Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 " At that point we decided to implement the Jill protocol and introduced Folinic Acid and TMG. We saw a huge but very short-lived improvement which was followed by a loss of all his language skills and a 3 month headbanging spree. " Seems that the only things you changed was implementing the above protocol. Please elaborate on the exact ingredients of the TMC/Folinic Acid. Since this seems to have triggered this terrible regression. Or IS there anything else you added/changed, like the yoghurt starter or another supplement? Marjan Netherlands Mom to Nick, asd, 7, SCD since jan 18 2003 , 9 Finn, 4 http://specificfoodsforspecificminds.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 > > > " I know I have woven a mysterious and complicated tale but if anyone > out there can figure it out I'd love to hear from you! I miss his words. " > > One of the hardest parts of trying to help your autistic child is trying to figure out what is working, what is not and why. I have been going through that for years with my daughter. We want to relate what they are eating or supplements to behaviors but sometimes I think it can be other things. She is 9 now, but when she was little like your child she did a LOT of head banging, head picking, hair pulling out! She had bald spots on her head. She had a lot of ear and sinus infections and finally the ear tubes helped with that, but feel sometimes that they may have headaches, sinus problems, seasonal allergy problems, earaches, the full moon or whatever but they cannot tell you or describe it. They are head banging for a reason. Frustration, self-stimulatory issues, or lots of other things. Auditory training has helped her quite a bit and I am thinking about Cranial-Sacral as well. She does not head bang or pull hair anymore but know she can benefit from that therapy. Who know how they feel inside and out and how frustrating it can be to be " locked in " and not be able to communicate your feelings. I have always heard that when they are about to make significant gains there is a downward spiral like a rollercoaster beforehand........it's the nature of development. I am glad he is doing better but hope you see that great progess of language return soon. Kathy mom to Hannah-13, Abby-9, ASD, UC and SCD restarted 4 weeks ago > > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 We used the Kirkman's TMG and Folinic Acid. They are SCD legal and have nothing else added. We also went off them shortly after because he was doing badly. We use Custom Probiotics Yogurt Starter. > " At that point we decided to implement the Jill protocol and > introduced Folinic Acid and TMG. We saw a huge but very short-lived > improvement which was followed by a loss of all his language skills > and a 3 month headbanging spree. " > > Seems that the only things you changed was implementing the above > protocol. Please elaborate on the exact ingredients of the > TMC/Folinic Acid. Since this seems to have triggered this terrible > regression. Or IS there anything else you added/changed, like the > yoghurt starter or another supplement? > > Marjan > Netherlands > Mom to Nick, asd, 7, SCD since jan 18 2003 > , 9 > Finn, 4 > http://specificfoodsforspecificminds.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
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