Re: Re: IM Names-I AM REPLYING NOW HELP!!!!

[Guest guest]

Deb,

Have they figured out yet if it is full body or not? What about your upper body, are you having pain and swelling in shoulder, arms, wrists, hands, etc? I know everyone is different so I can only tell you my experience, but it doesn't mean it is the same for you. My RSD started in my right knee after surgery. Then it spread down my right leg and into my foot. Then the left foot started hurting really bad too. Then after the lumbar block my back went crazy, then my forearms all down into my hands, my shoulders, neck....pretty much everywhere. Now the whole left leg is bad as well. When I finally got to see the specialist he confirmed that it was full body, Stage 3. I know how you felt when they told you this. I knew mine was bad but when the doc told me I was still shocked. I just kind of sat there, stunned, and repeated it to him like I didn't hear him right. I called my sister when I got home and I sounded so bad she got on a plane that night and came down to support me, to help me through the shock of finding out how bad it is. This was months ago, and now I'm still waiting for the IV treatment, fighting my insurance for it. This might be something to ask your doctor about, as the medication runs all through your body to help the full body RSD. The shock of having it full body will take some time to adjust too. You go through so many emotions but you just have to mentally pick yourself up off the ground, dust yourself off and reevaluate your situation. With me, I'm still fighting to keep my job but when the time comes that I can't work at home anymore, which I know it will, then I will have to throw in the towel. I see you are still working too, so try not to dwell too much on the RSD, save your time and energy for work and family. You have to accept what is and then work with your doctor to figure out the best way to handle it. I know this is all easier said then done. If you ever need to just vent please know I'm here. I hope this helps some. Please hang in there and enjoy the rest of your weekend. I'll talk to you soon.

<hugs> Lori

[Guest guest]

Lori - I'm so glad to hear that you have someone so loving andsupportive in your life. BarbaraAlwayzLoRi@... wrote:

I just kind of sat there, stunned, and repeated it to him like I didn't hear him right. I called my sister when I got home and I sounded so bad she got on a plane that night and came down to support me, to help me through the shock of finding out how bad it is.

[Guest guest]

Ginny, Thanks a million. I will be home tomorrow afternoon after 5:00 but usually take at least an hour nap. I you are available call me between 8 and 9. I am sooooo excited I am anxious to improve my computer skills and learn how to chat, etc. I appreciate your help. My home number is 318/387-9645. Thanks again for taking time and interest to help me.

Love ya,

DebDog

I hope you are having a smooth day. If you read my emails to Teri I am not having a good day but I always have tomorrow to look forward to. One day at a time is my new motto. I look forward to talking to you tomorrow. If that's not convenient then call anytime. I live in Monroe, LA and I think that's Central time zone.

Ginny Barrientos wrote:

Deborah Ducote wrote:

DebDog.

I have free long distance and it would be easier going over it on the phone with you. If you want to send your # to me in a private e-mail and let me know a good time to call and we can go over it step by step....Hope this will solve the IM problem...Take care...Ginny

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