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Re: how to increase armour?

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Posted

In a message dated 10/22/2004 4:28:33 PM Eastern Standard Time,

curlyrachel2001@... writes:

> so are you saying that the effects of the dosage increase don't show

> up within two weeks? maybe that's a good thing, since she might be

> willing to raise me with the labs lower, even artificially.

>

someone is teaching you well. :)

cindi

Posted

In a message dated 10/22/2004 4:28:33 PM Eastern Standard Time,

curlyrachel2001@... writes:

> i just don't have the energy to do the big doctor hunt,

> you know?

>

totally understand. I've been self-medicating for a while just so i could

get well enough to do the doctor hunt.

cindi

Posted

Hi . Going from 1/2 grain to one grain is a fine increase. And

it's too bad your Endo wasn't knowledgeable enough to raise your

dose long before 5 weeks. That's too long to be on such a low dose---

it causes your hypo to return. The same will be true on the one

grain--don't let him hang that on you for so long! Most folks can go

up to 2 grains fairly quickly--staying on each raise for a few weeks

only. At 2-2 1/2 grains, it can be wise to hold each raise for at

least 4 weeks to see the effect of the T4-buildup and it's

conversion to T3.

Is your Ferritin optimal? That will be important to prevent problems

as you get higher.

Keep in the back of your mind that before labs came out, folks were

dosed entirely by symptoms and very successfully...and the average

minimum dose was 3 grains and higher. I am not saying that you will

end up needing that much (though you might), but it's a reminder

that we can often take a bit more Armour than we realize for optimal

results.

Keep us informed!

Janie

> so, on november 19th, i go in to see my endo again

> after 1 month (well, it will be 5 weeks by then) on

> 30mg (1/2 grain) of armour. unless something radical

> happens in the next four weeks, i will be asking her

> to increase my dose. how should that happen? is

> going from 30 to 60 too big a jump? do i need to go

> to 45 first? for how long? how long do we need to

> wait between dosage increases?

>

> thanks so much in advance.

>

> rachel.

Posted

>

> Hi . Going from 1/2 grain to one grain is a fine increase.

And

> it's too bad your Endo wasn't knowledgeable enough to raise your

> dose long before 5 weeks. That's too long to be on such a low dose--

-

> it causes your hypo to return. The same will be true on the one

> grain--don't let him hang that on you for so long! Most folks can

go

> up to 2 grains fairly quickly--staying on each raise for a few

weeks

> only. At 2-2 1/2 grains, it can be wise to hold each raise for at

> least 4 weeks to see the effect of the T4-buildup and it's

> conversion to T3.

it's really been a long time to be on a low dose when you consider

that i was on 50mcg of synthroid for 2.5 months before she switched

me to armour. i lost 11% of my free t3 in that period, while my TSH

dropped from 1.2 to .38. very frustrating.

here's my concern however: i suspect that this endo will want to test

before any increase. will 2 weeks be enough time for the bloodwork

to show what's happening? of course, if i wait two weeks, then do

bloodwork then see her, it's still 3 weeks between appointments.

> Is your Ferritin optimal? That will be important to prevent

problems

> as you get higher.

i have no idea, and i'm reluctant to ask her to test anything else at

this point. she tested my cortisol and at 9.6 (am, fasting) she

thought it was fine. i did not, but when i asked about it, she said

that no further tests were warranted and my insurance wouldn't pay

for them. makes me reluctant to ask her about anything else.

rachel.

Posted

> here's my concern however: i suspect that this endo will want to

>test before any increase. will 2 weeks be enough time for the

>bloodwork to show what's happening? of course, if i wait two

>weeks, then do bloodwork then see her, it's still 3 weeks between

>appointments.

The real rub here is that you have a typical Endo who views labwork

as from God. And as long as that's the case, you will have problems,

since raising sooner has nothing to do with the results of labs, nor

will labs help at all.

