Guest guest Posted October 22, 2004 Report Posted October 22, 2004 In a message dated 10/22/2004 4:28:33 PM Eastern Standard Time, curlyrachel2001@... writes: > so are you saying that the effects of the dosage increase don't show > up within two weeks? maybe that's a good thing, since she might be > willing to raise me with the labs lower, even artificially. > someone is teaching you well. cindi Quote
Guest guest Posted October 22, 2004 Report Posted October 22, 2004 In a message dated 10/22/2004 4:28:33 PM Eastern Standard Time, curlyrachel2001@... writes: > i just don't have the energy to do the big doctor hunt, > you know? > totally understand. I've been self-medicating for a while just so i could get well enough to do the doctor hunt. cindi Quote
Guest guest Posted October 22, 2004 Report Posted October 22, 2004 Hi . Going from 1/2 grain to one grain is a fine increase. And it's too bad your Endo wasn't knowledgeable enough to raise your dose long before 5 weeks. That's too long to be on such a low dose--- it causes your hypo to return. The same will be true on the one grain--don't let him hang that on you for so long! Most folks can go up to 2 grains fairly quickly--staying on each raise for a few weeks only. At 2-2 1/2 grains, it can be wise to hold each raise for at least 4 weeks to see the effect of the T4-buildup and it's conversion to T3. Is your Ferritin optimal? That will be important to prevent problems as you get higher. Keep in the back of your mind that before labs came out, folks were dosed entirely by symptoms and very successfully...and the average minimum dose was 3 grains and higher. I am not saying that you will end up needing that much (though you might), but it's a reminder that we can often take a bit more Armour than we realize for optimal results. Keep us informed! Janie > so, on november 19th, i go in to see my endo again > after 1 month (well, it will be 5 weeks by then) on > 30mg (1/2 grain) of armour. unless something radical > happens in the next four weeks, i will be asking her > to increase my dose. how should that happen? is > going from 30 to 60 too big a jump? do i need to go > to 45 first? for how long? how long do we need to > wait between dosage increases? > > thanks so much in advance. > > rachel. Quote
Guest guest Posted October 22, 2004 Report Posted October 22, 2004 > > Hi . Going from 1/2 grain to one grain is a fine increase. And > it's too bad your Endo wasn't knowledgeable enough to raise your > dose long before 5 weeks. That's too long to be on such a low dose-- - > it causes your hypo to return. The same will be true on the one > grain--don't let him hang that on you for so long! Most folks can go > up to 2 grains fairly quickly--staying on each raise for a few weeks > only. At 2-2 1/2 grains, it can be wise to hold each raise for at > least 4 weeks to see the effect of the T4-buildup and it's > conversion to T3. it's really been a long time to be on a low dose when you consider that i was on 50mcg of synthroid for 2.5 months before she switched me to armour. i lost 11% of my free t3 in that period, while my TSH dropped from 1.2 to .38. very frustrating. here's my concern however: i suspect that this endo will want to test before any increase. will 2 weeks be enough time for the bloodwork to show what's happening? of course, if i wait two weeks, then do bloodwork then see her, it's still 3 weeks between appointments. > Is your Ferritin optimal? That will be important to prevent problems > as you get higher. i have no idea, and i'm reluctant to ask her to test anything else at this point. she tested my cortisol and at 9.6 (am, fasting) she thought it was fine. i did not, but when i asked about it, she said that no further tests were warranted and my insurance wouldn't pay for them. makes me reluctant to ask her about anything else. rachel. Quote
