Re: UPDATE

[Guest guest]

Glad to hear that it's working Teri!!!

Now, just to make sure it KEEPS working!!!

Tonia

-------Original Message-------

Surgery went well. I have a ton of surgical pain but the SCS is working great. Can already feel some relief in arm.

Just up to get meds...going back down.

Love,

Teri

P.S. HAPPY EARLY BIRTHDAY LINDA!

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[Guest guest]

Teri, Sorry I have not written earlier, but just one of my hard days and only been on to make couple replies and update on Janie. But please know that have kept you in my prayers and so glad you have the surgery over with. Please please be careful, know it is hard not to get up and help with cooking and your son, but please take good care and have told Janie you asked about her!! Hugs

s Momma

JoAnn

Re: Update

Teri- Glad the surgery went well! Take care of yourself!! ...Teri Lehr wrote:

Surgery went well. I have a ton of surgical pain but the SCS is working great. Can already feel some relief in arm.

Just up to get meds...going back down.

Love,

Teri

P.S. HAPPY EARLY BIRTHDAY LINDA!

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[Guest guest]

Hello Janie

I am so glad to see you are home again. It just goes to show that prays do work, I for one was praying a lot, every time I read an up date on you, I prayed so more. Please take good care of yourself, you are a very special person.

With Luv,and Prays

Kenny

update

good afrenoon everyone ...if I misspell any words please forgive because my vision is still messed up on me ....I would like to thank each and everyone here for their thoughts and prayers for me ....I'll try to answer each email that I got ...this is truly a great group ....JoAnn has been just wonderful ....I can say this much .I won't be smoking anymore ...they weigh me again and I've lost 20 pounds ....I 'm still very weak so I 'm going to go for now and I'll try to get back on later this afternoon ...hugs...Janie

[Guest guest]

jANIE-tAKE CARE OF YOURSELF AND JUST RELAX.dON'T WORRY ABOUT THE E-MAILS. jUST REST. wISHING YOU LESS PAINFUL DAYS....tANYAKaryn wrote:

I am very glad to hear that you are doing better. I wish you a quick and painless recoverKaryn In Missouri -- In RSD-CRPSofAmerica , "Janie" <McKe5060@b...> wrote:> good afrenoon everyone ...if I misspell any words please forgive because my vision is still messed up on me ....I would like to thank each and everyone here for their thoughts and prayers for me ....I'll try to answer each email that I got ...this is truly a great group ....JoAnn has been just wonderful ....I can say this much ..I won't be smoking anymore ...they weigh me again and I've lost 20 pounds ....I 'm still very weak so I 'm going to go for now and I'll try to get back on later this afternoon ...hugs...Janie

[Guest guest]

Kenny,

You really should have a pain management Dr. to handle your RSD and it's related problems.

I can understand not wanting to have 2 Dr. prescribing pain meds, but what does that have to do with your Back and knee problems? You've already got the pain meds, someone needs to figure out what the other problems are.

Jo

[Guest guest]

Hello Jo

I agree 100%, that is what I am trying to do is to get one doctor, to handle all my problems, I thought that , that was what I had going on with my nero doc, he tells me no pain doc , he will do it all, but then he does not see that the pain I have in my back,and knee is related to my RSD, plus he is not in office today. I am going to see him on 9-16-04, so I will talk to him then, tell then I need some on to deal with the pain in my back,and knee. Hoping you are having a good day.

With Luv,and Prays

Kenny

Re: update

Kenny,

You really should have a pain management Dr. to handle your RSD and it's related problems.

I can understand not wanting to have 2 Dr. prescribing pain meds, but what does that have to do with your Back and knee problems? You've already got the pain meds, someone needs to figure out what the other problems are.

Jo

[Guest guest]

Kenny,

Just out of curiousity, I was wondering why you do not see a pain management doctor for your RSD! My primary care doctor knows nothing of RSD and I only go to her when I need referals or general checkups. All my meds for RSD are prescribed by pain management, and neurologist manages my MS and blood pressure! I would definitely look into this with Workers Comp or Insurance Company. Take Care and I hope that all works out for the best. LOL and Best Wishes!