> (concerning Ferritin) i have no idea, and i'm reluctant to ask her

>to test anything else at this point. she tested my cortisol and at

>9.6 (am, fasting) she thought it was fine. i did not, but when i

>asked about it, she said that no further tests were warranted and

>my insurance wouldn't pay for them. makes me reluctant to ask her

>about anything else.

, you need another doc. This one sucks. :o( You need to get

your Ferritin tested, and if you have any suspicions about the state

of your adrenals, you need a 24 hour saliva test.

Where do you live? Perhaps someone here knows of a good doc. Have

you checked out the Armour LOCATE-A-DOC for you area in the LINKS

section? Even then, you have to call ahead and make sure they test

the frees/will happily prescribe Armour/will let you dose by

symptoms.

And...if worse comes to worse....you can do what so many folks here

do successfully....self labs and self-treat.

Janie

Posted

> The real rub here is that you have a typical Endo who views labwork

> as from God. And as long as that's the case, you will have

problems,

> since raising sooner has nothing to do with the results of labs,

nor

> will labs help at all.

so are you saying that the effects of the dosage increase don't show

up within two weeks? maybe that's a good thing, since she might be

willing to raise me with the labs lower, even artificially.

> , you need another doc. This one sucks. :o( You need to get

> your Ferritin tested, and if you have any suspicions about the

state

> of your adrenals, you need a 24 hour saliva test.

why do i need the ferritin checked? what's the connection?

as for the adrenals, i am lucky enough to have a nutritionist that

advises me on my health too. he said that with my cortisol, it is

possible that the reason it's where it is is because of the stress my

thyroid being out of whack is putting on it, and that if we get that

sorted out, they should have a chance to heal. i am comfortable with

that answer for now, given that my cortisol isn't any lower.

i could do the saliva tests, but this particular endo wont give them

any credit, so there's no point really until i'm ready to leave her

or get the nutritionist to help me treat with isocort or something

similiar.

i appreciate your suggestion, and i know that time will likely come,

given the odds. however, at this time, i am not ready to try to find

another doctor. first, i think it's premature. this doctor has

listened to me. she changed me to armour at my request and she is

now, again at my request, consistently testing my free t's along with

tsh. i think that it is worth my time to see if i can find success

with her.

also, i think that finding the perfect doctor is going to be kind of

like winning the lottery. i'm in touch with a brilliant group of

ladies in texas but the fact is, the pickings are slim and the only

doctor in the entire state with a truly glowing reccomendation is

over 10 hours away from me by car. that's just not realistic for me,

and i'm not ready to leave this doc yet to try to find the needle in

a haystack. i just don't have the energy to do the big doctor hunt,

you know?

the only doctors in my area that even get marginally ok ratings are

GPs and i love my GP. i dont want to lose her. with my insurance, i

can't get a referral to another GP, it has to be to a specialist.

if she wont up my armour when i go in to see her on the 19th, then i

will try my GP. if that doesn't work, then i will consider the

question of whether or not i should self treat.

Posted

what was the range of cortisol? Also if you were just starting on thyroid

meds 10 weeks is a bit long but not that much on just t4. The issue is just

t4 was the wrong start. Also, are you on iron, estrogen, calcium?

>

>Reply-To: NaturalThyroidHormones

>To: NaturalThyroidHormones

>Subject: Re: how to increase armour?

>Date: Fri, 22 Oct 2004 18:45:24 -0000 have no idea, and i'm reluctant to

>ask her to test anything else at

this point. she tested my cortisol and at 9.6 (am, fasting) she

thought it was fine. i did not, but when i asked about it, she said

that no further tests were warranted and my insurance wouldn't pay

for them. makes me reluctant to ask her about anything else.

>

Posted

I take calcium/magnesium amoung other suppliments. I was only on

thyroid for 10 DAYS the longest, not 10 WEEKS.