Guest guest Posted October 22, 2004 Report Posted October 22, 2004 > here's my concern however: i suspect that this endo will want to >test before any increase. will 2 weeks be enough time for the >bloodwork to show what's happening? of course, if i wait two >weeks, then do bloodwork then see her, it's still 3 weeks between >appointments. The real rub here is that you have a typical Endo who views labwork as from God. And as long as that's the case, you will have problems, since raising sooner has nothing to do with the results of labs, nor will labs help at all. > (concerning Ferritin) i have no idea, and i'm reluctant to ask her >to test anything else at this point. she tested my cortisol and at >9.6 (am, fasting) she thought it was fine. i did not, but when i >asked about it, she said that no further tests were warranted and >my insurance wouldn't pay for them. makes me reluctant to ask her >about anything else. , you need another doc. This one sucks. ( You need to get your Ferritin tested, and if you have any suspicions about the state of your adrenals, you need a 24 hour saliva test. Where do you live? Perhaps someone here knows of a good doc. Have you checked out the Armour LOCATE-A-DOC for you area in the LINKS section? Even then, you have to call ahead and make sure they test the frees/will happily prescribe Armour/will let you dose by symptoms. And...if worse comes to worse....you can do what so many folks here do successfully....self labs and self-treat. Janie Quote
Guest guest Posted October 22, 2004 Report Posted October 22, 2004 > The real rub here is that you have a typical Endo who views labwork > as from God. And as long as that's the case, you will have problems, > since raising sooner has nothing to do with the results of labs, nor > will labs help at all. so are you saying that the effects of the dosage increase don't show up within two weeks? maybe that's a good thing, since she might be willing to raise me with the labs lower, even artificially. > , you need another doc. This one sucks. ( You need to get > your Ferritin tested, and if you have any suspicions about the state > of your adrenals, you need a 24 hour saliva test. why do i need the ferritin checked? what's the connection? as for the adrenals, i am lucky enough to have a nutritionist that advises me on my health too. he said that with my cortisol, it is possible that the reason it's where it is is because of the stress my thyroid being out of whack is putting on it, and that if we get that sorted out, they should have a chance to heal. i am comfortable with that answer for now, given that my cortisol isn't any lower. i could do the saliva tests, but this particular endo wont give them any credit, so there's no point really until i'm ready to leave her or get the nutritionist to help me treat with isocort or something similiar. i appreciate your suggestion, and i know that time will likely come, given the odds. however, at this time, i am not ready to try to find another doctor. first, i think it's premature. this doctor has listened to me. she changed me to armour at my request and she is now, again at my request, consistently testing my free t's along with tsh. i think that it is worth my time to see if i can find success with her. also, i think that finding the perfect doctor is going to be kind of like winning the lottery. i'm in touch with a brilliant group of ladies in texas but the fact is, the pickings are slim and the only doctor in the entire state with a truly glowing reccomendation is over 10 hours away from me by car. that's just not realistic for me, and i'm not ready to leave this doc yet to try to find the needle in a haystack. i just don't have the energy to do the big doctor hunt, you know? the only doctors in my area that even get marginally ok ratings are GPs and i love my GP. i dont want to lose her. with my insurance, i can't get a referral to another GP, it has to be to a specialist. if she wont up my armour when i go in to see her on the 19th, then i will try my GP. if that doesn't work, then i will consider the question of whether or not i should self treat. Quote
Guest guest Posted October 22, 2004 Report Posted October 22, 2004 what was the range of cortisol? Also if you were just starting on thyroid meds 10 weeks is a bit long but not that much on just t4. The issue is just t4 was the wrong start. Also, are you on iron, estrogen, calcium? > >Reply-To: NaturalThyroidHormones >To: NaturalThyroidHormones >Subject: Re: how to increase armour? >Date: Fri, 22 Oct 2004 18:45:24 -0000 have no idea, and i'm reluctant to >ask her to test anything else at this point. she tested my cortisol and at 9.6 (am, fasting) she thought it was fine. i did not, but when i asked about it, she said that no further tests were warranted and my insurance wouldn't pay for them. makes me reluctant to ask her about anything else. > Quote
