Re: Dylan's retina is fine

[Guest guest]

Kim,

Oh this is such good news. Thanks for sharing. We were all concerned.

Now go take a bath or something to relax!

Bonnie, mom to a 23, Patty CHARGE 21, and wife to

[Guest guest]

Kim-

Good news all around! Our dr, too, is very welcoming when I bring Aubrie in.

She'd much rather be safe than sorry and totally " gets " that Aubrie can defy all

of our rules and expectations of " normal " medicine. And how nice to have

someone who watched him grow and really cares enough to see the changes and

recognize the miracles.

Michele W

[Guest guest]

Kim,

just read all the messages--pre and post-doc visit. So happy all is well.

pam

[Guest guest]

I am so glad hes ok, that must have been scarey.

Hugs,

Crystal and Eva (7 months charger)

>

> Dylan¹s doctor did work him in this am and did a thorough exam of

his retina

> ­ all looks good. (Okay we can all breathe again)

>

> Also checked his acuity, since he was already dilated and he is

developing

> some near sightedness (probably my Carlson genes, not CHARGE

genes). So far

> it is not too bad, so we won¹t try the glasses just yet. Also

checked his

> eye pressures which were higher than usual, then realized we

hadn¹t done his

> eye drops before heading in for the appt right after calling

them. At least

> we know the eye drops work.

>

> This doctor is great about reinforcing that I will never hear a

complaint

> from him about bringing Dylan in to check his retina. He is glad

I do. He

> was also very impressed with how well Dylan did ­ when he was

excited by the

> light and started kicking and wiggling all around, I could sign to

him to

> relax and he would sit still again. Dr. has been Dylan¹s

eye doctor

> since he was a newborn, so has seen him in all his phases. He was

very

> impressed with the differences he saw today. (always much better

than the

> docs who don¹t seem to notice the improvements, but still only

talk about

> how atypical their behavior is.)

>

> I did not get any new answers about the types of falls and so on,

but it

> still seems that jarring and jerking are a big concern in regards

to the

> detachment.

>

> Thanks everyone for your concern.

>

> Kim

>

>

>

[Guest guest]

great news my old paed was like that to better safe than sorry thats where i

ge t from mum used to ring ane theyd be like oh what ever you think is best

marea like half the time she didnt know her self and then shed ring my dr

and shed be liek k coem in and see em or shed ring ane and say just go in

half the time hers and mum intuitions were right i did need stuff we actualy

saw her in the shops the other weekend shes a friend now she said i looked

great the best shes seen me in years and the one i have now hes like oh its

just a virus virus im like right just fix the prob but usualy now we go to

gp and one knows me from hosp so shell be like right and fix me again it is

great when they trust you and agree with wat you say course nto all of them

do hugs ellen

>

> I am so glad hes ok, that must have been scarey.

>

> Hugs,

> Crystal and Eva (7 months charger)

>

>

> >

> > Dylan¹s doctor did work him in this am and did a thorough exam of

> his retina

> > ­ all looks good. (Okay we can all breathe again)

> >

> > Also checked his acuity, since he was already dilated and he is

> developing

> > some near sightedness (probably my Carlson genes, not CHARGE

> genes). So far

> > it is not too bad, so we won¹t try the glasses just yet. Also

> checked his

> > eye pressures which were higher than usual, then realized we

> hadn¹t done his

> > eye drops before heading in for the appt right after calling

> them. At least

> > we know the eye drops work.

> >

> > This doctor is great about reinforcing that I will never hear a

> complaint

> > from him about bringing Dylan in to check his retina. He is glad

> I do. He

> > was also very impressed with how well Dylan did ­ when he was

> excited by the

> > light and started kicking and wiggling all around, I could sign to

> him to

> > relax and he would sit still again. Dr. has been Dylan¹s

> eye doctor

> > since he was a newborn, so has seen him in all his phases. He was

> very

> > impressed with the differences he saw today. (always much better

> than the

> > docs who don¹t seem to notice the improvements, but still only

> talk about

> > how atypical their behavior is.)

> >

> > I did not get any new answers about the types of falls and so on,

> but it

> > still seems that jarring and jerking are a big concern in regards

> to the

> > detachment.

> >

> > Thanks everyone for your concern.

> >

> > Kim

> >

> >

> >

[Guest guest]

Great to hear Kim. I'm also impressed with Dylan's patience during the exam.

Jeanie

[Guest guest]

Glad you got good news on Dylan's retina, Kim. And nice to hear the story of

how his opthalmologist noticed such a big difference in him!

, mom to (3)

---------------------------------

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[Guest guest]

Kim,

Phew!!!! That must have been one scary rollercoaster for you. My

worst nightmare. Glad it all resulted in a quick and safe story for

Dylan and you.

Flo

[Guest guest]

yeah most docotrs dont notice though mine did course she hadnt seen me in a

while shes like grown put on weight and i was like yep

>

> Kim,

> Phew!!!! That must have been one scary rollercoaster for you. My

> worst nightmare. Glad it all resulted in a quick and safe story for

> Dylan and you.

>

> Flo

>

>

>

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