Re: Total newbie with 4 yr old ds with UC - wanting to start diet

[Guest guest]

Not being an expert on anything medical at all, I do imagin that a

child who doesn't properly digest anything well probably will do

better when he can really digest fewer foods that actually get around

to providing nutriants. Does that make sense? If he can't digest

anything well eating 50 foods, I would think eating 20 foods and

digesting them well would be better for his over all health.

Eventually, as he heals, more food can be tollerated. Personally I

have seen my child able to eat foods that were restricted before SCD

(eggs) and he is in fact quite sensitive to foods that do not cause

an allergic reaction. He has a very limited diet right now but I

have never seen him so healthy. He has an autism spectrum disorder

and I see his health reflected in different ways, but healthy is

healthy! Really, the specific carb. diet is a very healthy way to

eat. Many people have found they and their families feel better

after adopting this diet as well. My advice is to familiarize

yourself with the various websites, recipies and ideas. I started my

son weeks before my book came through the mail. The people here were

really kind with my endless questions and concerns. Best of luck to

you.

Helen, mom to (ASD, SCD 4/04)

I'm just

> concerned that this diet, minus what he already can't eat, would

> limit his diet too much. Is it possible that once on the diet some

> of the approved foods that have been problems for before would

> be ok? At the time of his UC diagnosis he was allergy tested (RAST

> testing) and was negative for everything. His sensitivities have

to

> be related to his gut and not allergies. Do some people have

> sensitivities so some of the foods on the diet even though they

> are 'approved foods'?

>

> Any advice or encouragement would be greatly appreciated.

>

> Robbie

[Guest guest]

OH thank you for the info! I'm still up at 2am pouring over info on

the various website. I'd love to see my son be able to eat eggs!

He's never even tasted one.

Robbie

> I'm just

> > concerned that this diet, minus what he already can't eat, would

> > limit his diet too much. Is it possible that once on the diet

some

> > of the approved foods that have been problems for before

would

> > be ok? At the time of his UC diagnosis he was allergy tested

(RAST

> > testing) and was negative for everything. His sensitivities

have

> to

> > be related to his gut and not allergies. Do some people have

> > sensitivities so some of the foods on the diet even though they

> > are 'approved foods'?

> >

> > Any advice or encouragement would be greatly appreciated.

> >

> > Robbie

[Guest guest]

Hi Robbie, Welcome to the list,

I was in a situation similar to yours.

Unknown causes (I believe antibiotics were some of my triggers)

would send my UC into a tailspin. Most of the time flares were kept

in control with medications but on a number of occasions I have

been hospitalized. It wasn't until I started SCD that I was able to

get off the merry-go-round.

I was getting to the point where I was afraid to eat or drink.

Everything seemed to cause pain. On those occasions I was put in

the hospital with uncontraollable diarrhea and vomiting. I would go

for two or three days hooked up to an IV not even allowed ice chips.

When I started the diet by cutting out " illegal " food the pain

stopped in it's tracks. The cramps stopped and literally within

*hours* I was able to eat again and the bloody diarrhea cleared.

Nothing short of a miracle.

Eventually as I began absorbing vitamins and minerals from food my

body started to heal itself. I was able to eat foods that

previously caused trouble. It wasn't that I was sensitive to them

but rather my compromised system couldn't handle them. Others have

also reported food sensitivities fading the longer they are on the

diet.

For those who start the diet with " sensitivities " we encourage them

to avoid these food at least at the beginning and if they are

confident that enough healing has taken place they have the option

to try these foods. Many have been pleasantly suprised by the

results.

Some places to get you started until you get your book (many

libraries also carry it):

http://www.breakingtheviciouscycle.info/beginners_guide/beginners.htm

http://pecanbread.com/foodprep.html#intro

http://pecanbread.com/foodprep.html#transition

Hope this helps,

Sheila 40 mos SCD, 20 yrs UC

mom of SCD 25 mos

> I should first say that I haven't bought the book yet. I'm

scared,

> to be honest. My son has had a really restricted diet all his

> life. After antibiotics at 3wks old, he started having bowel

> problems. I was nursing - and after numerous 'he's fine don't

> worry' dr comments, he started having blood in his stool. I did

an

> elimination diet that solved all his problems, but he was never

able

> to eat those foods without problems. Then, more antibiotics at 3

> yrs old and then full blown UC a week later. He has not responded

> to conventional meds. Alternative treatments helped him go from

> severe to mild UC but after a bad case of rotavirus (an intestinal

> virus), he was practically forced to go on meds again. Now he's

> worse than before meds and I'm desperate...

>

> Ok, so here's my concern - and I know I don't have the book so

> please don't bash me for that (since I may be uninformed), but

he's

> already not able to eat: dairy products (cow's milk, cheese,

etc.),

> eggs, citrus, berries, soy (didn't used to be a problem, but now

> is), and peanuts. So, because I know that certain fermented dairy

> products are ok plus eggs (this was such a horrible trigger for

him

> as an infant I have been too scared to give him eggs at all - in

> baked goods, ok, but not directly) and many fruits are ok, I'm

just

> concerned that this diet, minus what he already can't eat, would

> limit his diet too much. Is it possible that once on the diet

some

> of the approved foods that have been problems for before

would

> be ok? At the time of his UC diagnosis he was allergy tested

(RAST

> testing) and was negative for everything. His sensitivities have

to

> be related to his gut and not allergies. Do some people have

> sensitivities so some of the foods on the diet even though they

> are 'approved foods'?

>

> Any advice or encouragement would be greatly appreciated.

>

> Robbie