> what was the range of cortisol? Also if you were just starting on

thyroid

> meds 10 weeks is a bit long but not that much on just t4. The issue

is just

> t4 was the wrong start. Also, are you on iron, estrogen, calcium?

>

> >From: " " <curlyrachel2001@y...>

> >Reply-To: NaturalThyroidHormones

> >To: NaturalThyroidHormones

> >Subject: Re: how to increase armour?

> >Date: Fri, 22 Oct 2004 18:45:24 -0000 have no idea, and i'm

reluctant to

> >ask her to test anything else at

> this point. she tested my cortisol and at 9.6 (am, fasting) she

> thought it was fine. i did not, but when i asked about it, she

said

> that no further tests were warranted and my insurance wouldn't pay

> for them. makes me reluctant to ask her about anything else.

>

> >

>

>

>

>

Posted

> what was the range of cortisol?

range was 4-22 for an am test, 3-17 for a pm test.

> Also if you were just starting on thyroid

> meds 10 weeks is a bit long but not that much on just t4. The issue

is just

> t4 was the wrong start.

with my labs at the time ( " normal " tsh, t4 and free t3) that i was

just happy to have her prescribe me something! that in itself seemed

like a miracle at the time, given some of the horror stories i've

heard. i figured i'd give it a chance, and if i wasn't happy, i'd ask

for a change. i waited 2 months because that's what she originally

suggested. i wanted to establish that i wasn't just trying to run the

show but was willing to give it a try. thankfully, she changed me to

armour.

> Also, are you on iron, estrogen, calcium?

i am not on iron (except what's in my multivitamin) or estrogen.

between my multivitamin and additional supplments, i take 1650mg of

calcium a day (and 800IU of vitamin D).

what's up with the iron? i feel like i'm missing something.

rachel.

Posted

I am sorry, but I don't remember your original result on cortisol, can you

please post them all together?

Also you say your tsh was normal. Normal would be 1 maybe 2 at the highest.

Was that what it was? The bit about iron is that low ferritin can cause many

issues that feel like low thyroid as can low estrogen and progesterone, but

taking iron or claium pills close to the thyroid by 4 hours can block the

thyroid. Also, some people feel fine on just 50 mgs of thyroid is they are

in the beginning of Hashi or just a fatigued thyroid like after a baby.

>

>Reply-To: NaturalThyroidHormones

>To: NaturalThyroidHormones

>Subject: Re: how to increase armour?

>Date: Sat, 23 Oct 2004 02:16:52 -0000with my labs at the time ( " normal "

>tsh, t4 and free t3) that i was

just happy to have her prescribe me something! that in itself seemed

like a miracle at the time, given some of the horror stories i've

heard. i figured i'd give it a chance, and if i wasn't happy, i'd ask

for a change. i waited 2 months because that's what she originally

suggested. i wanted to establish that i wasn't just trying to run the

show but was willing to give it a try. thankfully, she changed me to

armour.

>Also, are you on iron, estrogen, calcium?

i am not on iron (except what's in my multivitamin) or estrogen.

between my multivitamin and additional supplments, i take 1650mg of

calcium a day (and 800IU of vitamin D).

what's up with the iron? i feel like i'm missing something.

>

Posted

>

> I am sorry, but I don't remember your original result on cortisol,

can you

> please post them all together?

sure. my am fasting cortisol was 9.6. range for am was 4-22. range

for a pm test was 3-17.

> Also you say your tsh was normal. Normal would be 1 maybe 2 at the

highest.

