Re: Sex issues

[Guest guest]

I wonder

if it’s a combination of all our drugs. When I was on my short IV steroid

burst this past weekend, I got tell you, “it was magic, best ever”

wish I could bottle it. Because; when the steroids settle down so does

everything else, and then all the meds. Sometimes it helps if I put off

my night meds until after a little fooling around, sometimes it makes a difference,

and sometimes it doesn’t?? Of course then there is hormones,

fatigue, etc….

But I’m

thinking getting an IV steroid burst every now and then might be good for a lot

of things, I have been feeling better, still tired, but less pain, a lot

less. I didn’t get the super charged up this time like I usually

do, same dose and all, but I think like all the other drugs, that might have to

be increased too?

Lets

keep working on this, and share what works for one, it just might work for

another. Worth trying!!

God

Bless,

Marla

Re:

Sex issues

In a

message dated 4/14/2005 11:40:47 P.M. Eastern Standard Time, tiodaat@...

writes:

That's odd, , I'm praying for

impotence!!!...LOL!?!?...SNIFFLE, SNIFFLE, SNIFFLE...actually, I'm praying for

" feeling like it " ...good luck to you and yours!!!

Envying your desire! and apologizing if offending anyone, but

hey...this is something many of us deal with...,

Joan, you are so right-- the issue of sex

and intimacy is something that all of us deal with. We all want both the

sex and the intimacy, but medications, pain, exhaustion, all seem to get in the

way.

I know that since I've increased my Neurontin-- I'm not making it to orgasm--

and I hate it. Is anyone else having this problem since they've been on

Neurontin?

btw--it is perfectly ok to talk about this subject. it might be uncomfortable,

but it is ok.

Yes,

but I was thinking it was the Paxil and Nortryptilline...I am on 3000 mgs of

Neurontin now, and the problem has gotten worse since starting it...damn, that

Neurontin...more sniffles ... and I'm not sure who is sniffling more ... my

husband or me...

Joan

BTW, I

was beginning to think I was alone tonite...I finally make it to the computer

and no one is on!...more sniffles?!?...just kidding...I hope you are all home,

comfy, and resting...

" I believe that friends are quiet angels who lift us to our feet when our

wings have trouble remembering how to fly. "

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[Guest guest]

Yes, Joan, it is perfectly all right to talk about s-e-x. When I started my midwifery training, I got embarrassed just asking women about their periods. And we had to ask whether they experienced orgasm, discuss various positions, etc. At first, I just was ready to quit the program, but I persevered and now I could walk up to some guy on the street & talk about proper used of condoms. My favorite trick I learned from my first partner, Bethel. She had a woman who kept getting STD's because her partner wouldn't get treated & "couldn't" use a condom because he was "too big." Well, Bethel just went on with the visit, after getting a condom from the supply room. Without saying a word about it, she began to work that condom up over her clenched fist, all the way to her elbow. The woman's eyes got bigger & bigger, but Bethel just continued getting her history & discussing problems & treatments. Then she suddenly held her arm out & asked, "How big did you say he was?" The woman just gasped, then laughed & said, "Not that big." I love visual aids. Rose

Re: Sex issues

That's odd, , I'm praying for impotence!!!...LOL!?!?...SNIFFLE, SNIFFLE, SNIFFLE...actually, I'm praying for "feeling like it"...good luck to you and yours!!!Envying your desire! and apologizing if offending anyone, but hey...this is something many of us deal with...,Joan, you are so right-- the issue of sex and intimacy is something that all of us deal with. We all want both the sex and the intimacy, but medications, pain, exhaustion, all seem to get in the way. I know that since I've increased my Neurontin-- I'm not making it to orgasm-- and I hate it. Is anyone else having this problem since they've been on Neurontin? btw--it is perfectly ok to talk about this subject. it might be uncomfortable, but it is ok. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Yes, Joan, it is perfectly all right to talk about s-e-x. When I started my midwifery training, I got embarrassed just asking women about their periods. And we had to ask whether they experienced orgasm, discuss various positions, etc. At first, I just was ready to quit the program, but I persevered and now I could walk up to some guy on the street & talk about proper used of condoms. My favorite trick I learned from my first partner, Bethel. She had a woman who kept getting STD's because her partner wouldn't get treated & "couldn't" use a condom because he was "too big." Well, Bethel just went on with the visit, after getting a condom from the supply room. Without saying a word about it, she began to work that condom up over her clenched fist, all the way to her elbow. The woman's eyes got bigger & bigger, but Bethel just continued getting her history & discussing problems & treatments. Then she suddenly held her arm out & asked, "How big did you say he was?" The woman just gasped, then laughed & said, "Not that big." I love visual aids. Rose

Re: Sex issues

That's odd, , I'm praying for impotence!!!...LOL!?!?...SNIFFLE, SNIFFLE, SNIFFLE...actually, I'm praying for "feeling like it"...good luck to you and yours!!!Envying your desire! and apologizing if offending anyone, but hey...this is something many of us deal with...,Joan, you are so right-- the issue of sex and intimacy is something that all of us deal with. We all want both the sex and the intimacy, but medications, pain, exhaustion, all seem to get in the way. I know that since I've increased my Neurontin-- I'm not making it to orgasm-- and I hate it. Is anyone else having this problem since they've been on Neurontin? btw--it is perfectly ok to talk about this subject. it might be uncomfortable, but it is ok. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

we had to ask whether they experienced orgasm, discuss various positions, etc. At first, I just was ready to quit the program, but I persevered

LOL! Well, being the warped person I am-- I read "persevered" as pervert???? Man I love how this disease has made my brain "dance to it's own drummer" or is that "dumber."

[Guest guest]

Rose, That is hilarious! I had no idea they could stretch THAT much! lol S.Rose wrote:

Yes, Joan, it is perfectly all right to talk about s-e-x. When I started my midwifery training, I got embarrassed just asking women about their periods. And we had to ask whether they experienced orgasm, discuss various positions, etc. At first, I just was ready to quit the program, but I persevered and now I could walk up to some guy on the street & talk about proper used of condoms. My favorite trick I learned from my first partner, Bethel. She had a woman who kept getting STD's because her partner wouldn't get treated & "couldn't" use a condom because he was "too big." Well, Bethel just went on with the visit, after getting a condom from the supply room. Without saying a word about it, she began to work that condom up over her clenched fist, all the way to her elbow. The woman's eyes got bigger & bigger, but Bethel just continued getting her history &

discussing problems & treatments. Then she suddenly held her arm out & asked, "How big did you say he was?" The woman just gasped, then laughed & said, "Not that big." I love visual aids. Rose

Re: Sex issues

That's odd, , I'm praying for impotence!!!...LOL!?!?...SNIFFLE, SNIFFLE, SNIFFLE...actually, I'm praying for "feeling like it"...good luck to you and yours!!!Envying your desire! and apologizing if offending anyone, but hey...this is something many of us deal with...,Joan, you are so right-- the issue of sex and intimacy is something that all of us deal with. We all want both the sex and the intimacy, but medications, pain, exhaustion, all seem to get in the way. I know that since I've increased my Neurontin-- I'm not making it to orgasm-- and I hate it. Is anyone else having this problem since they've been on Neurontin? btw--it is perfectly ok to talk about this subject. it might be uncomfortable, but it is ok. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database