Guest guest Posted October 22, 2004 Report Posted October 22, 2004 I take calcium/magnesium amoung other suppliments. I was only on thyroid for 10 DAYS the longest, not 10 WEEKS. > what was the range of cortisol? Also if you were just starting on thyroid > meds 10 weeks is a bit long but not that much on just t4. The issue is just > t4 was the wrong start. Also, are you on iron, estrogen, calcium? > > >From: " " <curlyrachel2001@y...> > >Reply-To: NaturalThyroidHormones > >To: NaturalThyroidHormones > >Subject: Re: how to increase armour? > >Date: Fri, 22 Oct 2004 18:45:24 -0000 have no idea, and i'm reluctant to > >ask her to test anything else at > this point. she tested my cortisol and at 9.6 (am, fasting) she > thought it was fine. i did not, but when i asked about it, she said > that no further tests were warranted and my insurance wouldn't pay > for them. makes me reluctant to ask her about anything else. > > > > > > > Quote
Guest guest Posted October 22, 2004 Report Posted October 22, 2004 > what was the range of cortisol? range was 4-22 for an am test, 3-17 for a pm test. > Also if you were just starting on thyroid > meds 10 weeks is a bit long but not that much on just t4. The issue is just > t4 was the wrong start. with my labs at the time ( " normal " tsh, t4 and free t3) that i was just happy to have her prescribe me something! that in itself seemed like a miracle at the time, given some of the horror stories i've heard. i figured i'd give it a chance, and if i wasn't happy, i'd ask for a change. i waited 2 months because that's what she originally suggested. i wanted to establish that i wasn't just trying to run the show but was willing to give it a try. thankfully, she changed me to armour. > Also, are you on iron, estrogen, calcium? i am not on iron (except what's in my multivitamin) or estrogen. between my multivitamin and additional supplments, i take 1650mg of calcium a day (and 800IU of vitamin D). what's up with the iron? i feel like i'm missing something. rachel. Quote
Guest guest Posted October 23, 2004 Report Posted October 23, 2004 I am sorry, but I don't remember your original result on cortisol, can you please post them all together? Also you say your tsh was normal. Normal would be 1 maybe 2 at the highest. Was that what it was? The bit about iron is that low ferritin can cause many issues that feel like low thyroid as can low estrogen and progesterone, but taking iron or claium pills close to the thyroid by 4 hours can block the thyroid. Also, some people feel fine on just 50 mgs of thyroid is they are in the beginning of Hashi or just a fatigued thyroid like after a baby. > >Reply-To: NaturalThyroidHormones >To: NaturalThyroidHormones >Subject: Re: how to increase armour? >Date: Sat, 23 Oct 2004 02:16:52 -0000with my labs at the time ( " normal " >tsh, t4 and free t3) that i was just happy to have her prescribe me something! that in itself seemed like a miracle at the time, given some of the horror stories i've heard. i figured i'd give it a chance, and if i wasn't happy, i'd ask for a change. i waited 2 months because that's what she originally suggested. i wanted to establish that i wasn't just trying to run the show but was willing to give it a try. thankfully, she changed me to armour. >Also, are you on iron, estrogen, calcium? i am not on iron (except what's in my multivitamin) or estrogen. between my multivitamin and additional supplments, i take 1650mg of calcium a day (and 800IU of vitamin D). what's up with the iron? i feel like i'm missing something. > Quote
