Re: sometimes we get too much support.

September 26, 2004

Sometimes getting the support we need just isn't worth the cost. Heck. Barbara

Barb I have to agree with you on that one, because I have a good friend who sister has this, so therefore she knows what I need to do.

Anyway the last time she took me to my doctor, notice the word last time, she starts into my doctor about what tests has he done and if I truly have this disease then I aren't I being given more blocks, because her sister has them and only needs to go in once a month. You know the commercial that says "want to get away" that was me during this whole lecture, my poor doctor looked shell shocked. He was very polite but didn't really answer any of her questions. So as we were leaving she was going well what do you think of his answers, I just played dumb and said I dunno. I had 3 blocks they were extremely painful to endure and I only got 2 to 3 days relief, not enough for the horror I had to endure. I think Dwight is starting to see what I mean about saying stop, it also took this ER trip to wake him up.

Oops there I go venting again I guess this has been my venting day.

The reason why you guys didn't hear from me for such a long time at first it was because I was just too overwhelmed by what was going on, but then when I

mentioned about needing to get back on my youngest daughter and Dwight said

that they thought that this site caused me to think about my illness way to much

and that I needed to have more positive things in my life. Finally I decided that

I really missed talking to all of you and was starting feel very lonely, does that

make sense?

Well I will stop my ranting and raving........at least for today LOL

Lin

A

September 26, 2004

- Vent your brains out, girl. ly, my family and friends would be overwhelmed by me if I didn't have this group. I tend to compartmentalize a lot so for me it's helpful to have this place. It makes it so the other people in my life don't have to hear the whining and ranting that wreak havoc inside of my brain. A balance is important, though.

The thing that I think can be difficult with some of the support sometimes from loved ones is that they too are feeling desperate for us to feel better just like we are. Sometimes I think that their desperation clouds what they say.....With my sister, she makes statements....very well intentioned and from a loving place...but if I don't agree with or "go" with what she has to say she occasionally then acts like I'm an imbecile. Hate it and never knowing how she's going to react makes it like playing a slot machine. Sometimes I get the good stuff and sometimes I get garbage. If I'm already in a hard place, it just isn't worth throwing my quarter in the slot.

Hope you get a decent night's sleep tonight. And please don't ever worry about venting. I can deal with it and really, , your venting is pretty small potatos. I'm sure you could do a more thorough job of it. wrote: