Re: Update 7 months - frustrated

[Guest guest]

We've been eating goat yogurt for months. We were Casein free for a

month, a few months into the diet with absolutely no difference in

behavior or stool. I know he is not reacting to the dairy; this new

behavior is out of nowhere and is basically how every August has been

in his short 5 years. He's been great before August! Most of May, June

and July were awesome. It's like I got my son back and I was so

thankful to SCD. Now it's like he's never been on it; like preSCD and

it's been that way for an entire month. If he's reacting to everything

he was eating in those great months, then that makes my life just that

much harder!

I am aware of the leaky gut connection, but am still puzzled that even

after 7 months of SCD, the stupid August reaction is happening just as

bad as every other year without Feingold or SCD. It's very

frustrating. I started SCD to combat yeast and help his gut heal so

his allergies would go away; August comes along and wipes all that

out! I'm not even sure if a leaky gut was ever the culprit now. This

latest regression has me doubting SCD was ever what Sam needed. I will

stick with it as long as I feel it's necessary. If this reaction lasts

as long as the bad regression in Dec 2003 (which lasted 3 months into

SCD until May 2004!) then I doubt very seriously that SCD will help in

the long run for us.

Thanks

Chrystee

Sam, 5, NT, behavior/sensory issues, salicylate sensitive

SCD 7 months

> Chrystee,

> Do you give him the yogurt, goat or nut? From all the reading i have

> done lately, this is very KEY in overcoming the leaky gut syndrome

> that may be causing so many " allergies " for him. I have read that

> yogurt does help with allergies, and now I know why. It helps to

> seal those leaks in the intestine with good bacteria. We do the nut

> yogurt starting a little at a time and then building up. It makes

> him " wonky " but his allergy symptoms and poops are much better. The

> yeast could be from too much fruit or cheese maybe? We don't do

> cheeses yet, but I hope to slowly add them soon. Also, eggs can

> cause reactions because of the leaks too. I'd say the yogurt is the

> most important thing to combat this leaky gut, in my opinion and from

> what I am seeing with my son. If I am not mistaken, even

> susceptibility to the environmental allergens could stem from the

> leaky gut, causing a weakened overall immune system.

>

>

[Guest guest]

Chrystee,

You are probably doing all this already but since you think it is

pollen...Do you rinse him & his hair off before putting him to bed

to remove all the pollen? Especially on the days he is outside.

Wash his sheets too if he slept on them without a shower. And his

hair and clothes can hold quite a load of pollen so perhaps making

sure he changes into fresh clothes after being outside or on the way

to bed. We have grumpies around here too with pollen so I really

feel for you. I'm sure you know all this but thought I'd send it

just in case,

Bonnie, scd since May

> We've been eating goat yogurt for months. We were Casein free for a

> month, a few months into the diet with absolutely no difference in

> behavior or stool. I know he is not reacting to the dairy; this new

> behavior is out of nowhere and is basically how every August has

been

> in his short 5 years. He's been great before August!

> >

[Guest guest]

Chrystee,

This may be of little consolation to you, but I thought I would post

anway.

This August has been the worst, by far, of any allergy seasons

for us.

Poor is needing breathing treatments every 4 hours

(the closest together that I can give them). He sounds terrible.

He's already had a chest x-ray to make sure that he didn't have

pneumonia.

Have you ever heard of Gastrocrom? It's a mast cell inhibitor.

With the pollens so bad, I am sure that some of them are getting

ingested as he breathes and swallows. I wonder if the

Gastrocrom would help him.

It might be worth at least looking into.

Are you giving him allergy medication? If so, what?

Jody

mom to -5 and -8

SCD 19 months

[Guest guest]

Interesting....

Thanks for posting this. I'm sticking to it. Making sure he gets

yogurt everyday and adding MSM in to help with the seasonal allergies.

If that works maybe I'll try another supplement, slowly of course. I

haven't really tried them yet and maybe it will help.

Chrystee

> Dear listmates,

> We are at 11 mos SCD and without a doubt 7 months was the absolute

> worst regression I had seen thus far. We had also been doing some

> other things which I believe exacerbated the 7th month problem. His

> behavior was worse than it had been ever (even years ago). He was

> completely noncompliant and ended up hitting me and throwing over my

> kitchen chairs. He had massive gas which I believe was from die off.

> Then when the gas was resolved he would bounce right back. He is

> usually very calm, sweet, and easy going so this was very out of

> character. We needed to put him back on an antifungal and that helped

> even him out. Now he has been off yeast meds again for 2 mos and is

> better than ever. Activated charcoal helped too. I'm not sure about

> the allergy situation since we really don't have that. In the end, he

> emerged wonderfully with even more language so hang in there!

>