Guest guest Posted January 13, 2006 Report Posted January 13, 2006 Tim Chin up there you can live for many years I am at year 3 and I have met someone who is well at 10yrs! Things for us are improving especially in aftercare.I was at home after 7 days I was well enough to return to work after 12wks in a garage ( heavy commercial)How old are your children? lifting is a problem and sleeping patterns disturbed for a while but I think with a little support you will be amazed at how quickly you will be able to return to normal. You dont say where you are or where you are treated.I got loads of help here with the group, If I can be of more help to you please shout out. Regards Alison Organ Cheltenham UC72 PSC91TX02 > Message Received: Jan 13 2006, 12:40 PM> From: "flitton2000" > To: > Cc: > Subject: post tx outcomes> > Hi everyone> > I have unfortunately got to the point where I am going to be > admitted for tx assessment. This has focussed my mind a little and I > am trying to find some info on outcome statistics.> > As far as I can see there are various stats on surving a year or 5 > years. (i think there is a 20 - 25% chance of not surving 5 yrs > though others may have other info). > > I cannnot find anything on the chances of living a normal full term > life. I am interestd obviously for stats specific to psc rather than > general transplant stats.> > I am 42 yrs old so I guess outcome stats may depend on what age u > have it done.> I am also a single parent with 3 kids and wd be interested in anyone > who knows how quickly post op it would be possible to look after > kids again.> > Thanks for this wonderful site and all the people who do the hard > work!> > Tim (UK) PSC 01, Uc etc etc> > > > > > > Quote
Guest guest Posted January 13, 2006 Report Posted January 13, 2006 UK Tim: Post transplant differs for everyone...my husband was deathly ill for 4 years prior to transplant, so we thought TRANSPLANT was the answer...once it happened he would magically get well, life would finally get to normal....that is what we were told...HOWEVER, recovery is different for everyone...I don't know of anyone who hasn't had some "bumps in the road" post transplant. Some people go home between the 4th and 7th day post transplant, then someone like my husband wasn't even closed up yet, due to complications during the transplant...we are thankful every day for his second chance at life, but keep in mind that each person recovers at a different pace.... If I had to pull a ballpark number out of the hat of how long before you could truly care of your children (leaving them to go for clinic appointments, blood work, etc.), I would say count on at LEAST 8 weeks of recovery. Of course it depends on the ages of the children. Know that your life will be truly better, it just takes some longer than others.. Bobby & Anne Bobby dx PSC 5-00, transplanted 2-4-04, redx PSC 10-04 Quote
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.