Re: Bonnie- Confusion - Eyes- help long

[Guest guest]

Boy, does that sound familiar. When Di was born-the best opthomologist at

Childrens at the time-called me on the phone to say that had no vision,

and that in light of that-she would no doubt have no hearing either. I had to

call my sister-in-law to leave work, and come watch for me. thank God

he was wrong. Nobody considered that as she was struggling to stay alive, her

system wasn't responding to outside stimuli. We saw a great op after

discharge-who gave her " legal blind " diagnosis. He said she'd need the help, and

no

one would be able to dispute the diagnosis. God love him. Everything good

for awhile, except for being in public school-which was insane and

ridiculous. That's a deal I can't even talk about-all U need is one sp.ed.

teacher

with clout who thinks she knows way more than U-and we were done for. but as

U

say, Di pulled herself thru in spite of them. At graduation, they forgot she

couldn't see-no depth perception-couldn't come down the stairs from the

stage, without help-no railings-wall too far away for her to find- she kept

turning back to the principal who was supposed to help her down the stairs, and

he kept pushing towards the stairs. That got the whole audience-who had no

clue-laughing. I had go get her-After, when I got to the nurses station, I lost

it-crying, with those uncontrolable screaming sounds that come out from

somewhere deep inside that U have no control over. After everything she had

accomplished in spite on their intense ignorance-they did that to her. I'll

tell U what-'s was the last case the town sped director processed. He had

a break down and left after we got assigned out of district, and I never

even yelled at him. But he's the one who broke-not me. Then we got to

Perkins-everything good for a long time.(better than any other option by a

mile)

Until 2 years ago,when they did a full visual exam on her-called me up and said

" u know she's not really legally blind. " That got me scrambling-I'm

thinking-what the hell are U doing-why would U mess when U know her

involvement?)

Turns out they did the visual field tests with her glasses on, and she passed.

So, I pulled the SSI test protocal, and that test is to be done without

corrective lenses. So they scheduled another one-let me tell U-I did some

coaching with Di. First time I ever told her to quit compensating so well!!!!

Anyway-U have my full sympathies-I understand so well...I want to say some

stuff

about SSI, but will put into a 2nd post. Love ya,

[Guest guest]

Oh , , ! Yup we're going down that same path. Its strange.

You are also so right in that if you get one persons who " thinks " they know

it can cabash your child's education. Our problem and biggest roadblock was

our Special Ed Director. Actually her and a few others including our school

Psych. Man we fought her tons. We actually threw out her testing and results

because of her total incompetence. She hated that and me. Then finally I

became an advocate and was working with a parent and child in our town. By

accident the Psych left a letter in the child's communication book talking bad

things

of the child and how they wouldn't provide services no matter the results and

that she couldn't stand the child or parent. The parent was so hurt when she

found it. She had written this to the Sped Director who signed and dated it.

What!?! Yes, we copied it and turned it in to the Superintendent and to the

School Board. Apparently the Psych then had a breakdown. She quit. She

said the reasons were parents had become too abusive. Imagine that.

It was a blessing. She should have been locked up.

Sorry about graduation but we kind of went through the same thing. Patty

insisted on shaking the principals hand who tried to avoid her. Patty just

stood

there and waited till he finally shook her hand. She made me proud. She

walked across the stage but had no help. She too doesn't have depth perception

and

was anxious of the stairs. But a wonderful teacher went out of her way to go

get her. We were blessed in many ways.

Sorry to hear about Perkins. Can't explain that one. I so hope they get it

now.

Way too funny about your coaching . I too finally did the same. She

just won't do it though. Patty is way to anxious about not performing her best

on any evaluation. The results are inaccurate because she works way to hard.

That doesn't happen in real life. Even with that she is still BLIND. Guess

I have to do more coaching!

Now about SSI................................................ I'm with ya!

Bonnie, mom to a 23, Patty CHARGE 21, and wife to