Re: colitis medication/slightly OT

[Guest guest]

You could try Boswellin from America's Finest, 2 capsules with breakfast,

lunch, and dinner.

colitis medication/slightly OT

>

> hello all,

> whenever i do not know who to turn to, this wonderful group is always here

for me.....thanks in advance for your suggestions.

>

> my son has been on SCD for 5 months and doing well. 2 months ago he was

diagnosed with colitis and put on sulfasalazine. he responded with a severe

allergic reaction. he was then put on balsalazine which made his

aggressions return and keeps him up at night at least 2 times a week. Dr.

Krigsman took him off Balsalizine and now wants to put him on prednisone and

6 MP, both which carry serious potential side effects. I also do not know

if these meds are SCD legal. More importantly i'm worried about the side

effects so i researched an " alternative " . I found something called AMP

which is made by Molo-cure Research Inc. It is derived from an aloe plant

and seems like a miriacle worker (according to the testimonies).

> Does anyone out there have any experience with alternative colitis

remedies and/or experience with prednisone or 6 MP? THANKS and GOD BLESS.

> kim

> mom to Charlee, 8 SCD 5 months

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

Hi Kim,

> my son has been on SCD for 5 months and doing well. 2 months ago

he was diagnosed with colitis and put on sulfasalazine. he

responded with a severe allergic reaction. he was then put on

balsalazine which made his aggressions return and keeps him up at

night at least 2 times a week. Dr. Krigsman took him off

Balsalizine and now wants to put him on prednisone and 6 MP, both

which carry serious potential side effects. I also do not know if

these meds are SCD legal. More importantly i'm worried about the

side effects so i researched an " alternative " . I found something

called AMP which is made by Molo-cure Research Inc.

The AMP by molocure is illegal from Elaines website:

" The main consituent of Molo-cure is aloe. Aloe is not SCD™

compliant as it contains mucilaginous polysaccharides as well as

increasing the release of tumor necrosis factor which is associated

with IBD inflammation and increased immune stimulation. "

> Does anyone out there have any experience with alternative colitis

>remedies and/or experience with prednisone or 6 MP? THANKS and

>GOD BLESS.

I am not sure I understand, if he was doing well why put him on

drugs?

The prednisone is legal as any medicine that you have to take is.

But the side effects etc. are not very nice. SCD has been the

best " alternative " for me. There is some info about meds and SCD at

http://www.scdiet.org/4faq/default.html

Sheila

[Guest guest]

hi Sheila,

thanks so much for responding. I called the company that produces AMP and they

said that many people on SCD take this aloe. I really want to avoid my son

taking the med that has severe side effects and would rather go all natural. is

there any way that there could be an error inthe list stating aloe is illegal?

thanks in advance for advise!!!!

kim mom to Charlee, 8 scd 5 months

Re: colitis medication/slightly OT

>

>

> Hi Kim,

>

> > my son has been on SCD for 5 months and doing well. 2 months ago

> he was diagnosed with colitis and put on sulfasalazine. he

> responded with a severe allergic reaction. he was then put on

> balsalazine which made his aggressions return and keeps him up at

> night at least 2 times a week. Dr. Krigsman took him off

> Balsalizine and now wants to put him on prednisone and 6 MP, both

> which carry serious potential side effects. I also do not know if

> these meds are SCD legal. More importantly i'm worried about the

> side effects so i researched an " alternative " . I found something

> called AMP which is made by Molo-cure Research Inc.

>

> The AMP by molocure is illegal from Elaines website:

> " The main consituent of Molo-cure is aloe. Aloe is not SCD?

> compliant as it contains mucilaginous polysaccharides as well as

> increasing the release of tumor necrosis factor which is

> associated

> with IBD inflammation and increased immune stimulation. "

>

>

>

> > Does anyone out there have any experience with alternative

> colitis

> >remedies and/or experience with prednisone or 6 MP? THANKS and

> >GOD BLESS.

>

> I am not sure I understand, if he was doing well why put him on

> drugs?

>

> The prednisone is legal as any medicine that you have to take is.

> But the side effects etc. are not very nice. SCD has been the

> best " alternative " for me. There is some info about meds and SCD

> at

> http://www.scdiet.org/4faq/default.html

>

> Sheila

>

>

>

>

>

>

>

[Guest guest]

Hi Kim,

> thanks so much for responding. I called the company that produces AMP and

> they said that many people on SCD take this aloe. I really want to avoid

> my son taking the med that has severe side effects and would rather go all

> natural. is there any way that there could be an error inthe list stating

> aloe is illegal?

> thanks in advance for advise!!!!

Sorry, but no it is not a mistake. On the LI list there were many reports

of people having trouble with AMP. I believe many of them started SCD

because of the flares that they were sent into.

