Guest guest Posted August 15, 2000 Report Share Posted August 15, 2000 informative! Now isn't it cruel to ask me to make a fist?! lol I think really my main concern is hand damage. being a musician for obvious reasons. Hmmmm so ideally if I work on building my muscles through some good excercise and tai chi (for joint fluidity) I potentially could halt any damage. Here's a question I'm 26 to be completely affected with P and PA am I young? Seems this hits mosts people harder when they are older. Are there also more women affected than men? -Adriel > Hi Adriel in MA > I want you to make two fists with your hands, as if you were about to step > into the Boxing Ring. > Gillian Moderator 2cents worth: I have found that using clay helps the fingers. You might want to get some Playdoh and " exercise " the fingers. The Laboratory I work in had some clay samples that I've been processing these past months and the fingers are doing much better. Pat B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2000 Report Share Posted August 15, 2000 >At that stage I was already having spine > problems and kept falling asleep at work? Just as well I had my own Office! > I never thought falling asleep for one solid hour would be part of PA, until > 1993, when I fell asleep for two entire days! I was ignoring symptoms at the > time and 'pushing on' with life regardless. Falling asleep? is this a common symptom? I keep passing out letter in the afternoon. I know it's not my antihistamine becuase, I am so used to it. -Adriel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2000 Report Share Posted August 15, 2000 I was diagnosed at 27, after several years of denying that I could possibly have arthritis. Re: [ ] Joint Damage Here's a question I'm 26 to be completely affected with P and PA amI young? Seems this hits mosts people harder when they are older. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2000 Report Share Posted August 16, 2000 I was diagnosed at 22. When it hit, it hit completely and hard. It's slowed over the years; I'm 32 now. --- Becky Raine <braine@...> wrote: > I was diagnosed at 27, after several years of > denying that I could possibly have arthritis. > Re: [ ] Joint Damage > > > Here's a question I'm 26 to be completely affected > with P and PA am > I young? Seems this hits mosts people harder when > they are older. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2000 Report Share Posted August 16, 2000 I was 21 when I had a car accident and knew there was something very wrong....I was " officially " diagnosed at 22. >From: " Becky Raine " <braine@...> >Reply- egroups >< egroups> >Subject: Re: [ ] Joint Damage >Date: Tue, 15 Aug 2000 20:35:20 -0700 > >I was diagnosed at 27, after several years of denying that I could possibly >have arthritis. > Re: [ ] Joint Damage > > > Here's a question I'm 26 to be completely affected with P and PA am > I young? Seems this hits mosts people harder when they are older. ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2000 Report Share Posted August 16, 2000 Adriel, I was 19 when I was first hit with PA. in St. Louis MO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2002 Report Share Posted May 28, 2002 " Joint damage " depends a lot on who is reading the x-rays, too. I had x-rays of my feet and the podiatrist said they showed arthritic changes and pointed out here and here and here. Because the x-rays were made at the hospital, a radiologist had to review them as well and in his repofrt he said my feet were completely normal. My question becomes, did the podiatrist " see " something so he had reason to justify his expensive treatments or does the radiologist " not see " things that are of no interest or are so subtle he misses or with which he has no experience? I also recently had more foot x-rays and the doc, this time an orthopedist, said the x-rays were entirely normal. Because I raised a fuss he ordered a tech-99 bone scan and lo and behold, all of a sudden I have all kinds of arthritis and inflammation and yes, now he can see on the x-rays, it was there all the time. So maybe it's worth finding out who is interpreting the x-rays and what their bias is before believing anything you're told. I get copies and second opinions when I can. It's way more of an art than a science, reading x-rays, I think. _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2004 Report Share Posted April 26, 2004 I'm trying to find out more information about joint damage while on the AP therapy. As it is suggested, not to remain on DMARDS or anti- inflammitories while immersing oneself into the Antiboitic Protocol, and from a previous post on this message board regarding joint damage I am deeply concerned. My RA has always been active, I've never experienced a " remission " period during the 7 years I've had this