Guest guest Posted September 28, 2004 Report Share Posted September 28, 2004 very interesting, Rose. I had all this told to me in my office visits, but I was too sick to really process it. What I want to know is what kind of damage my body most likely incurred because if glucose levels in the high two hundreds to the mid three hundreds. Plus, some of the "symptoms," like frequent urination havent been a problem. And you know weight loss wasn't a problem, although on this starvation diet (Remember, I was addicted to COmplex carbs) I have already lost about ten to fifteen pounds in a week and a half.) And I'm confused as to how the sarcoidosis directlty caused the diabetes -- not my meds like last time. The docs believe the sarc has spread through all of those organs involved, so I wonder if there are granulomas in my pancreas intefering with the process. I had excessive dry mouth, but I don't know it that's excessive thirst, plus it's been that way for four years. Also, the only time I have been terribly hungry was when I was taking ritalin -- when that stuff wore off I could eat like I was on steroids again -- one of the reasons I stopped taking ritalin. I have always (since adolesdcence) had to eat every few hours -- but in small amounts -- usually healthy carbs and lately more sugar than normal, but that IS because of the sarc -- everything except sweets tastes terrible -- even my most favorite foods -- they all taste either rancid or like dirt. If I didn't eat when I got the warning signals (dizziness, nausea), I was in for a stay in bed with a massive stomache ache (they started me on the six small meals a day when I had an ulcer at twelve). When my immuno first was shown (by me, after examining a three months of biweekly blood labs) that my blood sugar was always over two hundred and sometimes over three hundred (he passed the buck on missing that, because his assistant went on medical leave). He told me I was glucose INTOLERANT. I didn't read about that in this interesting website. The immuno wasn't going to put me on insulin, but thank god the endocrinologist didn't agree. At least I don't have to worry about more damage to my pancreas, kidneys (which are spilling obscene amounts of protien in my blood -- not that I eat much protein -- but the new diet only alows me to have six to eight oz total each day). The bad thing? for all of my adult life I have had to wake up in the middle of the night and get a small bowl of cereal or a granola bar to keep from throwing up. Now I am not supposed to eat after my bedtime reading until my before breakfast reading. It has lowered my fasting BS, but I feel just terrible in the morning and the pain in my liver or pancreas (right side under ribs and sticking out into tmy abdominal cavity, On palpation there are very hard and very painful spots. I have an appointment with the nephroilogist October 21, but with the GI on Dec. 29. Basically, my immuno sees no hurry in my seeing these docs because he sees the only effective treatment as getting the sarc back under control. I sure hope I feel better quick. I have bootstraps to make!!! Rose wrote: Blank Hi, guys. I found a nifty website. It's great for answering kids' questions, but also for adults! All kinds of interesting stuff, medical, mechanical, nature, you name it. You night owls might want to check it out. I'm one of those people who like to browse through dictionaries & encyclopedias, so this is right up my alley. www.howstuffworks.com. Hope you enjoy it. It's as much fun as the urban myth sites and more educational! Curious Rose My Inbox is protected by SPAMfighter 2318 spam mails have been blocked so far. Download free SPAMfighter today! ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Neurosarcoidosis Community NS CHAT:- Has been cancelled for now. Message Archives:- http://groups.yahoo.com/group/Neurosarcoidosis/messages Members Database:- Listings of locations, phone numbers, and instant messengers. http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2004 Report Share Posted September 28, 2004 Thanks Rose!! Marla How Stuff Works Hi, guys. I found a nifty website. It's great for answering kids' questions, but also for adults! All kinds of interesting stuff, medical, mechanical, nature, you name it. You night owls might want to check it out. I'm one of those people who like to browse through dictionaries & encyclopedias, so this is right up my alley. www.howstuffworks.com. Hope you enjoy it. It's as much fun as the urban myth sites and more educational! Curious Rose My Inbox is protected by SPAMfighter2318 spam mails have been blocked so far.Download free SPAMfighter today!