This was in my saved files from the LI list

" Can someone remember why Aloe Vera juice is NOT recommended for us?

Deborah writes:

It contains a very powerful carthartic, anthroquinone, which naturally would

be extremely irritating to the gut, to say the least. Even in products with

the anthroquinone removed, one doesn't know if it's completely gone, whether

traces remain, what was used to remove it, etc.

************************

Lydia sends this in:

Re Aloes: " ... a potent immunostimulant. ...effects noted include the

enhancement of macrophage release of TUMOUR NECROSIS FACTOR.. these effects

can be quite substantial " from Textbook of Natural Medicine, Murray and

Pizzorno, p582.

In response, Elaine writes: One of the LAST things you want with IBD "

Sheila 44 mos SCD, 20 yrs UC

mom of SCD 29 mos

[Guest guest]

Have you tried Secretin? iT IS HELPING MY SON SOOOO much. It seems to help

with feeling full so he eats a meal and then is full and doesn't need to snack

all day like he was.

karen

[Guest guest]

Thanks, Sheila. you're the BEST at responding so thoroughly and answering my

questions.

I am, however, still in a dilemma as to what alternatives I have for my son's

colitis. If anyone knows of an anti-inflammatory substitution for

prednisone/6MP please, PLEASE let me know. The SCD, of course, is helping him

but his biggest symptom now is eating an inordinate amount of food. His Dr.'s

say this is because of malabsoption which is due to infoammation. Thanks, in

advance for your suggestions.

Kim

Re: Re: colitis medication/slightly OT

>

> Hi Kim,

>

> > thanks so much for responding. I called the company that

> produces AMP and

> > they said that many people on SCD take this aloe. I really want

> to avoid

> > my son taking the med that has severe side effects and would

> rather go all

> > natural. is there any way that there could be an error inthe

> list stating

> > aloe is illegal?

> > thanks in advance for advise!!!!

>

> Sorry, but no it is not a mistake. On the LI list there were many

> reports

> of people having trouble with AMP. I believe many of them started

> SCD

> because of the flares that they were sent into.

>

> This was in my saved files from the LI list

>

> " Can someone remember why Aloe Vera juice is NOT recommended for us?

>

> Deborah writes:

> It contains a very powerful carthartic, anthroquinone, which

> naturally would

> be extremely irritating to the gut, to say the least. Even in

> products with

> the anthroquinone removed, one doesn't know if it's completely

> gone, whether

> traces remain, what was used to remove it, etc.

>

> ************************

>

> Lydia sends this in:

> Re Aloes: " ... a potent immunostimulant. ...effects noted include the

> enhancement of macrophage release of TUMOUR NECROSIS FACTOR..

> these effects

> can be quite substantial " from Textbook of Natural Medicine,

> Murray and

> Pizzorno, p582.

>

> In response, Elaine writes: One of the LAST things you want with IBD "

>

> Sheila 44 mos SCD, 20 yrs UC

> mom of SCD 29 mos

>

>

>

>

>

>

>

[Guest guest]

Hi Kim,

>SCD, of course, is helping him but his biggest symptom now is

>eating an inordinate amount of food. His Dr.'s say this is because

>of malabsoption which is due to infoammation.

Many notice that appetite increases at the beginning of the

diet. A couple of reasons for this are

- some kids were in pain before and didn't want to eat - especially

if like me food was associated with pain (they ate they hurt). Now

since there is no more pain they're hungry and happy to eat:)

- they are changing from rumen type digestion to actual human

digestion - that change-over will require more (food) energy so they

eat more

- kids often go through growth spurts upon starting SCD. Their

injured guts slowed down their natural growth and once they start

absorbing nutrients their little bodies make up for lost time.

Once their bodies have adjusted to the change their appetites

usually settle down - not including the periodic growth spurts all

kids go through.

Sheila 44 mos SCD, 20 yrs UC

mom of SCD 29 mos

[Guest guest]

hi sheila,

thanks for your comment about the increase in appetite at the beginning of the

diet. My son has been on the diet for 5 1/2 months....should he still be eating

a HUGE quantity of food? For example, he has been awake for 2 hours and he has

already eaten 6 thick slices pork tenderloin, 5 carrots, 2 pears and a handful

of pork rinds. he constantly asks for food!!! what do you think?

Also, someone else posted an alternative colitis remedy called " boswallia " ? Ever

heard of it? do you or any of the adults on your other list know about it?

thanks for any suggestions.

Kim, mom to Charlee (5 1/2 months SCD) age 8, non-verbal autism

Re: colitis medication/slightly OT

>

>

> Hi Kim,

>

> >SCD, of course, is helping him but his biggest symptom now is

> >eating an inordinate amount of food. His Dr.'s say this is

> because

> >of malabsoption which is due to infoammation.

