Re: SAME info for all interested

[Guest guest]

Tricia,

I am not offended that you "withheld" the information, it is just a bit to take in at once. I know how hard all that typing must of been for you. So if you have this there are no pain relievers that you can take? I am so sorry that you and Barb have to suffer with RSD and SAME. I will pray for the both of you that you may be able to find a treatment that will help both problems.

take care and I hope you pain is less today ( which is Sunday) I am just way behind on my emails.

Lin

[Guest guest]

Lin - Just to clarify....For me, it's up in the air as to whether or not I have SAME. The doc seems to believe that I may have it, but it's not conclusive....at least as far as this stubborn Irish woman is concerned Given that I have just now started on the opiod treatment, he wants me off all of the meds that may kick it sky-high. Sooooo off of the clonidine, flexeril, and lisinopril. We're just have to kinda scramble to replace some of the meds. The flexeril wasn't a major issue since I am also on heavy doses of valium for the muscle spasms that tend to be a significant problem for me. Treating my blood pressure spikes, however, might be trickier. All in all, though, if in fact I do have SAME, I'm glad that he caught it before it became a huge problem for me (lol...or maybe it was a big issue and this head-buried-in-the-sand person had just been chalking up the symptoms to other things). I give up.

Barbara wrote:

Tricia,

I am not offended that you "withheld" the information, it is just a bit to take in at once. I know how hard all that typing must of been for you. So if you have this there are no pain relievers that you can take? I am so sorry that you and Barb have to suffer with RSD and SAME. I will pray for the both of you that you may be able to find a treatment that will help both problems.

take care and I hope you pain is less today ( which is Sunday) I am just way behind on my emails.

Lin

[Guest guest]

Barbara,

Don't mean to be nosey, but ask your doctor about Nifedipine for blood pressure. Does really well in RSD patients. I was recently put on it, and helps more than any other medication I am on. Just a thought.

DawnBARBARA TORREY wrote:

Lin - Just to clarify....For me, it's up in the air as to whether or not I have SAME. The doc seems to believe that I may have it, but it's not conclusive....at least as far as this stubborn Irish woman is concerned Given that I have just now started on the opiod treatment, he wants me off all of the meds that may kick it sky-high. Sooooo off of the clonidine, flexeril, and lisinopril. We're just have to kinda scramble to replace some of the meds. The flexeril wasn't a major issue since I am also on heavy doses of valium for the muscle spasms that tend to be a significant problem for me. Treating my blood pressure spikes, however, might be trickier. All in all, though, if in fact I do have SAME, I'm glad that he caught it before it became a huge problem for me (lol...or maybe it was a big issue and this head-buried-in-the-sand person had just been chalking up the symptoms to other things). I give up.

Barbara wrote:

Tricia,

I am not offended that you "withheld" the information, it is just a bit to take in at once. I know how hard all that typing must of been for you. So if you have this there are no pain relievers that you can take? I am so sorry that you and Barb have to suffer with RSD and SAME. I will pray for the both of you that you may be able to find a treatment that will help both problems.

take care and I hope you pain is less today ( which is Sunday) I am just way behind on my emails.

Lin

[Guest guest]

Not nosy at all, Dawn. I'll mention it and have them check against the list of meds that I have to avoid. Thanks for your concern. Bdawn lorenz wrote:

Barbara,

Don't mean to be nosey, but ask your doctor about Nifedipine for blood pressure. Does really well in RSD patients. I was recently put on it, and helps more than any other medication I am on. Just a thought.

DawnBARBARA TORREY wrote:

Lin - Just to clarify....For me, it's up in the air as to whether or not I have SAME. The doc seems to believe that I may have it, but it's not conclusive....at least as far as this stubborn Irish woman is concerned Given that I have just now started on the opiod treatment, he wants me off all of the meds that may kick it sky-high. Sooooo off of the clonidine, flexeril, and lisinopril. We're just have to kinda scramble to replace some of the meds. The flexeril wasn't a major issue since I am also on heavy doses of valium for the muscle spasms that tend to be a significant problem for me. Treating my blood pressure spikes, however, might be trickier. All in all, though, if in fact I do have SAME, I'm glad that he caught it before it became a huge problem for me (lol...or maybe it was a big issue and this head-buried-in-the-sand person had just been chalking up the symptoms to other things). I give up. !

Barbara wrote:

Tricia,

I am not offended that you "withheld" the information, it is just a bit to take in at once. I know how hard all that typing must of been for you. So if you have this there are no pain relievers that you can take? I am so sorry that you and Barb have to suffer with RSD and SAME. I will pray for the both of you that you may be able to find a treatment that will help both problems.

take care and I hope you pain is less today ( which is Sunday) I am just way behind on my emails.

Lin