Re: Re: colitis medication/slightly OT

[Guest guest]

thanks so much sheila. Thanks to you and Robbie, i have decided against AMP but

i'm still on the fence about starting him on prednisone and 6MP. I'm also

afraid that " illegals " are added to the meds.

all my best,

kim mom to Charlee, age 8 scd 5 months

Re: colitis medication/slightly OT

>

>

> Hi Kim,

>

> > thanks for your comment about the increase in appetite at the

> beginning of the diet. My son has been on the diet for 5 1/2

> months....should he still be eating a HUGE quantity of food? For

> example, he has been awake for 2 hours and he has already eaten 6

> thick slices pork tenderloin, 5 carrots, 2 pears and a handful of

> pork rinds. he constantly asks for food!!! what do you think?

>

> My appetite didn't stabilize until my weight stabilized. It has

> been a few years but if I am recalling correctly it might have

> been

> a year or even a little longer. I just remember thinking one

> day... " hmm, I am not eating as much food as I was when I started

> SCD. " It seems to vary for different people, like many other

> facets

> of SCD and healing. And if it is any consolation my kids go

> through

> food jags in which they wil just eat and eat all day long. Same

> amounts as you describe and other days hardly a thing. On those

> days

> DH eats a lot of leftovers

>

>

> > Also, someone else posted an alternative colitis remedy

> called " boswallia " ? Ever heard of it? do you or any of the adults

> on

> your other list know about it?

>

> Yes, I have heard of it but I don't really know much about it. I

> think it was Teri (?) that was looking into it. I haven't read

> much

> about it on the adults lists but I don't always get to read them

> all. Healing Crow is a great place to discuss alternative meds.

> http://health.groups.yahoo.com/group/HealingCrow/

>

> Sheila 44 mos SCD, 20 yrs UC

> mom of SCD 29 mos

>

>

>

>

>

>

[Guest guest]

I posted this before but don't know if you got it. Secretin (suggested by Dr

Krigsman) has been sooooo wonderful for my son. He went from having diarrhea

all day long to beautiful 1 a day poops. We were about to try prednisone when

we decided to give secretin a try first. It has proven to be one of the most

helpful things ever for my son. I guess because it provides pancreatic enzymes

it helped break down the foods. He is eating great now and happier and calmer.

I am thankful for it everyday.

karen

[Guest guest]

jody,

thanks for your reply and NO he is not in a really bad flare. his biggest

symptom is that he is eating about 3000 calories (fyi: 29% fat, 35% carbs and

36%protein) and has undigested food in his somewhat solid poop. Dr. neubrander

says this is due to the inflammation which is causing malabsorption. dr.

krigsman says he needs the meds to decrease the inflammation. i'm startin to

think that you scd ers are smarter than these dr.s.

your opinion is appreciated.

thanks.

kim, mom to charlee, age 8, autism scd 5 1/2 months

Re: colitis medication/slightly OT

>

>

> " i'm still on the fence about starting him on prednisone and

> 6MP. "

>

> Kim,

>

> I must have missed something somewhere. Is he in a really,

> really bad flare? Bloody stools, numerous times a day or

> something?

>

> Starting steroid treatment is usually reserved for kids in really

> bad shape. It is very, very hard to get off of steroids once you

> start them. They supress the immune system and have all sorts

> of nasty side effects for some people.

>

> Jody

> mom to -5 and -8

> SCD 21 months

>

>

>

>

>

>

[Guest guest]

kim, My son also showed a lot of undigested food on his stools. One thing that

is helping a lot is the enzymes. It made a real diference when we started using

enzymes with every meal and snack. I still see some, but much, much less. I

would give the enzymes a try before going with the meds.

[Guest guest]

Goodness, with the mildness of the symptoms I'd avoid the steroids like the

plague. That 6mp - isn't is an immunosuppresant as well? I would think that

would be totally unnecessary.... it sounds like SCD is working well for him.

did not eat that much when he was flaring - he eats more on SCD than before

prolly because I truly believe he absorbs more nutrients than before. Like he

has to play catch up. His doctor was surprised to see that he grew an inch over

the summer even on steroids, which usually supresses growth. His bloodwork was

also normal, which surprised his doctor as well. Maybe some blood work would

help you know how he stands nutritionally and give you some peace of mind.

Robbie

From: 3cjs1@...

To: pecanbread

Sent: Tuesday, October 19, 2004 1:36 PM

Subject: Re: Re: colitis medication/slightly OT

jody,

thanks for your reply and NO he is not in a really bad flare. his biggest

symptom is that he is eating about 3000 calories (fyi: 29% fat, 35% carbs and

36%protein) and has undigested food in his somewhat solid poop. Dr. neubrander

says this is due to the inflammation which is causing malabsorption. dr.

krigsman says he needs the meds to decrease the inflammation. i'm startin to

think that you scd ers are smarter than these dr.s.

your opinion is appreciated.

thanks.

kim, mom to charlee, age 8, autism scd 5 1/2 months

Re: colitis medication/slightly OT

>

>

> " i'm still on the fence about starting him on prednisone and

> 6MP. "

>

> Kim,

>

> I must have missed something somewhere. Is he in a really,

> really bad flare? Bloody stools, numerous times a day or

> something?

>

> Starting steroid treatment is usually reserved for kids in really

> bad shape. It is very, very hard to get off of steroids once you

> start them. They supress the immune system and have all sorts

> of nasty side effects for some people.

>

> Jody

> mom to -5 and -8

> SCD 21 months

>

>

>

>

>

>