Dawn L.rsdkenny2003 wrote:

Hello Peoples Well here is an update,and it is very confussing. First I went to see my PCP, for my back,and knee problems, he told me that I had to see my nero doc, because he does not want to have two doc giving out pain meds, OK, So I called the nero doc, he said he only works on my feet( even though my back,and knee problems, I believe are directly related to my RSD )so I have his nurse call my PCP and let him know that he can treat me. So now I am waiting for my PCP doc to call me . I am not going to go in ,and see him, because I have already payed my co-pay. So here I am waiting again, still in pain waiting for some one to make up their minds,waiting for some one to return my calls. I

really hate play this game of doc tag. I think they don't want to work on me because of my RSD. well thats enough from me today, it is just about time for me to start making phone calls, AGAIN..... With Luv,and Prays Kenny

[Guest guest]

Take care kenny and be as patient as you can....easy to say and hard

to do I know

Hopefully they will get back in touch with you soon and get you

comfortable!

Hugs

Donna

[Guest guest]

Kenny,

You really need to find one doctor that will take care of all of your pain from head to toe.....and Then you'll have your normal doctor for your normal problems.....your pain doctor, your head doctor, and then you won't have to worry about trying to figure out which doctor is going to take care of which body part.

The doctors can get in a lot of trouble.....either lose their licenses and/or go to jail for writing out prescriptions for pain meds for a patient if they are already getting pain meds from another doctor. That is called "Doctor Shopping"

So, be very careful when you get your prescriptions, because if both doctors are prescribing Narcotic Medications for you, not only you but both doctors can get in some major trouble...

Tonia

-------Original Message-------

Hello Peoples Well here is an update,and it is very confussing. First I went to see my PCP, for my back,and knee problems, he told me that I had to see my nero doc, because he does not want to have two doc giving out pain meds, OK, So I called the nero doc, he said he only works on my feet( even though my back,and knee problems, I believe are directly related to my RSD )so I have his nurse call my PCP and let him know that he can treat me. So now I am waiting for my PCP doc to call me . I am not going to go in ,and see him, because I have already payed my co-pay. So here I am waiting again, still in pain waiting for some one to make up their minds,waiting for some one to return my calls. I really hate play this game of doc tag. I think they don't want to work on me because of my RSD. well thats enough from me today, it is just about time for me to start making phone calls, AGAIN..... With Luv,and Prays Kenny

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[Guest guest]

Kenny, That's a ditto from me also, Laurie

[Guest guest]

Beth,

Good to hear from you. I am really glad that your RSD symptoms are pretty

much gone, but really sorry to hear of your other problems.

I will write more later.. I have other questions but don't have a free moment

right now!

Hugs,

Jo

[Guest guest]

BETH--I'M SORRY YOU SEEM TO BE GOING THROUGH SO MUCH AT ONE TIME. I PRAY THAT ALL YOUR TESTS BRING YOU POSITIVE RESULTS. AND I HOPE THE NOT-SO-POSITIVE RESULTS GET RESOLVED. YOU HAVE HAD A BUSY SUMMER!! TAKE CARE OF YOURSELF....WISHING YOU LESS PAINFUL DAYS....TANYABeth wrote:

Hi all, I've been awol on this forum for the summer, nothing much going onexcept therapy and lots of wasted time spent in Dr's offices. However Ifinally got a decent EMG a couple weeks ago, and the news was not good.For newer members, I have Thoracic Outlet Syndrome and was diagnosed w/ CRPStype 2. I had a rib removed in February in Denver, and the surgeon found ananomalous muscle growing all over the stellate ganglion, which he removed.When I came to in recovery, most of the RSD sx were gone, and have stayedgone, thank God! Most of the pn in the head, neck, shoulder girdle, upperchest and back was also relieved, but I still have the horrid pain from theelbow down, which we believed was aarpal tunnel. I was told to do PT torehab from surgery, and give the wrist and elbow 5-6 months to see if theycalmed down

following surgery, and now it's been 6 months.I've continued to see atrophy of the hand, and the EMG shows chronicdenervation of the medial cord, this cord in the brachial plexus dividesinto the ulnar and median nerves. I actually have lost muscle in thebiceps, forearm , wrist and the hand, which is the worst. Most of the handand finger muscles are innervated by the ulnar and median nerves, the littlefinger has been numb and weak for over a year, but now the thumb muscles arewasting away too, and I'm told I probably won't be able to get the handmuscles back even if I have surgery to stop the damage. The symptoms in myleft arm, which were mild, are much worse and seem to be following the samepattern.I also found out in August that I have an unspecified connective tissuedisorder, similar to Marfan's or Ehler's Danlos, but they have no diagnostictests yet to determine what my exact genetic problem is.