>

> Many notice that appetite increases at the beginning of the

> diet. A couple of reasons for this are

> - some kids were in pain before and didn't want to eat -

> especially

> if like me food was associated with pain (they ate they hurt). Now

> since there is no more pain they're hungry and happy to eat:)

> - they are changing from rumen type digestion to actual human

> digestion - that change-over will require more (food) energy so

> they

> eat more

> - kids often go through growth spurts upon starting SCD. Their

> injured guts slowed down their natural growth and once they start

> absorbing nutrients their little bodies make up for lost time.

>

> Once their bodies have adjusted to the change their appetites

> usually settle down - not including the periodic growth spurts all

> kids go through.

>

>

> Sheila 44 mos SCD, 20 yrs UC

> mom of SCD 29 mos

>

>

>

>

>

>

>

[Guest guest]

" should he still be eating a HUGE quantity of food? "

Kim,

Have you tried using Fitday.com to determine the number of

caloriers, protein/carbs/fat that he's eating per day.

It may very well be that he is eating a large quantity of food, but

healthy fruits and veggies are actually pretty low in calories. So

his overall calorie intake may not be too high.

Jody

mom to -5 and -8

SCD 20 months

[Guest guest]

My son is 4 and also has colitis. He was flaring so severely in the beginning

his first medication for it, at age 3, was sulfasalazine and prednisone. They

both did very little.

I then tried AMP Molocure. It actually did wonders, miracles actually. He

started having normal stools and was able to get off the prednisone. But, after

a few weeks, he started regressing again - I increased the dosage of the AMP and

he continued to regress. I had to discontinue it. Up until we started SCD I

was completely baffled at how something that could work so well could completely

stop working. I was tempted to try it again but after reading Elaine's book I

now know what happened. AMP is the polysaccaride (sp?) extracted from the Aloe

plant. The gut irritating ingredients have been removed, but the 'starch' is

left and is supposed to pass through the system, undigested, and coat the

intestinal tract, allowing the gut to heal. It does this very well, which is why

it worked in the beginning. But the pathogenic bacteria feed on it and then

cause flares, which is what happened to . Makes perfect sense now - I also

remember though his stools were normal, they were very light in color, which is

a sign of yeast overgrowth. Hmmm yeast must have been feeding on the stuff,

too.

SCD has helped my son a lot and I know has cured many colitis patients. Lucy at

Lucy's Kitchen Shop was a great encourager for me and would talk with you. She

is 11 yrs symptom free from severe UC.

I wish you the best!

Robbie

Mom to age 4 UC age 19 months celiac

colitis medication/slightly OT

hello all,

whenever i do not know who to turn to, this wonderful group is always here for

me.....thanks in advance for your suggestions.

my son has been on SCD for 5 months and doing well. 2 months ago he was

diagnosed with colitis and put on sulfasalazine. he responded with a severe

allergic reaction. he was then put on balsalazine which made his aggressions

return and keeps him up at night at least 2 times a week. Dr. Krigsman took him

off Balsalizine and now wants to put him on prednisone and 6 MP, both which

carry serious potential side effects. I also do not know if these meds are SCD

legal. More importantly i'm worried about the side effects so i researched an

" alternative " . I found something called AMP which is made by Molo-cure Research

Inc. It is derived from an aloe plant and seems like a miriacle worker

(according to the testimonies).

Does anyone out there have any experience with alternative colitis remedies

and/or experience with prednisone or 6 MP? THANKS and GOD BLESS.

kim

mom to Charlee, 8 SCD 5 months

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

Well, my son (age 4 with UC) ate today:

2 eggs with cheese, over 1/2 lb of bacon, 2 legal hotdogs, a banana, 2 slices of

cantelope, several slices of cheese, another banana, serving of applesauce and 3

slices of legal pizza and wanted more food.

He doesn't always eat this much, but he does have his days.

I also know of a number of alternative treatments for colitis - believe me we've

been searching and trying a ton of stuff. Email me off list if you want info.

robbie @ littlebritchesboutique.com (minus the spaces).

Robbie

Re: colitis medication/slightly OT

>

>

> Hi Kim,

>

> >SCD, of course, is helping him but his biggest symptom now is

> >eating an inordinate amount of food. His Dr.'s say this is

> because

> >of malabsoption which is due to infoammation.

>

> Many notice that appetite increases at the beginning of the

> diet. A couple of reasons for this are

> - some kids were in pain before and didn't want to eat -

> especially

> if like me food was associated with pain (they ate they hurt). Now

> since there is no more pain they're hungry and happy to eat:)

> - they are changing from rumen type digestion to actual human

> digestion - that change-over will require more (food) energy so

> they

> eat more

> - kids often go through growth spurts upon starting SCD. Their

> injured guts slowed down their natural growth and once they start

> absorbing nutrients their little bodies make up for lost time.

