Re: help - I'm really concerned

[Guest guest]

Helen,

I can understand that having such a limited diet can be really

frustrating, but honestly the foods you listed look like a good

variety as far as there being something in each group that he can

tolerate.

I understand that he might be bored, but I think you could get

adequate carbs from the foods you listed. It might take some

time using Fitday.com or the US nutrient database to figure out

just how to make the " balancing act " work.

Is he willing to eat these foods in creative ways? Like would he

tolerate you making " pizzas " using chicken pancakes for the

crust with a pea puree " sauce " topped with cooked carrots?

I guess what I am wondering most is whether he is frustrated

with his choices or whether you are frustrated with his choices.

So many ASD kids like their routine and prefer to eat the same

things quite often. If he is not experiencing any distress over his

food choices, then I would just suggest that you make sure that

he is getting enough calories because without the nuts, he will

have to eat a lot of fruits, veggies and meat to get enough

calories.

If he is bored, then I would be more than glad to offer you new

ideas for the same " old choices " .

How about veggie soup using chicken broth and the veggies that

he can tolerate.

How about fruit sauces made with the fruits he can tolerate in

different mixtures. Apple/mango, apple/banana, apple/pear,

mango/pear, etc. These can be served warm out of the oven,

refrigerated or even frozen as popsicles.

With the eggs, there are tons of way to prepare them. Fried,

boiled, scrambled, poached, over-easy, quiches, omellettes, etc.

There was even a recipe for pancakes that just used fruit and

eggs I believe. I'll have to look for it.

Jody

mom to -5 and -8

SCD 21 months

[Guest guest]

Jody, thank you so much for your reply! This has been upsetting me

so much but frankly I was nervous to post because the foods he eats

are so precious few. My immediate frustrations occur because he is

often hungry and if I don't keep him well fed his inappropriate

behaviors increase, he gets quite depressed, has much less self

control but I am nervous about giving him too much of something. For

example, I can only give him carrots a couple times a week. I think,

but I'm not sure, that the carrots have something to do with the

little bumps on his back that itch him. I don't dare give him too

many apples, even though I peel golden delicious apples only for

him. I'm fortunate that he is happy with burgers at every meal but I

think he would be quite happy with new ways to prepare his food. I'll

have to research more, any ideas would be great.

If I understand from some of your past posts correctly, are your

children becoming more tolerant to these previously off-bounds

foods? Is there light at the end of this tunnel?

Thank you. You've set a tired and worried mind at ease for the night!

Helen, mom to (who will be introduced to an omlett tomorrow!!)

>

> Helen,

>

> I can understand that having such a limited diet can be really

> frustrating, but honestly the foods you listed look like a good

> variety as far as there being something in each group that he can

> tolerate.

>

> I understand that he might be bored, but I think you could get

> adequate carbs from the foods you listed. It might take some

> time using Fitday.com or the US nutrient database to figure out

> just how to make the " balancing act " work.

>

> Is he willing to eat these foods in creative ways? Like would he

> tolerate you making " pizzas " using chicken pancakes for the

> crust with a pea puree " sauce " topped with cooked carrots?

>

> I guess what I am wondering most is whether he is frustrated

> with his choices or whether you are frustrated with his choices.

>

> So many ASD kids like their routine and prefer to eat the same

> things quite often. If he is not experiencing any distress over

his

> food choices, then I would just suggest that you make sure that

> he is getting enough calories because without the nuts, he will

> have to eat a lot of fruits, veggies and meat to get enough

> calories.

>

> If he is bored, then I would be more than glad to offer you new

> ideas for the same " old choices " .

>

> How about veggie soup using chicken broth and the veggies that

> he can tolerate.

>

> How about fruit sauces made with the fruits he can tolerate in

> different mixtures. Apple/mango, apple/banana, apple/pear,

> mango/pear, etc. These can be served warm out of the oven,

> refrigerated or even frozen as popsicles.

>

> With the eggs, there are tons of way to prepare them. Fried,

> boiled, scrambled, poached, over-easy, quiches, omellettes, etc.

>

> There was even a recipe for pancakes that just used fruit and

> eggs I believe. I'll have to look for it.

>

>

>

> Jody

> mom to -5 and -8

> SCD 21 months

[Guest guest]

>

>

Helen, My 10 yo. daughter is highly sensitive to banana. Very high in

Amines.

Try taking that out for awhile.

I will send you a link on amines.

I know about difficult behavior..............my child is sensitive to

everything!!!

So I feel for your situation. It will get better.................

Kathy

mom to Abby and Hannah

>

> Advice would be greatly appreciated.

>

> Helen, mom to (9, ASD, SCD since 4/04)

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

" If I understand from some of your past posts correctly, are your

children becoming more tolerant to these previously off-bounds

foods? Is there light at the end of this tunnel? "

I believe there is light at the end of the tunnel. My boys got really

wound up from eating fruit and before SCD we had virtually

eliminated most fruits. With SCD, we have a threshhold of fruit

tolerance. They can have fruit up to a " point " before I have to

begin giving a No Phenol with fruit. So, once piece of fruit does

not send them bouncing around the house.

This is such a positive because when we go out places, if they

get offered fruit, they can eat it without having to have an enzyme

15 minutes ahead of time.

We haven't completely gotten over the hyper reaction because

after they've had a certain amount then we get a phenol reaction

again. But it does give me hope that in time, they will be able to

eat it with no problems.

They eat all fruits now. They do miss corn chips and rice. But

I've asked them before about whether they like the SCD or GFCF

better... They LOVE getting the fruit and think it tastes better than

the grains anyday!

Jody

mom to -5 and -8

SCD 21 months