Something to dowith the soft tissue and lax ligaments, which I'm sure is complicating theTOS!I'm waiting for dates to go back to see my TOS surgeon in Denver, hopefullywill find the compression and have surgery to release it. Then in Oct I amgoing to see my TOS Dr in PA for a follow-up eval, and he is also referringme to Dr Schwartzman - they work closely together with TOS patients, andsince I am such an odd case Dr Togut was able to get me in to see DrSchwartzmann fairly quickly - some good luck for a change!My TOS came on after a bad reaction to a tetanus shot that inflamed thenerves in the brachial plexus, but it seems like the inflammation isthroughout the nervous system as even the nerves in my legs are painful totouch and my feet go to sleep very quickly now. SO we will see what Dr Scan make of me!Will try to check in more often, want to catch up with all my friends

here!beth

[Guest guest]

Thanks for all the welcome backs and warm wishes! It's good to be

back, I missed this group! But was struggling all summer to kep up

with PT and Drs appts and spending SOME time with my kids, so

something had to give. I pray that finally I will get some answers

and find out what improvement is possible - thanks much for all your

prayers!

Was in a bad depression after the last EMG results came back, worst

one yet, and thought of and Tonia, came close to checking into

the hospital, but thankfully it lifted. Seems harder and harder to

hope and then get nothing but bad news, each time it gets easier to

fall into despair and hopelessness. But I cling to God and my

family, and I know I need the support of people who understand and

care, and that is you my friends.

Jo, you are an angel, my daughter Haley turned 9 Sept 1, she is

doing better thankfully. I will be going alone to Denver this time,

so Daddy will be here and I hope that makes her feel more secure.

Was really worried abt her! Older daughter is 13 and in 8th

grade, she is becoming a help and even considerate at times - a

miracle!

BTW, my vaccine injury compensation suit was filed in July, we were

to hear back in August if they needed more info, not a peep. Now we

should have an initial response by Oct 11, just in time for my

birthday on the 12th! Am hoping desparately they will decide to

compensate me without court proceedings as who needs the stress, and

money is very tight. But not likely, it's the government, so keep

trying to give those worries to God and just take one day at a time.

That's all we can do, but He is sufficient, and He hears our prayers.

Love to all,

beth

[Guest guest]

-------Original Message-------

Was in a bad depression after the last EMG results came back, worst

one yet, and thought of and Tonia, came close to checking into

the hospital, but thankfully it lifted. Seems harder and harder to

hope and then get nothing but bad news, each time it gets easier to

fall into despair and hopelessness. But I cling to God and my

family, and I know I need the support of people who understand and

care, and that is you my friends.

========================================================

Beth,

Going to the Psychiatric Ward to get help means that you only need the help...not anything else. There is nothing to be ashamed of because of it.

I did find out that if I hadn't gone and committed myself when I did, my own sister in law and a friend of hers was going to go and commit me because it only takes 2 signatures,.....and they don't have to be relation. If they had gone and done it, I would have lost a lot of my own rights.....like to be able to have a gun in the house, or if Gene and I broke up and got divorced, I wouldn't have a chance in getting custody of them kids.

So, there is a positive and a negative in going and being committed to the Psychiatric Ward.....you get over the depression and feel better, you are a better person to be around and can handle the stress in your life better.....but, you can lose things in the future because of it.

If you DO get down like that again though, you may want to think a bit harder about going and committing yourself though, because the more you get depressed, the deeper you get depressed, the harder it is for a person to get back out of it into the real world.

Tonia

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[Guest guest]

Beth,

Very smart decision. I've been there too.

Laurie

[Guest guest]

So happy your appointment went well. If your white patches every get

super itchy or start to have " tears " in them then you probably have

Lichen Schlerosis which is treated with Steroid Ointment. It doesn't

sound like that's what you have, though, because I think the itching

would be really bothering you. Just something to keep in the back of

your mind.

