Guest guest Posted August 25, 2004 Report Share Posted August 25, 2004 -I wish there were a clinical study on Rilutek for PLS to justify spending $800 a month. Do you know where I could find 'evidence " about this? edith -- In PLS-FRIENDS , " Thomson " <mdmfoo@y...> wrote: > Edith, there is some evidence that Rulitek could have a better > result for those with PLS than those with ALS, due to the upper > motor neuron involvement, and Rulitek's neuro protective > capabilities for the upper neurons. I have a study that shows > preliminary results with MRS studies. If I could take it, I would, > but liver disease patients aren't allowed to take Rulitek. Bummer! > > > > > Does anyone on this board take Rilutek? I took it when dx'd with > > ALS, but don't know if anyone with PLS takes it. I have no drug > > insurance and the medication costs $800 a month, so I surely don't > > want to take it if I don't have to. Thanks. > > Edith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2004 Report Share Posted August 25, 2004 -I wish there were a clinical study on Rilutek for PLS to justify spending $800 a month. Do you know where I could find 'evidence " about this? edith -- In PLS-FRIENDS , " Thomson " <mdmfoo@y...> wrote: > Edith, there is some evidence that Rulitek could have a better > result for those with PLS than those with ALS, due to the upper > motor neuron involvement, and Rulitek's neuro protective > capabilities for the upper neurons. I have a study that shows > preliminary results with MRS studies. If I could take it, I would, > but liver disease patients aren't allowed to take Rulitek. Bummer! > > > > > Does anyone on this board take Rilutek? I took it when dx'd with > > ALS, but don't know if anyone with PLS takes it. I have no drug > > insurance and the medication costs $800 a month, so I surely don't > > want to take it if I don't have to. Thanks. > > Edith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2004 Report Share Posted August 25, 2004 , what else slows PLS? Donna " Edith " <edith@v...> wrote: > -I wish there were a clinical study on Rilutek for PLS to justify > spending $800 a month. Do you know where I could find 'evidence " > about this? > edith > > " Thomson " <mdmfoo@y...> wrote: > > Edith, there is some evidence that Rulitek could have a better > > result for those with PLS than those with ALS, due to the upper > > motor neuron involvement, and Rulitek's neuro protective > > capabilities for the upper neurons. I have a study that shows > > preliminary results with MRS studies. If I could take it, I would, > > but liver disease patients aren't allowed to take Rulitek. Bummer! > > > > " Edith " <edith@v...> wrote: > > > Does anyone on this board take Rilutek? I took it when dx'd with > > > ALS, but don't know if anyone with PLS takes it. I have no drug > > > insurance and the medication costs $800 a month, so I surely > don't > > > want to take it if I don't have to. Thanks. > > > Edith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2004 Report Share Posted August 25, 2004 , what else slows PLS? Donna " Edith " <edith@v...> wrote: > -I wish there were a clinical study on Rilutek for PLS to justify > spending $800 a month. Do you know where I could find 'evidence " > about this? > edith > > " Thomson " <mdmfoo@y...> wrote: > > Edith, there is some evidence that Rulitek could have a better > > result for those with PLS than those with ALS, due to the upper > > motor neuron involvement, and Rulitek's neuro protective > > capabilities for the upper neurons. I have a study that shows > > preliminary results with MRS studies. If I could take it, I would, > > but liver disease patients aren't allowed to take Rulitek. Bummer! > > > > " Edith " <edith@v...> wrote: > > > Does anyone on this board take Rilutek? I took it when dx'd with > > > ALS, but don't know if anyone with PLS takes it. I have no drug > > > insurance and the medication costs $800 a month, so I surely > don't > > > want to take it if I don't have to. Thanks. > > > Edith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2004 Report Share Posted August 25, 2004 > , what else slows PLS? > Donna Donna, I wish I know for sure. I think living a good, stress free life, getting all the rest your body needs and praying for a cure! Very soon we should have more options. Until then, we pray. Quote Link to comment Share on other sites More sharing options...
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