Celiac disease/ Type 1 diabetes and SCD

August 8, 2004

I hope someone here can offer some insight.

I am looking into starting the SCD for my son (2 1/2) -- possible ASD,

no diagnosis yet. Even if he is not officially on the spectrum his

damaged GI system is of much concern (persistent diarrhea, gas, etc).

I also have a daughter who was dx. with type 1 diabetes (at age 11

months) and Celiac disease (at 20 months). As you can see autoimmune

diseases are running rampant around here. While my daughter is growing

and is a very happy child her tests keep coming back with elevated

antibodies for gluten (her last test was at 120 for anyone who knows

about this), I believe that <20 is considered normal. She was " off the

charts " at Celiac disease diagnosis 2 years ago so has been coming down

but very slowly. l am very concerned about this and I wonder if the SCD

would benefit her.

After all this background, my main question is...

Does anyone have any insight as to whether this diet could be used for

someone with Type 1 diabetes?? Has this been addressed here? I can see

how it could greatly benefit someone with type 2 diabetes but what about

type 1 (insulin dependent, my daughter wears an insulin pump 24/7). I

have always been told that complex carbs are needed by people with type

1 diabetes (in moderation) because these foods are slow to metabolize so

they help to " stabilize " blood sugars.

Any one have any thoughts?

Thanks!

Sue

August 8, 2004

Just from reading your post, I say, please give the SCD a try! I

believe it will benefit you greatly. My son was off the charts on

gluten too, at 150 which was 5X the high amount. He is doing MUCH

better. We are celiac too, and this diet is a must for us. We still

have to eliminate some things like tomato, citrus, berries, etc.

until more healing occurs, but it will.

I have read that diabetes go hand in hand with celiac a lot of times,

so chances are if you tackle the ROOT of the problem, the others will

get better too.

Here's to finding a blessing in this diet. We certainly have, though

difficult at times, I won't try to cover that up, especially

beginning, but you will see so many good things, you will be totally

convinced to stay the course. I'll be glad to encourage you and help

you any time.

God bless you,

Tina SCD 4 months with boys Abraham 3 and Micah 1 all celiac

> I hope someone here can offer some insight.

>

> I am looking into starting the SCD for my son (2 1/2) -- possible

ASD,

> no diagnosis yet. Even if he is not officially on the spectrum his

> damaged GI system is of much concern (persistent diarrhea, gas,

etc).

>

> I also have a daughter who was dx. with type 1 diabetes (at age 11

> months) and Celiac disease (at 20 months). As you can see

autoimmune

> diseases are running rampant around here. While my daughter is

growing

> and is a very happy child her tests keep coming back with elevated

> antibodies for gluten (her last test was at 120 for anyone who knows

> about this), I believe that <20 is considered normal. She was " off

the

> charts " at Celiac disease diagnosis 2 years ago so has been coming

down

> but very slowly. l am very concerned about this and I wonder if

the SCD

> would benefit her.

>

> After all this background, my main question is...

>

> Does anyone have any insight as to whether this diet could be used

for

> someone with Type 1 diabetes?? Has this been addressed here? I can

see

> how it could greatly benefit someone with type 2 diabetes but what

about

> type 1 (insulin dependent, my daughter wears an insulin pump

24/7). I

> have always been told that complex carbs are needed by people with

type

> 1 diabetes (in moderation) because these foods are slow to

metabolize so

> they help to " stabilize " blood sugars.

>

> Any one have any thoughts?

> Thanks!

> Sue

>

August 9, 2004

Sue,

Your question was forwarded on to Elaine Gottschall...... and this is her reply:

**************************************************

<<I am so busy this a.m. that I have not had a chance to go to my own website

and look up pancreas.But I dooooo believe that I have posted a comment on it.

However, if not, please be advised that I have ALWAYS FELT that with

type 1 diabetes and also intestinal disease, the two are related.

Firstly, the pancreas of human being has two main types of cells: (1)

acinar cells which produce digestive enzymes (lipase, amylase, and

trypsin) and (2) islet (beta) cells (Islet of Langerhans) which produce

insulin. One way of looking at this amazing organ, the pancreas, is that

altho doctors are trained not to connect dots, I feel that overutilizing

one type of cell can affect the other type of cell (you cannot squeeze

blood out of a stone so by requiring, for example, that babies digest

starch (which they cannot before one year of age and are given pablum

you are wearing out the acinar cells which may act as a detriment to the

proper functioning of the islet cells). That is just a speculation.

Mainstream medicine, of course, believes the islet cells are killed by a

virus but SCD is showing day by day that SCD can clear some viruses as

well as bacteria. The glycemic index and the information you have about

complex carbs (starch) is all wrong in my way of thinking. The research

was not done properly and no one investigated the fact that altho these

complex carbs were not raising blood sugar erratically, that they were

NOT BEING DIGESTED AND ABSORBED AT ALL. I wrote to the orginal

researchers doing work on the glycemic index and they told me that they

WERE NOT TESTING FOR COMPLETE DIGESTIBILITY and whether or not these

carbs were growing intestinal bacteria.>>

****************************************

Hope that helps.... you might want to double check her website and use the

search feature.

Patti, mom to Katera, SCD 14 months