Hugs

Molly

>

>

> Hi everyone,

>

> I just wanted to let you know that I went to my GYN today. She

assured

> me that the white patches that I have are NOT anything to worry

about

> and it is NOT warts (which is what I was terrified of). She said it

> looks like maybe a sebaceous cyst or just from the Estrace Cr. The

cr.

> will make tissue grow and repair. Anyway, she spent a long time

with me

> discussing my concerns and reassured me to not be upset and that it

is

> nothing serious. Also, this could be as a result of yeast. She

took

> two cultures--one from the vagina and one from the vulvar area. She

> said she will make sure these are watched for several weeks to make

sure

> we are not missing anything. Also, she put me on Diflucan for 6

months.

> I feel much better and I am relieved. Thanks everyone for

responding.

>

> Mindy-hugs

>

[Guest guest]

Just out of curiosity...how often are you taking the diflucan? I'm

glad your appointment went well and you were reassured. Sometimes

even if yeast cultures come back negative it still means there is a

yeast issue (see " The V Book " by Dr. )...so hang in there!

Long-term diflucan has helped a lot of ladies.

Lindsey

>

>

> Hi everyone,

>

> I just wanted to let you know that I went to my GYN today. She

assured

> me that the white patches that I have are NOT anything to worry

about

> and it is NOT warts (which is what I was terrified of). She said

it

> looks like maybe a sebaceous cyst or just from the Estrace Cr.

The cr.

> will make tissue grow and repair. Anyway, she spent a long time

with me

> discussing my concerns and reassured me to not be upset and that

it is

> nothing serious. Also, this could be as a result of yeast. She

took

> two cultures--one from the vagina and one from the vulvar area.

She

> said she will make sure these are watched for several weeks to

make sure

> we are not missing anything. Also, she put me on Diflucan for 6

months.

> I feel much better and I am relieved. Thanks everyone for

responding.

>

> Mindy-hugs

>

[Guest guest]

Hi Lindsey,

She started me on one tablet of Diflucan every three days (times 3 tabs)

and then I will take one a week for 6 months and see what happens. She

said that the vulvo specialists all treat for yeast even if cultures

come back neg. We have treated for yeast, but not long-term, so I hope

it helps. Also, I am going to only use the Estrace at night instead of

bid like I was before. Hopefully the white patches go away. She said

something about a sebaceous cyst, but we will keep an eye on it.

Mindy

> >

> >

> > Hi everyone,

> >

> > I just wanted to let you know that I went to my GYN today. She

> assured

> > me that the white patches that I have are NOT anything to worry

> about

> > and it is NOT warts (which is what I was terrified of). She said

> it

> > looks like maybe a sebaceous cyst or just from the Estrace Cr.

> The cr.

> > will make tissue grow and repair. Anyway, she spent a long time

> with me

> > discussing my concerns and reassured me to not be upset and that

> it is

> > nothing serious. Also, this could be as a result of yeast. She

> took

> > two cultures--one from the vagina and one from the vulvar area.

> She

> > said she will make sure these are watched for several weeks to

> make sure

> > we are not missing anything. Also, she put me on Diflucan for 6

> months.

> > I feel much better and I am relieved. Thanks everyone for

> responding.

> >

> > Mindy-hugs

> >

>

[Guest guest]

Hmmmm...I'd be wary of taking antifungals for a long period of time. I did this,

and merely

developed a more resistant form of yeast called Glabrata. I had to take a more

potent form

of antifungal called VFEND (very expensive) to get rid of it. It also took

months to clear up.

Your body will merely become immune to the medicine in Diflucan.

Good Luck!

> > >

> > >

> > > Hi everyone,

> > >

> > > I just wanted to let you know that I went to my GYN today. She

> > assured

> > > me that the white patches that I have are NOT anything to worry

> > about

> > > and it is NOT warts (which is what I was terrified of). She said

> > it

> > > looks like maybe a sebaceous cyst or just from the Estrace Cr.

> > The cr.

> > > will make tissue grow and repair. Anyway, she spent a long time

> > with me

> > > discussing my concerns and reassured me to not be upset and that

> > it is

> > > nothing serious. Also, this could be as a result of yeast. She

> > took

> > > two cultures--one from the vagina and one from the vulvar area.

> > She

> > > said she will make sure these are watched for several weeks to

> > make sure

> > > we are not missing anything. Also, she put me on Diflucan for 6

> > months.

