Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 " She barely speaks as well. They keep on describing her case as 'failure to thrive'. She is very small for her age and always was since birth. Low muscle tone as well. All the doctors say she is not autistic. " How are her social skills? Her play skills? Her receptive language? If you see issues with these things, I would recommend a DAN! doctor for sure. If you don't think that any ASD diagnosis would be appropriate, I would suggest a good endocrinologist based on what you say about her height and her low muscle tone. Jody mom to -5 and -8 SCD 21 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 , My son was never diagnosed with Autism or PDD. They used the term language delay, with PDD like qualities. He was also pretty skinny. After a year of doctors, and speech therapists and school teacher, we were finaly fed up with it all, and went to a DAN doctor. They didn't care what he was diagnosed with, they just want to help heal him. After some testing with Dr Neubrander, it was found that did have issues with yeast. Since we started the biomedical route, our son has greatly improved. If your pediatrician is sympathetic to biomedical route, you can try there first. Have you tried a gastroenterologist? If you're not satisfied, then see the DAN doctor. Francine > > Hi Everybody, > A family friend of ours has a 4 year old daughter, who was diagnosed > as having acid reflux. She barely speaks as well. They keep on > describing her case as 'failure to thrive'. She is very small for her > age and always was since birth. Low muscle tone as well. All the > doctors say she is not autistic. She is not on any diets. I suggested > she get a food sensitivity test to start with. How does one go about > getting these tests done? Is it only through a DAN doctor or is that > overdoing it and she can go to her regular pediatrician? Any > suggestions on a course of action? Thanks a lot, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2004 Report Share Posted October 23, 2004 We used Sage Systems and they submitted to my insurance and they paid 90%. I think we tested 150 things. 4 small vials of blood, not biggie. www.foodallergytest.com Sage sends you the kit/info and our Ped signed off on it and I mailed it all in. Marla she get a food sensitivity test to start with. How does one go about getting these tests done? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2004 Report Share Posted October 23, 2004 Jonathon, when my three year old started having terrible reflux it took ages to get diagnosed. He has red lines down his chin, doctors said it was dribble rash- it was acid burn from reflux. At it's worst it extended down onto his chest where his dribble acid burnt his chest. His doctors say that reflux is a physiological problem, that the sphincter is too loose, the only thing to do is to have surgery to wrap the upper part of the stomach around his oesophagus- a Nissen fundoplication, and in the meantime go on adult dose of losec to reduce the acid. It didn't seem right to me, I talked with other parents who kids had that surgery and it isn't always the answer and often comes with a whole trunk load of problems. Since starting SCD I've seen a huge reduction in his reflux, I don't think he'd have any if he had a pH probe these days, I'd be curious to get it done though, would be nice to show the paed who said there was no other option and that I was just putting off the enevitable and doing more damage in the meantime. Here's a site with a few other parents with similiar kids who are responding slowly to a gluten free diet, some are also doing SCD: http://brain.hastypastry.net/forums/forumdisplay.php?s= & daysprune=- 1 & f=141 I think this little girl has serious malabsorption issues and SCD may be the answer to that. Gluten sensitivity also results in many neurological issues, her hypotonia may be connected. You could try to help find a SCD supportive doctor, a DAN doctor even though her issue may not be autism. What annoys me immensely is doctors who have no other alternatives than formula feeds, lipid suppliments etc and the kids years later are stil FTT, it's not addressing the real problem which is the state of their guts. I could rant on but will leave it there, Chris. Quote Link to comment Share on other sites More sharing options...
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