> Was that what it was?

it was 1.2. here are my results:

7/1 numbers (prior to diagnosis, but after months of symptoms):

T4: 7.1 Middle of the range = 8.5 (below mid)

FT3: 3.7 Middle of the range = 3.25 (slightly above mid)

TSH: 1.2 (range .3 - 5.1)

TPO antibodies: >70 (range <2)

9/29 numbers:

FT4 1.1 Middle of the range = 1.3 (below mid)

FT3 347 Middle of the range = 325 (slightly above mid) (-6.63% from 7/1)

TSH: .35 (range .4 - 5.5)

10/11 Numbers:

FT4 1.1 Middle of the range = 1.3 (below mid)

FT3 329 Middle of the range = 325 (barely above mid)(-5.18% from 9/29,

-11% from 7/1)

TSH: .38 (range .4 - 5.5)

> The bit about iron is that low ferritin can cause many

> issues that feel like low thyroid as can low estrogen and progesterone,

i haven't had my estrogen or progesterone tested, only my testosterone

and DHEA S.

testosterone, total: 15ng/dL (lab lists normal for premenopausal

women as 15-70ng/dL) this is way too low for me at 29.

% free testosterone: 2.24 (lab lists normal for premenopausal women

as .05-1.8)

testosterone, free: 3.4 pg/mL (lab lists normal for premenopausal

women as 1.0-8.5pg/mL)

DHEA S: 517 (lab lists normal as 62-615)

> but

> taking iron or claium pills close to the thyroid by 4 hours can

block the

> thyroid.

yep. that's why i wait to take my multivitamin and first calcium

supplement until lunch (i take my thyroid at 5am). i take the second

calcium supplement at dinner.

>Also, some people feel fine on just 50 mgs of thyroid is they are

> in the beginning of Hashi or just a fatigued thyroid like after a baby.

i am definately NOT one of those people. my pituitary has responded

to the low dose by not sending out nearly enough TSH, so my thyroid is

making less thyroid and i'm ending up with less free t3 than i had

before i was on medication. i'm hoping that the armour will help, but

i'm also pretty sure i will need a higher dose.

rachel.

Posted

Many top docs feel that thyroid tests are unnecessary and invalid when you

have antibodies. You must dose my symptoms only.

Have you seen the article on this by Dr. Woliner on mary shomans site?

My husband always had a low tsh, and I always knew he was hypo. Until we

tested for antibodies, we would have never known he did need the armour. He

is doing very well on it. I only wish he had gotten on it years ago.

nne

*

> Also you say your tsh was normal. Normal would be 1 maybe 2 at the

highest.

> Was that what it was?

it was 1.2. here are my results:

7/1 numbers (prior to diagnosis, but after months of symptoms):

T4: 7.1 Middle of the range = 8.5 (below mid)

FT3: 3.7 Middle of the range = 3.25 (slightly above mid)

TSH: 1.2 (range .3 - 5.1)

TPO antibodies: >70 (range <2)

ubject to the

Posted

In a message dated 10/23/2004 6:24:45 PM Eastern Standard Time,

starz@... writes:

> I noticed you posted middle of the range, and a number, but not what I'm

> used to seeing such as in mine i'm going to post:

>

sandy...some of the free labs look that way..just add a zero andpush over the

decimal point to the end... i.e. 2.0 is 200.

cindi

Posted

,

Go to the about.com site and type in " all bets are off antibodies " as

key words and you will pull the article up.

I am in the same boat as you. My T levels are way worse since starting

thyroid meds than they were before that, yet I feel better than I did

when i was NOT on meds. Perfect example of how you treat by symptoms

and not labs. Now I have these miserable labs and need to get them up.

I still problems with fatigue, irritablity etc..., but nothing like

how I was 8 months ago or so. Even my mother-in-law and father-in-law

were telling me last night how horrible I looked and how my mind frame

has changed for the better. I guess I was really morose and depressed.

>

>

> > Many top docs feel that thyroid tests are unnecessary and invalid

> when you

> > have antibodies. You must dose my symptoms only.

>

> i have heard this alluded to, but have never been able to find

> anything written about it.

>

>

> > Have you seen the article on this by Dr. Woliner on mary shomans site?

> >

> i found an article that was about a patient named michelle, and a

> conversation woliner had with her about the different tests. is that

> the one you are referring to? i wish that i could find one that was

> more technical, one that my doctor might actually respect, you know?