> > > I feel much better and I am relieved. Thanks everyone for

> > responding.

> > >

> > > Mindy-hugs

> > >

> >

>

[Guest guest]

Mindy, I did that same regimine(mine was only for 4 months) after I gave birth since I was dealing with yeast, and I havent had a yeast infection in 3 years. They also monitored my kidney or liver function very closly while on that regimine through blood. I also took a probiotic everyday to help recolonize the good bacteria. Good luck. Kimmi

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[Guest guest]

,

The treatment that Mindy's dr is recommending is a common one

for trying to treat chronic yeast issues, especially glabarata.

It would be interesting to see if maybe there's a problem with

overuseage of the Diflucan on the more commonly seen yeast:

candida albicans.

Mindy, what kind of strain of yeast do you have going on right

now?

Kristy

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[Guest guest]

,

Diflucan is a common treatment for T (tropicalis) and C

(candida) Glabarata.

As to how many actual strains of glabarata I don't know.

What I do know is that there used to be someone on this list

that had problems with yeast infections caused by " baker's

yeast " .

Kristy

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[Guest guest]

Mindy,

A wet mound is not for yeast any way. It's for finding out if

someone has bacterial vaginosis which is different from yeast.

You mentioned that you don't have a spleen. I am taking it that

your dr is not giving you daily antibiotic treatment. Am I to

understand that correctly? If yes, then why isn't your dr using

giving you daily antibiotic treatment? The reason I ask is

because who don't have a spleen are supposed to be taking

antibiotics on a daily basis.

As for the thyroid, if there's something wrong you can't base it

on just the TSH levels. You need to have the entire panel

(which consists of 7 tests).

Kristy

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[Guest guest]

Hi Kristy,

They can see yeast spores on a wet mount--if they show up--they do not always show up. And yes they can see BV also. It is just different. They are looking for a different thing under the microscope. They can determine three things on a wet mount, which are yeast, BV, and trichomonas. They find an abundance of clue cells with BV, they find yeast spores (some) for yeast, and a paracite it it is trich. I do not really trust the wet mount for yeast anyway--that is why I requested a long culture be done. And I do not think the 48 hour culture is long enough.

I was on antibiotics daily for the first five years after having my spleen out. I have been pretty sick the last year. It seems like I just can't shake anything and I catch everything very easily. I could have Lyme, mono, etc. As far as the thyroid panel, I think he just checked off TSH on the lab slip, but could be wrong. I will check with him on that one.

Keep in touch.

Mindy

>> Mindy,> > A wet mound is not for yeast any way. It's for finding out if> someone has bacterial vaginosis which is different from yeast.> > You mentioned that you don't have a spleen. I am taking it that> your dr is not giving you daily antibiotic treatment. Am I to> understand that correctly? If yes, then why isn't your dr using> giving you daily antibiotic treatment? The reason I ask is> because who don't have a spleen are supposed to be taking> antibiotics on a daily basis.> > As for the thyroid, if there's something wrong you can't base it> on just the TSH levels. You need to have the entire panel> (which consists of 7 tests).> > Kristy > > > > > > > > > > ____________________________________________________________________________________> Get your own web address. > Have a HUGE year through Yahoo! Small Business.> http://smallbusiness.yahoo.com/domains/?p=BESTDEAL>

[Guest guest]

Hi Kristy:

Why are people without spleens supposed to be on antibiotics and is that supposed to be long term? My brother doesn't have a spleen since 1996 and he has never been on antibiotics. So I was wondering.

Sherri

-------------- Original message -------------- > Mindy, > > A wet mound is not for yeast any way. It's for finding out if > someone has bacterial vaginosis which is different from yeast. > > You mentioned that you don't have a spleen. I am taking it that > your dr is not giving you daily antibiotic treatment. Am I to > understand that correctly? If yes, then why isn't your dr using > giving you daily antibiotic treatment? The reason I ask is > because who don't have a spleen are supposed to be taking > antibiotics on a daily basis. > > As for the thyroid, if there's something wrong you can't base it > on just the TSH levels. You need to have the entire panel > (which consists of 7 tests). > > Kristy > > > > > > > > > > ________________________________________________________________________________ > ____ > Get your own web address. > Have a HUGE year through Yahoo! Small Business. > http://smallbusiness.yahoo.com/domains/?p=BESTDEAL > > >