>

> Once their bodies have adjusted to the change their appetites

> usually settle down - not including the periodic growth spurts all

> kids go through.

>

>

> Sheila 44 mos SCD, 20 yrs UC

> mom of SCD 29 mos

>

>

>

>

>

>

>

[Guest guest]

Honestly, I wouldn't touch it again. Antifungals have a reputation of causing

improvement in the short term, but also causing resistant yeast to flourish and

become harder to kill - kind of like using an antibiotic. I know there are

situations where they are necessary, just like with antibiotics, but I wouldn't

play with it. SCD works - it just takes time. I have some other ideas as well

if you want me to email you off list.

SCD in and of itself isn't something to play around with either - it works so

well that introducing illegals, especially the kind of non digestable starch

that is in the AMP, after being on SCD could cause a major flare - kind of like

taking an antibiotic for only half the prescribed time... killing off the weaker

strains first, but leaving the stronger ones that are harder to kill - and you

don't want to feed those or you'll have a huge mess on your hands. We tried AMP

before SCD but I wouldn't think of trying it now for fear of an uncontrollable

flare. Really, I'd be scared, honest. This is just my insight and I know those

testimonials are hard to resist, but I'm not the only one who has been through

this - I personally know another little boy who went through the same thing with

AMP and I guess it's been mentioned that others on other list servs have had

problems too.

Robbie

colitis medication/slightly OT

>

>

> hello all,

> whenever i do not know who to turn to, this wonderful group is

> always here for me.....thanks in advance for your suggestions.

>

> my son has been on SCD for 5 months and doing well. 2 months ago

> he was diagnosed with colitis and put on sulfasalazine. he

> responded with a severe allergic reaction. he was then put on

> balsalazine which made his aggressions return and keeps him up at

> night at least 2 times a week. Dr. Krigsman took him off

> Balsalizine and now wants to put him on prednisone and 6 MP, both

> which carry serious potential side effects. I also do not know if

> these meds are SCD legal. More importantly i'm worried about the

> side effects so i researched an " alternative " . I found something

> called AMP which is made by Molo-cure Research Inc. It is

> derived from an aloe plant and seems like a miriacle worker

> (according to the testimonies).

> Does anyone out there have any experience with alternative

> colitis remedies and/or experience with prednisone or 6 MP?

> THANKS and GOD BLESS.

> kim

> mom to Charlee, 8 SCD 5 months

>

>

>

> For information on the Specific Carbohydrate Diet, please read

> the book _Breaking the Vicious Cycle_ by Elaine Gottschall and

> read the following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

>

>

[Guest guest]

Hi Kim,

> thanks for your comment about the increase in appetite at the

beginning of the diet. My son has been on the diet for 5 1/2

months....should he still be eating a HUGE quantity of food? For

example, he has been awake for 2 hours and he has already eaten 6

thick slices pork tenderloin, 5 carrots, 2 pears and a handful of

pork rinds. he constantly asks for food!!! what do you think?

My appetite didn't stabilize until my weight stabilized. It has

been a few years but if I am recalling correctly it might have been

a year or even a little longer. I just remember thinking one

day... " hmm, I am not eating as much food as I was when I started

SCD. " It seems to vary for different people, like many other facets

of SCD and healing. And if it is any consolation my kids go through

food jags in which they wil just eat and eat all day long. Same

amounts as you describe and other days hardly a thing. On those days

DH eats a lot of leftovers

> Also, someone else posted an alternative colitis remedy

called " boswallia " ? Ever heard of it? do you or any of the adults on

your other list know about it?

Yes, I have heard of it but I don't really know much about it. I

think it was Teri (?) that was looking into it. I haven't read much

about it on the adults lists but I don't always get to read them

all. Healing Crow is a great place to discuss alternative meds.

http://health.groups.yahoo.com/group/HealingCrow/

Sheila 44 mos SCD, 20 yrs UC

mom of SCD 29 mos

[Guest guest]

No, I never read this - I just did a google search and read some about it. Wow

- interesting stuff. Thanks for the info - I will keep reading. My son is not

autistic, but all his digestion and detox organs are very stressed.

Robbie

Re: Re: colitis medication/slightly OT

I posted this before but don't know if you got it. Secretin (suggested by Dr

Krigsman) has been sooooo wonderful for my son. He went from having diarrhea

all day long to beautiful 1 a day poops. We were about to try prednisone when

we decided to give secretin a try first. It has proven to be one of the most

helpful things ever for my son. I guess because it provides pancreatic enzymes

it helped break down the foods. He is eating great now and happier and calmer.

I am thankful for it everyday.

karen