> any suggestions?

>

>

> > My husband always had a low tsh, and I always knew he was hypo.

Until we

> > tested for antibodies, we would have never known he did need the

> armour. He

> > is doing very well on it. I only wish he had gotten on it years ago.

>

> i'm glad that i pushed until the antibodies were tested, otherwise i'd

> still be suffering even more with no idea why. but frankly, i don't

> know why my doctor is treating me. i don't think it's because i have

> antibodies. my suspiscion is that she's only treating me trying to

> shrink my goiter and nodules. if they don't shrink, then we go FNA.

>

> rachel.

Posted

In a message dated 10/23/2004 6:45:42 PM Eastern Standard Time,

starz@... writes:

> I finally had to tell her that she needs to come visit with me, and we'll

> talk before she lets these guys cut on her wrists to 'fix her carpal tunnel

> syndrome', and before she goes to the psych consult they are trying to arrange

> for her. sheesh! It's never ending!

saving the world is very hard work. :)

cindi

Posted

>

> Now I have these miserable labs and need to get them up.

> I still problems with fatigue, irritablity etc..., but nothing like

> how I was 8 months ago or so. Even my mother-in-law and father-in-law

> were telling me last night how horrible I looked and how my mind frame

> has changed for the better. I guess I was really morose and depressed.

>

that is one thing that has improved. i'm still depressed, fatigued,

sore, etc. but i don't feel crazy like i did before starting

medication. i mean, i felt so miserably depressed and my thoughts

were so foreign to me, i felt like i had someone elses thoughts in my

head. at least i am not as desperate as i was then.

rachel.

Posted

> , on your labs tests, does it not give the ranges that your

lab used for the FreeT3 and FreeT4? I noticed you posted middle of

the range, and a number, but not what I'm used to seeing such as in

mine i'm going to post:

>

> FreeT3 515 (230-420)

> FreeT4 1.0 (0.08-1.8)

sandy, i did leave out the ranges. i was cutting and pasting from

another post! i'm lazy, but i guess that comes with the territory, eh? ;)

our ranges are the same. i had looked at the middle of the range to

try to figure out what was going on with the labs. :)

rachel.

Posted

Unfortunately a lot of dr's won't even test antibodies.

I know that, but you can get your own test from Myhealthcheckusa. It is

around $60. for the antibodies. That is what my Dh did. Totally worth it.

nne

Posted

Unfortunately a lot of dr's won't even test antibodies. I found this out in the

3 yrs I went to Endo's. On my last visit, new Endo tested different antibodies,

that nobody ever tested before. TPO was 958 I believe. Trying to get a dr to

dose by symptoms, which I surely had meant I had to self medicate or do without.

I'm happy to say, the self dosing was just what the dr 'should have ordered'.

lol. I have on the other hand learned that more stress may mean I have to dose

up a tiny bit as I've had to do this past week. My normal dose didn't seem to

be doing me much good, so I upped it 1/2 a grain. So far, all is going well.

SandyE~Houston

RE: Re: how to increase armour?

Many top docs feel that thyroid tests are unnecessary and invalid when you

have antibodies. You must dose my symptoms only.

Have you seen the article on this by Dr. Woliner on mary shomans site?

My husband always had a low tsh, and I always knew he was hypo. Until we

tested for antibodies, we would have never known he did need the armour. He

is doing very well on it. I only wish he had gotten on it years ago.

nne

*

> Also you say your tsh was normal. Normal would be 1 maybe 2 at the

highest.

> Was that what it was?

it was 1.2. here are my results:

7/1 numbers (prior to diagnosis, but after months of symptoms):

T4: 7.1 Middle of the range = 8.5 (below mid)

FT3: 3.7 Middle of the range = 3.25 (slightly above mid)

TSH: 1.2 (range .3 - 5.1)

TPO antibodies: >70 (range <2)

ubject to the

Posted

, on your labs tests, does it not give the ranges that your lab used for

the FreeT3 and FreeT4? I noticed you posted middle of the range, and a number,

but not what I'm used to seeing such as in mine i'm going to post:

FreeT3 515 (230-420)

FreeT4 1.0 (0.08-1.8)

SandyE~Houston

Re: how to increase armour?

> Also you say your tsh was normal. Normal would be 1 maybe 2 at the

highest.

> Was that what it was?

it was 1.2. here are my results:

7/1 numbers (prior to diagnosis, but after months of symptoms):

T4: 7.1 Middle of the range = 8.5 (below mid)

FT3: 3.7 Middle of the range = 3.25 (slightly above mid)

TSH: 1.2 (range .3 - 5.1)

TPO antibodies: >70 (range <2)

9/29 numbers:

FT4 1.1 Middle of the range = 1.3 (below mid)

FT3 347 Middle of the range = 325 (slightly above mid) (-6.63% from 7/1)

TSH: .35 (range .4 - 5.5)

10/11 Numbers:

FT4 1.1 Middle of the range = 1.3 (below mid)

FT3 329 Middle of the range = 325 (barely above mid)(-5.18% from 9/29,

-11% from 7/1)

TSH: .38 (range .4 - 5.5)

> The bit about iron is that low ferritin can cause many

> issues that feel like low thyroid as can low estrogen and progesterone,

i haven't had my estrogen or progesterone tested, only my testosterone

and DHEA S.

testosterone, total: 15ng/dL (lab lists normal for premenopausal

women as 15-70ng/dL) this is way too low for me at 29.

% free testosterone: 2.24 (lab lists normal for premenopausal women

as .05-1.8)

testosterone, free: 3.4 pg/mL (lab lists normal for premenopausal

women as 1.0-8.5pg/mL)

DHEA S: 517 (lab lists normal as 62-615)

> but

> taking iron or claium pills close to the thyroid by 4 hours can

block the

> thyroid.

yep. that's why i wait to take my multivitamin and first calcium

supplement until lunch (i take my thyroid at 5am). i take the second

calcium supplement at dinner.

>Also, some people feel fine on just 50 mgs of thyroid is they are

> in the beginning of Hashi or just a fatigued thyroid like after a baby.

i am definately NOT one of those people. my pituitary has responded

to the low dose by not sending out nearly enough TSH, so my thyroid is

making less thyroid and i'm ending up with less free t3 than i had

before i was on medication. i'm hoping that the armour will help, but

i'm also pretty sure i will need a higher dose.

rachel.

Posted

Oh okay! lol. I kept seeing a number, middle of the range, but wasn't really

sure what I was looking at? I'm a little brain scrambled today, you'll have to

forgive me! lol.

I spoke with a good friend of mine today, and while speaking to her, I found out

that she is having trouble with carpal tunnel in both hands, major weight gain,

already learned she was diabetic a few years ago, and the more I talked to her,

the more the depression they now want to send her to a psychiatrist for sounds

more like thyroid related stuff than what she's being treated for. I think it

set my mind into overdrive. lol.

I finally had to tell her that she needs to come visit with me, and we'll talk

before she lets these guys cut on her wrists to 'fix her carpal tunnel

syndrome', and before she goes to the psych consult they are trying to arrange

for her. sheesh! It's never ending! Life is always a party here! lol

SandyE~Houston

Re: how to increase armour?

> , on your labs tests, does it not give the ranges that your

lab used for the FreeT3 and FreeT4? I noticed you posted middle of

the range, and a number, but not what I'm used to seeing such as in

mine i'm going to post:

>

> FreeT3 515 (230-420)

> FreeT4 1.0 (0.08-1.8)

sandy, i did leave out the ranges. i was cutting and pasting from

another post! i'm lazy, but i guess that comes with the territory, eh? ;)

our ranges are the same. i had looked at the middle of the range to

try to figure out what was going on with the labs. :)

rachel.

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