close to the problem he's looking to solve? GRRRRRRR I hate doctors! On my way to the hot tub! Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 LOLOL Yeah... like that. But this is on the BACK of my head and the buckeye one stayed for weeks! This one goes away every few days. LOL The buckeye one hurt a lot more LOL CT results Weeeeeeelllllllllll ....... my neuro called today with my CT results: the knot on the lower back side of my head is not showing up at all which he says leads him to think it's lymph node involvement (I've had swollen lymph nodes... this is too far back, way too hard and way too big... I'm not buying that theory) BUT what did show up is... everyone sitting down?.... tada.... a tumor in my left maxillary sinus!!! hehehe I've had 3 surgeries for this. In the past ummmm 3 years? One for both sides to start us off and then 2 more to remove tumors on the left. Here we go again? NO!!!! He offered to set up another appt with my ENT and I said no thanks. I'm not interested. No wonder I've been very uncomfortable using my CPAP lately.... I can't breathe! We weren't even looking for this!! UGH!!!!!!!!! I HATE THIS! Now to wait for my endoscopy results. What could HE find that isn't even close to the problem he's looking to solve? GRRRRRRR I hate doctors! On my way to the hot tub! Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
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