Guest guest Posted October 23, 2004 Report Posted October 23, 2004 > > I am sorry, but I don't remember your original result on cortisol, can you > please post them all together? sure. my am fasting cortisol was 9.6. range for am was 4-22. range for a pm test was 3-17. > Also you say your tsh was normal. Normal would be 1 maybe 2 at the highest. > Was that what it was? it was 1.2. here are my results: 7/1 numbers (prior to diagnosis, but after months of symptoms): T4: 7.1 Middle of the range = 8.5 (below mid) FT3: 3.7 Middle of the range = 3.25 (slightly above mid) TSH: 1.2 (range .3 - 5.1) TPO antibodies: >70 (range <2) 9/29 numbers: FT4 1.1 Middle of the range = 1.3 (below mid) FT3 347 Middle of the range = 325 (slightly above mid) (-6.63% from 7/1) TSH: .35 (range .4 - 5.5) 10/11 Numbers: FT4 1.1 Middle of the range = 1.3 (below mid) FT3 329 Middle of the range = 325 (barely above mid)(-5.18% from 9/29, -11% from 7/1) TSH: .38 (range .4 - 5.5) > The bit about iron is that low ferritin can cause many > issues that feel like low thyroid as can low estrogen and progesterone, i haven't had my estrogen or progesterone tested, only my testosterone and DHEA S. testosterone, total: 15ng/dL (lab lists normal for premenopausal women as 15-70ng/dL) this is way too low for me at 29. % free testosterone: 2.24 (lab lists normal for premenopausal women as .05-1.8) testosterone, free: 3.4 pg/mL (lab lists normal for premenopausal women as 1.0-8.5pg/mL) DHEA S: 517 (lab lists normal as 62-615) > but > taking iron or claium pills close to the thyroid by 4 hours can block the > thyroid. yep. that's why i wait to take my multivitamin and first calcium supplement until lunch (i take my thyroid at 5am). i take the second calcium supplement at dinner. >Also, some people feel fine on just 50 mgs of thyroid is they are > in the beginning of Hashi or just a fatigued thyroid like after a baby. i am definately NOT one of those people. my pituitary has responded to the low dose by not sending out nearly enough TSH, so my thyroid is making less thyroid and i'm ending up with less free t3 than i had before i was on medication. i'm hoping that the armour will help, but i'm also pretty sure i will need a higher dose. rachel. Quote
Guest guest Posted October 23, 2004 Report Posted October 23, 2004 Many top docs feel that thyroid tests are unnecessary and invalid when you have antibodies. You must dose my symptoms only. Have you seen the article on this by Dr. Woliner on mary shomans site? My husband always had a low tsh, and I always knew he was hypo. Until we tested for antibodies, we would have never known he did need the armour. He is doing very well on it. I only wish he had gotten on it years ago. nne * > Also you say your tsh was normal. Normal would be 1 maybe 2 at the highest. > Was that what it was? it was 1.2. here are my results: 7/1 numbers (prior to diagnosis, but after months of symptoms): T4: 7.1 Middle of the range = 8.5 (below mid) FT3: 3.7 Middle of the range = 3.25 (slightly above mid) TSH: 1.2 (range .3 - 5.1) TPO antibodies: >70 (range <2) ubject to the Quote
Guest guest Posted October 23, 2004 Report Posted October 23, 2004 In a message dated 10/23/2004 6:24:45 PM Eastern Standard Time, starz@... writes: > I noticed you posted middle of the range, and a number, but not what I'm > used to seeing such as in mine i'm going to post: > sandy...some of the free labs look that way..just add a zero andpush over the decimal point to the end... i.e. 2.0 is 200. cindi Quote
Guest guest Posted October 23, 2004 Report Posted October 23, 2004 , Go to the about.com site and type in " all bets are off antibodies " as key words and you will pull the article up. I am in the same boat as you. My T levels are way worse since starting thyroid meds than they were before that, yet I feel better than I did when i was NOT on meds. Perfect example of how you treat by symptoms and not labs. Now I have these miserable labs and need to get them up. I still problems with fatigue, irritablity etc..., but nothing like how I was 8 months ago or so. Even my mother-in-law and father-in-law were telling me last night how horrible I looked and how my mind frame has changed for the better. I guess I was really morose and depressed. > > > > Many top docs feel that thyroid tests are unnecessary and invalid > when you > > have antibodies. You must dose my symptoms only. > > i have heard this alluded to, but have never been able to find > anything written about it. > > > > Have you seen the article on this by Dr. Woliner on mary shomans site? > > > i found an article that was