Silent Auction

[Guest guest]

Dear All,

While we will all benefit from the excellent line up of experts in

Pittsburgh, we found that there was also time for some fun and

relaxation at the conference last year.

We will have our silent auction again this year and I am already

collecting items.

So far I have a football signed by Coach Carr from the University of

Mi. [should anyone be a Woverine fan], I have a signed copy of the

book Apollo 13 for space fans and we have a donated basket from Whole

Foods for healthier eating. If anyone wants to contribute something

from their state , large or small, please bring it with you if you

are coming to the conference. If you are not coming but still want to

send something please contact me at

ldbria@....

This was really fun last year and the items need not be big or

expensive. Our most sought after item last year was a little " Give

Life " Bear.

Feel free to let people know what you are bringing.

The most important thing is that we show Dr. Lindor and the other

experts that we are committed partners in helping them help us.

Let's make sure that our experts get the audience they should have

because we are so very lucky that they are joining forces with us.

By meeting all of our great members, we help them to know the people

behind the disease. It is different for them to see us all together

in a group rather than a few patients coming through their offices.

There is strength in numbers. So if you are on the fence about coming

to Pittsburgh, please decide to be proactive in learning about your

disease and in participating on how our disease can be better treated.

The information shared last year from patient to patient , caregiver

to caregiver was priceless.

This year I am coming prepared with labels and contact information

for products my son uses. I am interested to see the different brands

of fish oil that are being used.

I'm making my list of questions for both the experts on the podium

and in the audience.

One of my questions, should patients be taking rifampicin with the

urso even if the patient doesn't have itching?

You never know where our questions might take us and the researchers.

Together in the fight , whatever it takes.

Lee