Re: SCD Miracle or Good Management? (personal)

[Guest guest]

forget the test they are meaningless

you may well be having heart issues

the douglas labs magnesium tuarate and chelated magnesium work very

well with damaged heart muscle

its hard to believe the depths of incompedence that medicine sinks to

these days.

> Last week I thought I was having a heart or angina attack. My GP

family doctor

> ran all the tests, did a complete panel and everything came back

totally normal

> and I mean everything they test for. And I am 73!

>

> The doctor noticed that after losing 86 pounds, I have maintained a

stable

> normal weight since starting SCD four years ago.

>

> This doctor who has mostly ignored my claims about SCD decided to

pay attention.

> Madame Mainstream Medicine requested a copy of BTVC as she has

autism families

> in her practice and certainly some celiacs.

> For me this represents a very major victory on all fronts and it

validates

> that I am now absorbing nutrients, especially iron, from food as

aside from

> vitamins I take NO supplements.

>

> By the way, my stress anxiety attack was over a difference of

opinion regarding

> dietary intervention which has since been resolved.

>

> Carol F.

> ---------

> Toronto , Celiac SCD 3 years

> There is no substitute for the right food!

>

>

>

[Guest guest]

Carol,

I checked in with tonight's messages on this website looking for some

glimmer of hope...and I found it: your post tonight. I am in tears

as I look at my 8 yo dd's gi history as we managed to get an

appointment for her with the gi doc tomorrow...she has had 7 enemas

in the last 8 days, has become completely bowel dependent on them,

and if she doesn't have an enema then she sits on the potty when she

feels the urge for a b.m. and just cries and screams and bites her

arms...it is such an incredibly helpless feeling to watch her

suffer. Looking at her history that we have so meticulously kept,

and knowing what I do now after 9 months of SCD, it is so clear that

since at least 15 months of age she has not been able to tolerate

sugars (polysac.) or starches. I look at the photos of her swollen

belly and I sob with the thought of the pain she has endured for the

last 7 of the 8 years of her life. SCD has been the best thing for

her so far without a doubt...the day she started the diet was the day

she stopped sitting doubled-over, pressing a pillow against her belly

for pain relief, and crying what we have come to call the " siren

cry, " the cry that sounds like endless hours of an ambulance siren.

Yet she continues to have flare-up's every few months, usually after

we try to re-introduce fruits into her diet. She will become

constipated for a week and her lips will dry out, crack, and bleed.

As much as I hate to give her Miralax, it is often the only thing

that will get her back on track in a week, after which daily

magnesium citrate seems to keep things working. But these last two

weeks...nothing seems to work. She spends her morning going back and

forth between moments of smiles and interaction to crying, screaming,

and self-injury. Then after the enema she is a different

child...full of smiles, interaction and blossoming language. She

starts to whimper when she sees me bring the enema into her playroom,

and although she can not tell me in words, I believe she knows that

she wants to go to the bathroom but does not want to endure the whole

procedure. She comes right over for the enema and counts back

from " 10, " all the while whimpering as I stuggle to reassure that

everything is okay and make every effort to be as gentle as possible

without whimpering along with her. I'm just so tired of it all. She

has only a few foods that she can eat and although enzymes have shown

potential for introducing some of the more phenolic veggies, I

beleive they have made her even more constipated in the last 8 days

since we started them. And so we will go to the gi appt tomorrow,

likely to be told that she has to be scoped yet again, and all I want

is to go to an appt where the doc says that everything is normal and

she's on the road to healing. You've given me a glimmer of hope that

we will hear that one day, but for now my heart continues to weap for

the child that has spent nearly all of her life with some degree of

pain. Please continue to post your words of healing and

reassurance...for days like today, they're all I've got to hold on to.

Rose (mom to 11, asd, back on scd 2 days and 8, asd,

LNH, scd 9 months)

> Last week I thought I was having a heart or angina attack. My GP

family doctor

> ran all the tests, did a complete panel and everything came back

totally normal

> and I mean everything they test for. And I am 73!

>

> The doctor noticed that after losing 86 pounds, I have maintained a

stable

> normal weight since starting SCD four years ago.

>

> This doctor who has mostly ignored my claims about SCD decided to

pay attention.

> Madame Mainstream Medicine requested a copy of BTVC as she has

autism families

> in her practice and certainly some celiacs.

> For me this represents a very major victory on all fronts and it

validates

> that I am now absorbing nutrients, especially iron, from food as

aside from

> vitamins I take NO supplements.

>

> By the way, my stress anxiety attack was over a difference of

opinion regarding

> dietary intervention which has since been resolved.

>

> Carol F.

> ---------

> Toronto , Celiac SCD 3 years

> There is no substitute for the right food!

>

>

>

[Guest guest]

> Carol,

> I checked in with tonight's messages on this website looking for some

> glimmer of hope...and I found it: your post tonight. I am in tears

> as I look at my 8 yo dd's gi history as we managed to get an

> appointment for her with the gi doc tomorrow...she has had 7 enemas

> in the last 8 days, has become completely bowel dependent on them,

> and if she doesn't have an enema then she sits on the potty when she

> feels the urge for a b.m. and just cries and screams and bites her

> arms...it is such an incredibly helpless feeling to watch her

> suffer.

Rose,

Elaine is in California for the DAN Conference. I have forwarded yur post to her

and believe she will address it when she returns next week.

And re all those normal test results. I was not normal before SCD. No need to do

personal details here since all is well thanks to SCD. (I also exercise)

Carol F.

[Guest guest]

Stress also depletes magnesium. And once you are deficient, you can't

even cope with " the stress of daily living " .

A mild magnesium deficiency can show up as depression, anxiety, OCD

(which is a more severe anxiety), and Tourettes. Higher deficiencies

can lead to arrythmias and other heart symptoms. Severe deficiencies

can result in dementia.

We found this out this spring, when we switched to pecan pancakes

after running out of almond flour (high in mag.). Also, dd refused to

eat her blanched almonds at lunch or for snack, preferring pecans, and

refused supplements.

She's drinking Water Oz magnesium now (ugh), in an equal amount of

grape juice. After an outburst at school yesterday, I got her to

swallow her supplements for the first time. Talk about motivated!

But I don't think the freeda vitamins have enough magnesium to cure a

deficiency, and it's a poorly absorbed form (oxide, citrate).

Eat your almonds, and take a good mag. supplement, and see it it helps.

Carol wrote:

> > " By the way, my stress anxiety attack was over a difference of

opinion

> >regarding

> > dietary intervention which has since been resolved. "

>

>

> > This happened to me a month ago when I started using the BC patch.

I went

> > to the hospital thinking I was having a stroke or heart attack.

> I just recently had another one and it comes out of the blue with no

> warning. I have found out that anxiety attacks really do come that way

> when you least expect it. You feel like you are dieing. I feel

sure mine

> is hormonal but also it is usually not from one stressful event.

It's more

> of a build up of stress and the brain/body has to release it. Do

you walk?

> This can help too. Try not to worry about it because that can also

> make it worse. Take care,

> Kathy, mom to Abby and Hannah

>

>

> >

> >