Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Hi everyone, Hope you are all having a good and as pain-free day as possible. I went to UPMC Presby today and had the autonomic test done. It was very odd. As odd as it sounds actually. When I came out my husband was joking that my arms looked like " some kind of blood sucking martian " attacked me. Well, that was where they strapped the cups to me to collect the sweat that the test stimulated. My arms did have these very big odd looking suction cup marks on them. Anyway, I'm not sure what it showed. One part I thought was strange was that the temperature of my right arm, which is the bad arm & usually feels cold to me, was actually warmer than my left arm by a few degrees. Who knows??? I called my neurologist after the appt. and instead of waiting for 6 weeks for an appointment, they are going to try and get me in next week. That is because I am not on anything for pain right now since I could not take the neurontin. I'm also waiting for a call back from my disability advocate to get the 1st appt. set up. I'm also seeing a lawyer about how my employer treated my return to work with restrictions request. Oh, well ... the waiting continues.... Take care, Sandy T. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Sandy, Yeah, that does sound odd! I never had that done to me thankfully! I'm glad to hear that it's over though. At least you can get in and see the doctor sooner than expected. Neurontin is NOT a Pain medication. Neurontin is an anti-seizure medication that is to help stop Epileptic Seizures for those with Epilepsy, and, has been used for off-label uses such as Muscle Spasms for those with RSD. Tonia -------Original Message------- Hi everyone,Hope you are all having a good and as pain-free day as possible. I went to UPMC Presby today and had the autonomic test done. It was very odd. As odd as it sounds actually. When I came out my husband was joking that my arms looked like "some kind of blood sucking martian" attacked me. Well, that was where they strapped the cups to me to collect the sweat that the test stimulated. My arms did have these very big odd looking suction cup marks on them. Anyway, I'm not sure what it showed. One part I thought was strange was that the temperature of my right arm, which is the bad arm & usually feels cold to me, was actually warmer than my left arm by a few degrees. Who knows??? I called my neurologist after the appt. and instead of waiting for 6 weeks for an appointment, they are going to try and get me in next week. That is because I am not on anything for pain right now since I could not take the neurontin. I'm also waiting for a call back from my disability advocate to get the 1st appt. set up. I'm also seeing a lawyer about how my employer treated my return to work with restrictions request.Oh, well ... the waiting continues....Take care,Sandy T. ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2004 Report Share Posted June 15, 2004 Sandy T., I'm glad things went ok for you today even though you still have to wait for the results. I know what you mean about the temp. thing though. My foot sometimes feels like it is as cold as ice on the inside, but when I (very gently) touch it, the skin feels hot. Other times it's the other way around. Mostly though, it's as hot on the outside as the inside feels! I'm happy for you to be seeing the doc so soon! Good luck! Good luck with your apps. with the disibility advocate & lawyer also! Hopefully you won't have too much longer to wait so that you can go on living the best that you can! I'm still Praying for a cure, Faith > >Reply-To: RSD-CRPSofAmerica >To: RSD-CRPSofAmerica >Subject: Autonomic Test Done Today >Date: Mon, 14 Jun 2004 22:54:27 -0000 > >Hi everyone, >Hope you are all having a good and as pain-free day as possible. I >went to UPMC Presby today and had the autonomic test done. It was >very odd. As odd as it sounds actually. When I came out my husband >was joking that my arms looked like "some kind of blood sucking >martian" attacked me. Well, that was where they strapped the cups to >me to collect the sweat that the test stimulated. My arms did have >these very big odd looking suction cup marks on them. Anyway, I'm >not sure what it showed. One part I thought was strange was that the >temperature of my right arm, which is the bad arm & usually feels >cold to me, was actually warmer than my left arm by a few degrees. >Who knows??? I called my neurologist after the appt. and instead of >waiting for 6 weeks for an appointment, they are going to try and get >me in next week. That is because I am not on anything for pain right >now since I could not take the neurontin. > >I'm also waiting for a call back from my disability advocate to get >the 1st appt. set up. I'm also seeing a lawyer about how my employer >treated my return to work with restrictions request. > >Oh, well ... the waiting continues.... > >Take care, >Sandy T. > Get fast, reliable Internet access with MSN 9 Dial-up – now 3 months FREE! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2004 Report Share Posted June 15, 2004 >Neurontin is NOT a Pain medication. Neurontin is an anti-seizure medication >that is to help stop Epileptic Seizures for those with Epilepsy, and, has >been used for off-label uses such as Muscle Spasms for those with RSD. Tonia, Thanks for the info. I did not do well on neurontin; at a dose of only 300 mg I was having trouble walking and standing. At 600 mg it got bad enough that I called my neurologist. He took me off it. It really didn't do anything for me other than make me feel like I'm drunk. That won't do since I'm still working. I don't think it did anything else, but I probably was not on it long enough to make a difference. I have an appt. with an occupational therapist tomorrow, but that is also going to present me with a problem at work. The OT specialist hours are only until 4:30 every day and that means I will have to miss work to go. It seems as if since I came back from 3 weeks off on short-term disabilty that my supervisor is being unusually hard on me for taking DR. appts and also on my back constantly about getting things done. This didn't happen before my leave. It's no wonder my depression has gotten worse. I see my therapist tonight so I hope to talk through my frustrations. This board is defintely a help with this too. It amazes me that so many people who don't know me at all, are so willing to lend a helpful ear. It is what I need - and I'm sure what most need on the board ) Thanks again to everyone! Sandy T. http://www.connecttime.net Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2004 Report Share Posted June 15, 2004 >Neurontin is NOT a Pain medication. Neurontin is an anti-seizure medication >that is to help stop Epileptic Seizures for those with Epilepsy, and, has >been used for off-label uses such as Muscle Spasms for those with RSD. Tonia, Thanks for the info. I did not do well on neurontin; at a dose of only 300 mg I was having trouble walking and standing. At 600 mg it got bad enough that I called my neurologist. He took me off it. It really didn't do anything for me other than make me feel like I'm drunk. That won't do since I'm still working. I don't think it did anything else, but I probably was not on it long enough to make a difference. I have an appt. with an occupational therapist tomorrow, but that is also going to present me with a problem at work. The OT specialist hours are only until 4:30 every day and that means I will have to miss work to go. It seems as if since I came back from 3 weeks off on short-term disabilty that my supervisor is being unusually hard on me for taking DR. appts and also on my back constantly about getting things done. This didn't happen before my leave. It's no wonder my depression has gotten worse. I see my therapist tonight so I hope to talk through my frustrations. This board is defintely a help with this too. It amazes me that so many people who don't know me at all, are so willing to lend a helpful ear. It is what I need - and I'm sure what most need on the board ) Thanks again to everyone! Sandy T. http://www.connecttime.net Quote Link to comment Share on other sites More sharing options...
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