disease. I have extensive joint damage in my wrists at present and my fingers on my right hand (dominant) are slowly drifting. I would think it would be wise to stay on a low dose DMARD perhaps just to be sure? If anyone has any links or info....it would be muchly appreciated. Thank you Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 Hi Holly! Geoff here. You wrote: > [snip] As it is suggested, not to remain on DMARDS or anti- > inflammitories while immersing oneself into the Antiboitic Protocol, > and from a previous post on this message board regarding joint damage > I am deeply concerned. [snip] More careful reading on your part will reveal that although it is generally better to avoid anti-inflammatories, DMARDS, and the like, it __IS__ sometimes necessary to take them while on the AP. If you find yourself in that situation, the key is in finding the least amount of the least damaging agent that works for you as an individual. There used to be some very effective herbal compounds that worked for the majority of people, but unfortunately they are no longer being made and what is out there is back to the old it-and-miss. For some people this may be prednisone, for others bromelain, for others diet. Every single person on this planet is different and while it might make things easier if we were all the same, it is a testimony to the complexity and exquisite beauty of life that your treatment must be tailored to you, Holly, not to Bob, nor , nor Jane. The AP is also a long-haul therapy. Unlike symptomatic relief which may occur as fast as a few minutes depending on the individual and the drug used, it is not all that uncommon for this therapy not to " present " obvious results for months, or even years. And, results are __usually__ incrementally progressive. Suddenly you can do something you couldn't do, but not other things yet. Then later, something else shows up. Incremental improvement should be celebrated, not disregarded, as it heralds deeper healing. Healing is not an option with symptomatic treatment as is usually offered by most physicians and Rheumatologists. The AP is not much use if you are in so much pain you cannot stay with it. It's also not of much use if you end up the classic patient: The operation was a success but the patient died. You will want to address your diet, repairing the intestinal tract (aloe), repairing your adrenals (Systemic Formulas kit), repairing your cartilage (glucosamine), repairing your bone erosion and redensification (Ethical Nutrients Bone Builder), repopulating the beneficial bacteria in your digestive tract (probiotics), and detoxification (FAQ at the main rheumatic site). You may well find the reason you have never experienced any relief other than by drugs is that many, most or all of these basic steps have never been addressed. Don't feel alone; these steps are not normally presented by Doctors as none require Rx's. No Rx's required means three things: #1 - no money in them; #2 - no med school training in them; and #3 - the state does not feel a physician's expertise is required to advise on them. Interestingly, these things also occur in the order given and dictated as a rule of precedence, i.e., #1 forces #2 which forces #3. Geoff soli Deo gloria www.HealingYou.org - Your nonprofit source for remedies and aids in fighting these diseases, information on weaning from drugs, and nutritional kits for repairing adrenal damage; 100% volunteer staffed. (Courtesy: Captain Cook's www.800-800-cruise.com) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 > There used to be some very effective herbal compounds that worked for the > majority of people, but unfortunately they are no longer being made and what > is out there is back to the old it-and-miss. For some people this may be > prednisone, for others bromelain, for others diet. Every single Please be careful about combining Bromelain and Minocin. I took the two for over two years after my surgery in 2001 and the flare that started after the surgery did not stop. Two of my doctors missed the fact that Bromelain causes the tetracyclines to be eliminated from the system very quickly. A pharmacist, trained in allopathic and naturopathic medicines alerted me to this fact. Needless to say, I no longer take Bromelain. (RA 25+ years, AP since Nov. 97) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 wrote: > [snip] Two of my doctors missed the fact that Bromelain > causes the tetracyclines to be eliminated from the system very quickly. Three more caveats about bromelain per se: #1: It can cause intestinal bleeding just like an NSAID or aspirin; and #2: It doesn't work for most people, although I think Harald on this has had good results with it in the past; and #3: It must be taken on an empty stomach. Many people know bromelain commonly comes from pineapple, but