Re: off topic/Patti

[Guest guest]

Patti:

God bless you and your family: you have been here from day #1 and I commend

you with all the effort you have made to bring our children to wellness and

healing.

I have been on this SCD list for almost a year and can remember when Elaine

was a daily presence and this list was so, so small in comparison to today.

Given that Elaine has thrown her hat into the Autism One and DAN! " ring " , as

it were, you can certainly understand the frustration that is arising in

that the SCD is so " integral " in the recovery, yet the " whole " of the effective

recovery modalities cannot be discussed on this list. Like Kim, I also have

a big heart and would like to assist as many families as possible given that

our son has made such incredible strides with what we are implementing and

know that others would benefit from our knowledge base.

It would be wonderful if we could come up with a list that pertains to SCD &

ASD so that more children can be helped to full recovery (there are

thousands that need this resource). I would be willing at this time to assist

in

this matter. Although I am well-read at the natural approaches to autism (ie:

homeopathy, commencing my formal training in July), I have maintained a basic

diet of eggs, meat and veggies for my son so the intricacies of the SCDiet,

in creative terms, evade me. Suggestions?

Jacquie

This is an SCD list...... but is not really an autism list. Yes, the

majority of list members are ASD families..... but.... it is really, more

specifically, a children's SCD list. It's for any and all children (and their

parents/caregivers) who have gut disorders, such as UC, Crohn's, etc..... not

just

for kids with autism.

[Guest guest]

<<It would be wonderful if we could come up with a list that pertains to SCD &

ASD>>

Jacquie,

All I can say is that there are already a number of autism lists that discuss

all kinds of healing/recovery modalities.... SCD being one of those topics. I

know that this particular list will remain as it is..... dedicated to SCD for

all kids who need it. Ours is the only one that has approval from Elaine.... and

to whom we can turn with difficult cases and questions..... and I know she

would not agree to having this list become one that is exclusively for autism.

At one point, there was a separate list for beginners but it was too much

workload for the number of people trying to moderate both. I would just hope

that everyone can remember how overwhelming it is when you're new to SCD... you

need to focus on that subject in order to learn all you can about implementing

it correctly. There are a ton of questions and concerns at that point. It really

is essential for those parents to have a source of info that is dedicated to

SCD.... and doesn't go off into many different directions. At least, that's my

opinion. I know that, as someone suggested yesterday I think, the Healing Crow

group is one that is an SCD list but is really open to all kinds of other

discussion and divergence from topic. That *might* be a good place for some to

turn.... it's an advanced list but has the benefit of some very knowledgeable

and seasoned SCD veterans there to answer questions. There won't be a perfect

fit for everyone on any one list.

Another issue is all the parents that take the digest form of our list. The

volume of mail from this list is so overwhelming that quite a few people have no

choice but to take the digest. Every time someone forgets to trim a post to the

most relevant info, posts something off topic, posts a short response without

trimming off the entire string of original posts, etc.... it makes the digest

just PAINFUL to get through. I feel so sorry for anyone who is trying to read

the list that way! My apologies to all of you digest subscribers that you're

even having to read THIS! I'll head back to the pool now.... where I have Katera

AND both my granddaughters (ages 4 & 2) splashing up the place.

Patti

[Guest guest]

> <<It would be wonderful if we could come up with a list that pertains to SCD

& ASD>>

>

I know that, as someone suggested yesterday I think, the Healing Crow group is

one that is an SCD list but is really open to all kinds of other discussion and

divergence from topic. That *might* be a good place for some to turn.... it's an

advanced list but has the benefit of some very knowledgeable and seasoned SCD

veterans there to answer questions. There won't be a perfect fit for everyone on

any one list.

>

I checked out the Healing Crow messages for June and there is little about SCD

at the moment.

Carol F.

[Guest guest]

if you're not in good with max the scd poster dog you are in trouble.

basically the board has the same issues as scd info, too med oriented.

i cannot understand the mentality that derives social status from

seeing doctors and getting operations

there are some occasional very useful posts.

> > <<It would be wonderful if we could come up with a list that

pertains to SCD & ASD>>

> >

> I know that, as someone suggested yesterday I think, the Healing

Crow group is one that is an SCD list but is really open to all kinds

of other discussion and divergence from topic. That *might* be a good

place for some to turn.... it's an advanced list but has the benefit

of some very knowledgeable and seasoned SCD veterans there to answer

questions. There won't be a perfect fit for everyone on any one list.

> >

> I checked out the Healing Crow messages for June and there is

little about SCD at the moment.

>

> Carol F.