~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2004 Report Share Posted September 28, 2004 , I haven't heard of glucose intolerance; I wonder if that's the same as insulin resistance. Sam & I have insulin resistance. We produce enough insulin (which basically opens the cell gates to allow glucose in, to provide energy), but the cells resist the insulin (keeping the gates closed). Even though the glucose can't get into the cells, we aren't (yet) diabetic because we can produce more insulin, until eventually the cells are able to use the glucose. So our blood sugars are normal, but the insulin levels are high. This shows that the ol' pancreas is working overtime to keep the blood sugar normal, but sooner or later it burns out & the blood sugar starts rising. Sam's insulin level has dropped to normal with medication; mine has improved with diet & weight loss; I'll get it rechecked in 3 months. It would be interesting to know if sarc patients have a higher incidence of insulin resistance than the general population. Well, that's too much intellectual work for a fairy, so I'll leave it to someone else to research. Cracklin' Rosie (remember that Neil Diamond song?) Re: How Stuff Works very interesting, Rose. I had all this told to me in my office visits, but I was too sick to really process it. What I want to know is what kind of damage my body most likely incurred because if glucose levels in the high two hundreds to the mid three hundreds. Plus, some of the "symptoms," like frequent urination havent been a problem. And you know weight loss wasn't a problem, although on this starvation diet (Remember, I was addicted to COmplex carbs) I have already lost about ten to fifteen pounds in a week and a half.) And I'm confused as to how the sarcoidosis directlty caused the diabetes -- not my meds like last time. The docs believe the sarc has spread through all of those organs involved, so I wonder if there are granulomas in my pancreas intefering with the process. I had excessive dry mouth, but I don't know it that's excessive thirst, plus it's been that way for four years. Also, the only time I have been terribly hungry was when I was taking ritalin -- when that stuff wore off I could eat like I was on steroids again -- one of the reasons I stopped taking ritalin. I have always (since adolesdcence) had to eat every few hours -- but in small amounts -- usually healthy carbs and lately more sugar than normal, but that IS because of the sarc -- everything except sweets tastes terrible -- even my most favorite foods -- they all taste either rancid or like dirt. If I didn't eat when I got the warning signals (dizziness, nausea), I was in for a stay in bed with a massive stomache ache (they started me on the six small meals a day when I had an ulcer at twelve).When my immuno first was shown (by me, after examining a three months of biweekly blood labs) that my blood sugar was always over two hundred and sometimes over three hundred (he passed the buck on missing that, because his assistant went on medical leave). He told me I was glucose INTOLERANT. I didn't read about that in this interesting website. The immuno wasn't going to put me on insulin, but thank god the endocrinologist didn't agree. At least I don't have to worry about more damage to my pancreas, kidneys (which are spilling obscene amounts of protien in my blood -- not that I eat much protein -- but the new diet only alows me to have six to eight oz total each day).The bad thing? for all of my adult life I have had to wake up in the middle of the night and get a small bowl of cereal or a granola bar to keep from throwing up. Now I am not supposed to eat after my bedtime reading until my before breakfast reading. It has lowered my fasting BS, but I feel just terrible in the morning and the pain in my liver or pancreas (right side under ribs and sticking out into tmy abdominal cavity, On palpation there are very hard and very painful spots. I have an appointment with the nephroilogist October 21, but with the GI on Dec. 29. Basically, my immuno sees no hurry in my seeing these docs because he sees the only effective treatment as getting the sarc back under control.I sure hope I feel better quick. I have bootstraps to make!!!Rose wrote: Hi, guys. I found a nifty website. It's great for answering kids' questions, but also for adults! All kinds of interesting stuff, medical, mechanical, nature, you name it. You night owls might want to check it out. I'm one of those people who like to browse through dictionaries & encyclopedias, so this is right up my alley. www.howstuffworks.com. Hope you enjoy it. It's as much fun as the urban myth sites and more educational! Curious Rose My Inbox is protected by SPAMfighter2318 spam mails have been blocked so far.Download free SPAMfighter today!