about a patient named michelle, and a > conversation woliner had with her about the different tests. is that > the one you are referring to? i wish that i could find one that was > more technical, one that my doctor might actually respect, you know? > any suggestions? > > > > My husband always had a low tsh, and I always knew he was hypo. Until we > > tested for antibodies, we would have never known he did need the > armour. He > > is doing very well on it. I only wish he had gotten on it years ago. > > i'm glad that i pushed until the antibodies were tested, otherwise i'd > still be suffering even more with no idea why. but frankly, i don't > know why my doctor is treating me. i don't think it's because i have > antibodies. my suspiscion is that she's only treating me trying to > shrink my goiter and nodules. if they don't shrink, then we go FNA. > > rachel. Quote
Guest guest Posted October 23, 2004 Report Posted October 23, 2004 In a message dated 10/23/2004 6:45:42 PM Eastern Standard Time, starz@... writes: > I finally had to tell her that she needs to come visit with me, and we'll > talk before she lets these guys cut on her wrists to 'fix her carpal tunnel > syndrome', and before she goes to the psych consult they are trying to arrange > for her. sheesh! It's never ending! saving the world is very hard work. cindi Quote
Guest guest Posted October 23, 2004 Report Posted October 23, 2004 > > Now I have these miserable labs and need to get them up. > I still problems with fatigue, irritablity etc..., but nothing like > how I was 8 months ago or so. Even my mother-in-law and father-in-law > were telling me last night how horrible I looked and how my mind frame > has changed for the better. I guess I was really morose and depressed. > that is one thing that has improved. i'm still depressed, fatigued, sore, etc. but i don't feel crazy like i did before starting medication. i mean, i felt so miserably depressed and my thoughts were so foreign to me, i felt like i had someone elses thoughts in my head. at least i am not as desperate as i was then. rachel. Quote
Guest guest Posted October 23, 2004 Report Posted October 23, 2004 > , on your labs tests, does it not give the ranges that your lab used for the FreeT3 and FreeT4? I noticed you posted middle of the range, and a number, but not what I'm used to seeing such as in mine i'm going to post: > > FreeT3 515 (230-420) > FreeT4 1.0 (0.08-1.8) sandy, i did leave out the ranges. i was cutting and pasting from another post! i'm lazy, but i guess that comes with the territory, eh? our ranges are the same. i had looked at the middle of the range to try to figure out what was going on with the labs. rachel. Quote
Guest guest Posted October 23, 2004 Report Posted October 23, 2004 Unfortunately a lot of dr's won't even test antibodies. I know that, but you can get your own test from Myhealthcheckusa. It is around $60. for the antibodies. That is what my Dh did. Totally worth it. nne Quote
Guest guest Posted October 23, 2004 Report Posted October 23, 2004 Unfortunately a lot of dr's won't even test antibodies. I found this out in the 3 yrs I went to Endo's. On my last visit, new Endo tested different antibodies, that nobody ever tested before. TPO was 958 I believe. Trying to get a dr to dose by symptoms, which I surely had meant I had to self medicate or do without. I'm happy to say, the self dosing was just what the dr 'should have ordered'. lol. I have on the other hand learned that more stress may mean I have to dose up a tiny bit as I've had to do this past week. My normal dose didn't seem to be doing me much good, so I upped it 1/2 a grain. So far, all is going well. SandyE~Houston RE: Re: how to increase armour? Many top docs feel that thyroid tests are unnecessary and invalid when you have antibodies. You must dose my symptoms only. Have you seen the article on this by Dr. Woliner on mary shomans site? My husband always had a low tsh, and I always knew he was hypo. Until we tested for antibodies, we would have never known he did need the armour. He is doing very well on it. I only wish he had gotten on it years ago. nne * > Also you say your tsh was normal. Normal would be 1 maybe 2 at the highest. > Was that what it was? it was 1.2. here are my results: 7/1 numbers (prior to diagnosis, but after months of symptoms): T4: 7.1 Middle of the range = 8.5 (below mid) FT3: 3.7 Middle of the range = 3.25 (slightly above mid) TSH: 1.2 (range .3 - 5.1) TPO antibodies: >70 (range <2) ubject to the Quote