they don't realize it comes from the stem, not the fruit. Geoff soli Deo gloria www.HealingYou.org - Your nonprofit source for remedies and aids in fighting these diseases, information on weaning from drugs, and nutritional kits for repairing adrenal damage; 100% volunteer staffed. (Courtesy: Captain Cook's www.800-800-cruise.com) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 This could be true because from my metho days, I remember my rheumatologist specified that I was to take folic acid (1gm) once a week only and on a day that I didn't take the methotrexate. But it is VERY important to take folic acid as metho depletes it from our systems. (RA 25+ years, AP since Nov. 97) Re: rheumatic Re: Joint Damage > In a message dated 4/28/2004 12:02:46 PM Eastern Standard Time, > mholmes@... writes: > Where did you read that oral MTX builds up in your system while > taking folic acid? > I'm not sure where I read it as I can't find the website right now. However, > the pharmacist confirmed this is true. At the same time, the low dosage > given for RA should not be problematic he said. And also, as I said before, > injections bypass the liver. > > Boy it does get confusing! > > <<My understanding is that MTX is a folic acid > antagonist and will deplete stores of folic acid>> Yes it's true, but if you > overdo the folic acid you run the risk of having low B-12. Vicious circle. > Here's a link to a good article on MTX and folate.Facts About Folate or > http://www.cc.nih.gov/ccc/supplements/folate.html > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Just adding my experience with MTX - I am convinced, although my rheumie isn't, that it was the reason for the complete destruction of all healthy intestinal flora and fauna. Health is dependent upon a healthy intestional track so for me that drug even on low dosage was not a good choice. Two years later we are still working at getting fixing this imbalance. Something to think about. Re: rheumatic Re: Joint Damage > In a message dated 4/28/2004 12:02:46 PM Eastern Standard Time, > mholmes@... writes: > Where did you read that oral MTX builds up in your system while > taking folic acid? > I'm not sure where I read it as I can't find the website right now. However, > the pharmacist confirmed this is true. At the same time, the low dosage > given for RA should not be problematic he said. And also, as I said before, > injections bypass the liver. > > Boy it does get confusing! > > <<My understanding is that MTX is a folic acid > antagonist and will deplete stores of folic acid>> Yes it's true, but if you > overdo the folic acid you run the risk of having low B-12. Vicious circle. > Here's a link to a good article on MTX and folate.Facts About Folate or > http://www.cc.nih.gov/ccc/supplements/folate.html > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 In a message dated 4/28/2004 3:30:21 PM Eastern Standard Time, niki5@... writes: Just adding my experience with MTX - I am convinced, although my rheumie isn't, that it was the reason for the complete destruction of all healthy intestinal flora and fauna. Health is dependent upon a healthy intestional track so for me that drug even on low dosage was not a good choice. Two years later we are still working at getting fixing this imbalance. Something to think about. That could be. I never really had a big problem with yeast until I took Remicade, so I'm convinced that's what destroyed mine. (I had been on MTX and pred for a year before that, and still am.) But then some of the things in food can be problematic, and not taking acidophilous can let the bad stuff grow wild. So many things have to be in balance. I think I've finally got the yeast under control, and I take a lot of acidophilous. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 > This could be true because from my metho days, I remember my rheumatologist > specified that I was to take folic acid (1gm) once a week only and on a day > that I didn't take the methotrexate. But it is VERY important to take folic > acid as metho depletes it from our systems. > > > (RA 25+ years, AP since Nov. 97) An interesting link on folic acid (good info for everyone) is also at http://www.olaloa.com/article06.htm Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 I asked my rheumy the same thing during my last flare. " will I eventually need to be on disability? " He also said no with a smile of course.....casey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 On my last visit I showed my doc my joints which had swollen knots and I asked him if IT was getting worse. Yes I was concerned. and he said " oh that isn't the PA that is osteo arthritis. so a lot of us just have both. ....casey Quote Link to comment Share on other sites More sharing options...
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