Re: G-tube/diet/recipe...follow up

June 8, 2003

my daughter has apnea seizures when her ketones are low. we call them smiley

seizures, she smiles the whole seizure and then it turns into an apnea. they

wear her out terribly. she has many seizure types too. we have documented

them with a video eeg and they are seizures.

well email me if you have any other questions. my daughter is on the ketocal

version of the g-tube diet.

sincerely,

Tasha

>

>Reply-To: ketogenic

>Subject: G-tube/diet/recipe...follow up

>Date: Sun, 08 Jun 2003 19:57:42 -0000

>

>Hello All,

>My son, Elijah had several seizures last night, and most of them

>included apnea.

>I really need to get his dietician to call us back. We went to

>Cedars in Los Angeles, and perhaps now if I dont hear from them

>soon, I will take him to Lucille Pacard/Stanford. (I actually used to

>work at Stanford Medical Center). I am taking him to a pulmonologist

>for the first time on Wednesday to see if the apnea is something

>other than seizures.

>

>He had a sleep study in December with 29 " events " during 300 minutes

>of sleep.

>

>Has this diet helped anyone with apnea type seizures? He actually has

>all types. He even started laughing before he comes out of some of

>them. One of them was so strange,...he Yelped,as if someone stepped

>on a dogs tail.

>

>Thank you for your kind words.

>

>Terri

>

m

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