Guest guest Posted October 23, 2004 Report Posted October 23, 2004 , on your labs tests, does it not give the ranges that your lab used for the FreeT3 and FreeT4? I noticed you posted middle of the range, and a number, but not what I'm used to seeing such as in mine i'm going to post: FreeT3 515 (230-420) FreeT4 1.0 (0.08-1.8) SandyE~Houston Re: how to increase armour? > Also you say your tsh was normal. Normal would be 1 maybe 2 at the highest. > Was that what it was? it was 1.2. here are my results: 7/1 numbers (prior to diagnosis, but after months of symptoms): T4: 7.1 Middle of the range = 8.5 (below mid) FT3: 3.7 Middle of the range = 3.25 (slightly above mid) TSH: 1.2 (range .3 - 5.1) TPO antibodies: >70 (range <2) 9/29 numbers: FT4 1.1 Middle of the range = 1.3 (below mid) FT3 347 Middle of the range = 325 (slightly above mid) (-6.63% from 7/1) TSH: .35 (range .4 - 5.5) 10/11 Numbers: FT4 1.1 Middle of the range = 1.3 (below mid) FT3 329 Middle of the range = 325 (barely above mid)(-5.18% from 9/29, -11% from 7/1) TSH: .38 (range .4 - 5.5) > The bit about iron is that low ferritin can cause many > issues that feel like low thyroid as can low estrogen and progesterone, i haven't had my estrogen or progesterone tested, only my testosterone and DHEA S. testosterone, total: 15ng/dL (lab lists normal for premenopausal women as 15-70ng/dL) this is way too low for me at 29. % free testosterone: 2.24 (lab lists normal for premenopausal women as .05-1.8) testosterone, free: 3.4 pg/mL (lab lists normal for premenopausal women as 1.0-8.5pg/mL) DHEA S: 517 (lab lists normal as 62-615) > but > taking iron or claium pills close to the thyroid by 4 hours can block the > thyroid. yep. that's why i wait to take my multivitamin and first calcium supplement until lunch (i take my thyroid at 5am). i take the second calcium supplement at dinner. >Also, some people feel fine on just 50 mgs of thyroid is they are > in the beginning of Hashi or just a fatigued thyroid like after a baby. i am definately NOT one of those people. my pituitary has responded to the low dose by not sending out nearly enough TSH, so my thyroid is making less thyroid and i'm ending up with less free t3 than i had before i was on medication. i'm hoping that the armour will help, but i'm also pretty sure i will need a higher dose. rachel. Quote
Guest guest Posted October 23, 2004 Report Posted October 23, 2004 Oh okay! lol. I kept seeing a number, middle of the range, but wasn't really sure what I was looking at? I'm a little brain scrambled today, you'll have to forgive me! lol. I spoke with a good friend of mine today, and while speaking to her, I found out that she is having trouble with carpal tunnel in both hands, major weight gain, already learned she was diabetic a few years ago, and the more I talked to her, the more the depression they now want to send her to a psychiatrist for sounds more like thyroid related stuff than what she's being treated for. I think it set my mind into overdrive. lol. I finally had to tell her that she needs to come visit with me, and we'll talk before she lets these guys cut on her wrists to 'fix her carpal tunnel syndrome', and before she goes to the psych consult they are trying to arrange for her. sheesh! It's never ending! Life is always a party here! lol SandyE~Houston Re: how to increase armour? > , on your labs tests, does it not give the ranges that your lab used for the FreeT3 and FreeT4? I noticed you posted middle of the range, and a number, but not what I'm used to seeing such as in mine i'm going to post: > > FreeT3 515 (230-420) > FreeT4 1.0 (0.08-1.8) sandy, i did leave out the ranges. i was cutting and pasting from another post! i'm lazy, but i guess that comes with the territory, eh? our ranges are the same. i had looked at the middle of the range to try to figure out what was going on with the labs. rachel. Quote
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