Re: AMELIE DISASTER

[Guest guest]

Lesley,

I believe there are a couple who have had the second surgery you are speaking

of. One is of a young woman whose mother isn't active on this list right

now. Either that or she is lurking. I hope she jumps in as she is a wealth of

firsthand information here.

I have now words of help except please know we continue to keep all of you in

our hearts. You are a great mother. Amelie feels and knows that. All your

children do. Remember that and then learn all you can and trust yourself with

the decisions you make.

We pray you are all held closely at this time.

Bonnie, mom to a 23, Patty CHARGE 21, and wife to

[Guest guest]

Oh Lesley-

I am sooo sorry to learn of Amelie's setbacks. All life is so vulnerable

and beautiful - and most people have the comfort of living in the illusion

of control and predictability. The rollercoaster of the volatile state of

our babies health is exhausting and at times daunting. I know that if I

become attached to even the smallest specific detail of an outcome I can be

derailed from my center of peace - and that center is what I need most at

moments like the one you are describing. I need that center so that I am

ready to notice what I need to know. I need that center so I can be in the

moment. I need that center so that I can let go of my fear.

I pray and I wish with all my heart for speedy comfort and fluent health for

your precious Amelie -

with love,

yuka

AMELIE DISASTER

> Dear All

>

> Awful night Amelie went down hill rapid, they got a xray couldnt

> understand what was wrong sats low 70's working hard with breathing

> back from 1.25 litres of o2 to 5 litres and still in the 70's etc,

> they have told us they dont think she stopped refluxing 6 weeks ago,

> probably the drug change just made it slightly better in that we

> couldnt see it come out her nose, her left lung has stuff on already

> when 36 hours ago it was clear.

>

> They have said almost certainly she will need to go to theatre soon,

> as they think its still refluxing into her lungs silently. in the

> meantime her feeds have been suspended and she back on Iv's

> They say either re do nissen one possibility, or they may do a dis

> sociation i think thats the word something about taking the stomach

> away from the oesophagus so she will never allow milk back up the

> oesophagus. how unbearable does that mean she would never get the

> chance to eat ever?

>

> Please is their anyone who has had the latter of the two done I need

> serious advice, not that it will change anything, because they said

> if its to keep Amelie alive they will need to do which ever one they

> all agree with on Tuesday, and they said she cant carry on the way

> she is doing as we no this last two arrest were the worst,

>

> Well heres to the new year I feel devastated angry had enough fed

> up, tears of joy yesterday tears of desperation today.

>

> Lesley

[Guest guest]

> I feel devastated angry had enough fed

> up, tears of joy yesterday tears of desperation today.

OMG! Lesley, I am so sorry! You have every right to be fed up! This

roller coaster is one it is time to be off of! I don't know anything about

the latter procedure. Do I recall that Amelie has had the Nissen done a few

times already and they don't last? We will just pray and pray and pray for

your sweet baby girl! Kim L

[Guest guest]

I am so sorry hun!! Why is it when we get a glips of hope something

always comes to take it away, I know the feeling so much and its

painfull!!

I have tears and prayers for you and Amelie.

Please give her a hug and kiss for us.

Hugs,

Crystal and Eva (8 month charger)

>

> Dear All

>

> Awful night Amelie went down hill rapid, they got a xray couldnt

> understand what was wrong sats low 70's working hard with

breathing

> back from 1.25 litres of o2 to 5 litres and still in the 70's etc,

> they have told us they dont think she stopped refluxing 6 weeks

ago,

> probably the drug change just made it slightly better in that we

> couldnt see it come out her nose, her left lung has stuff on

already

> when 36 hours ago it was clear.

>

> They have said almost certainly she will need to go to theatre

soon,

> as they think its still refluxing into her lungs silently. in the

> meantime her feeds have been suspended and she back on Iv's

> They say either re do nissen one possibility, or they may do a dis

> sociation i think thats the word something about taking the

stomach

> away from the oesophagus so she will never allow milk back up the

> oesophagus. how unbearable does that mean she would never get the

> chance to eat ever?

>

> Please is their anyone who has had the latter of the two done I

need

> serious advice, not that it will change anything, because they

said

> if its to keep Amelie alive they will need to do which ever one

they

> all agree with on Tuesday, and they said she cant carry on the way

> she is doing as we no this last two arrest were the worst,

>

> Well heres to the new year I feel devastated angry had enough fed

> up, tears of joy yesterday tears of desperation today.

>

> Lesley

>