Re: Sorry I haven't posted in awhile....

[Guest guest]

Debbie,

I so totally understand. We fight and fight and fight to find MD's that will take us seriously- know that we WANT TO GET WELL, and help us to decipher the articles that we bring in so that the common folk we are, can understand what is going on.

Instead of giving you the "pick yourself up, dust yourself off, tye your laces and get on with it" I want you to know that it's okay for you to be too tired to get up, get dressed, and rest.

I want you to know that i care.

Tracie

[Guest guest]

Debbie,

I so totally understand. We fight and fight and fight to find MD's that will take us seriously- know that we WANT TO GET WELL, and help us to decipher the articles that we bring in so that the common folk we are, can understand what is going on.

Instead of giving you the "pick yourself up, dust yourself off, tye your laces and get on with it" I want you to know that it's okay for you to be too tired to get up, get dressed, and rest.

I want you to know that i care.

Tracie

[Guest guest]

Thanks Joan for the response. luv, Debbiepickstands@... wrote:

Hi Debbie,

I am listening!...and you do not sound mixed up or ditzy at all ... or I am just as mixed up and ditzy and understood everything you said quite clearly (which I normally do not do!). I've spent the morning on the phone with nurses, doctors, hospitals, and insurance companies much more mixed up and ditzy than us!...I actually got one insurance co. rep whose mother has sarc...she was the one person who understood exactly what I was saying!

I'm sorry you have had such a rough time...and will add you to my "daily list"...boy, it sure is getting long!

Feel better soon!,

Joan~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Thanks Joan for the response. luv, Debbiepickstands@... wrote:

Hi Debbie,

I am listening!...and you do not sound mixed up or ditzy at all ... or I am just as mixed up and ditzy and understood everything you said quite clearly (which I normally do not do!). I've spent the morning on the phone with nurses, doctors, hospitals, and insurance companies much more mixed up and ditzy than us!...I actually got one insurance co. rep whose mother has sarc...she was the one person who understood exactly what I was saying!

I'm sorry you have had such a rough time...and will add you to my "daily list"...boy, it sure is getting long!

Feel better soon!,

Joan~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database