~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2004 Report Share Posted September 30, 2004 Thanks for that info, Rosie. Guess what? I still have that song in my neil diamond songbook. I might just pring it on you sometime! , I haven't heard of glucose intolerance; I wonder if that's the same as insulin resistance. Sam & I have insulin resistance. We produce enough insulin (which basically opens the cell gates to allow glucose in, to provide energy), but the cells resist the insulin (keeping the gates closed). Even though the glucose can't get into the cells, we aren't (yet) diabetic because we can produce more insulin, until eventually the cells are able to use the glucose. So our blood sugars are normal, but the insulin levels are high. This shows that the ol' pancreas is working overtime to keep the blood sugar normal, but sooner or later it burns out & the blood sugar starts rising. Sam's insulin level has dropped to normal with medication; mine has improved with diet & weight loss; I'll get it rechecked in 3 months. It would be interesting to know if sarc patients have a higher incidence of insulin resistance than the general population. Well, that's too much intellectual work for a fairy, so I'll leave it to someone else to research. Cracklin' Rosie (remember that Neil Diamond song?) Re: How Stuff Works very interesting, Rose. I had all this told to me in my office visits, but I was too sick to really process it. What I want to know is what kind of damage my body most likely incurred because if glucose levels in the high two hundreds to the mid three hundreds. Plus, some of the "symptoms," like frequent urination havent been a problem. And you know weight loss wasn't a problem, although on this starvation diet (Remember, I was addicted to COmplex carbs) I have already lost about ten to fifteen pounds in a week and a half.) And I'm confused as to how the sarcoidosis directlty caused the diabetes -- not my meds like last time. The docs believe the sarc has spread through all of those organs involved, so I wonder if there are granulomas in my pancreas intefering with the process. I had excessive dry mouth, but I don't know it that's excessive thirst, plus it's been that way for four years. Also, the only time I have been terribly hungry was when I was taking ritalin -- when that stuff wore off I could eat like I was on steroids again -- one of the reasons I stopped taking ritalin. I have always (since adolesdcence) had to eat every few hours -- but in small amounts -- usually healthy carbs and lately more sugar than normal, but that IS because of the sarc -- everything except sweets tastes terrible -- even my most favorite foods -- they all taste either rancid or like dirt. If I didn't eat when I got the warning signals (dizziness, nausea), I was in for a stay in bed with a massive stomache ache (they started me on the six small meals a day when I had an ulcer at twelve).When my immuno first was shown (by me, after examining a three months of biweekly blood labs) that my blood sugar was always over two hundred and sometimes over three hundred (he passed the buck on missing that, because his assistant went on medical leave). He told me I was glucose INTOLERANT. I didn't read about that in this interesting website. The immuno wasn't going to put me on insulin, but thank god the endocrinologist didn't agree. At least I don't have to worry about more damage to my pancreas, kidneys (which are spilling obscene amounts of protien in my blood -- not that I eat much protein -- but the new diet only alows me to have six to eight oz total each day).The bad thing? for all of my adult life I have had to wake up in the middle of the night and get a small bowl of cereal or a granola bar to keep from throwing up. Now I am not supposed to eat after my bedtime reading until my before breakfast reading. It has lowered my fasting BS, but I feel just terrible in the morning and the pain in my liver or pancreas (right side under ribs and sticking out into tmy abdominal cavity, On palpation there are very hard and very painful spots. I have an appointment with the nephroilogist October 21, but with the GI on Dec. 29. Basically, my immuno sees no hurry in my seeing these docs because he sees the only effective treatment as getting the sarc back under control.I sure hope I feel better quick. I have bootstraps to make!!!Rose wrote: Hi, guys. I found a nifty website. It's great for answering kids' questions, but also for adults! All kinds of interesting stuff, medical, mechanical, nature, you name it. You night owls might want to check it out. I'm one of those people who like to browse through dictionaries & encyclopedias, so this is right up my alley. www.howstuffworks.com. Hope you enjoy it. It's as much fun as the urban myth sites and more educational! Curious Rose My Inbox is protected by SPAMfighter2318 spam mails have been blocked so far.Download free SPAMfighter today!~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
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